International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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Some Inconvenient Truths

Discussion in 'Action Alerts and Advocacy' started by merylg, May 28, 2013.

  1. merylg

    merylg Senior Member

    Sydney, NSW, Australia
    maddietod, Valentijn, L'engle and 2 others like this.
  2. Kina


    Sofa, UK
    Excellent article. I was riveted.
  3. golden

    golden Senior Member

    Thanks so much for posting this article.

    Its a Gem - it just doesnt get much better than that.

    Its given me a sense of relief and peace that this is being highlighted accurately.

    It is my view that a long term medical misdiagnosis should in truth be referred to as “Serial Clinical Abuse” because patients suffer year after year of neglect and psychological denigration from the mistaken beliefs of a string of ill educated doctors who presume that a patient must be mentally ill if they have “CFS/ME”.

    Serial Clinical Abuse is spot on.

    Also, I like the idea of the Super Specialist!

    He really has hit tge nail on the head and captured all the points including the Psychiatrists poor medical skills etc.

    I wish I could write to him and thank him.
  4. A.B.

    A.B. Senior Member

    This is so true. If everyone around you treats you like a mentally ill person, you start feeling like one.
    Valentijn likes this.
  5. Shell

    Shell Senior Member

    I am reading it - so far it's brilliant.
    His early experience working in the NHS was similar to mine. He is right that in those early 1980s patients with any physical illness were not accused of "somatasation". Freud was being kicked out of the ball park because it was recognised that his ideas were based on his personal misogyny and rather dubious fixation with sex. No one took him seriously any more. Now, I grant you, we had taken on Maslow and worse still Rogers (How does it feel for you) and the "I'm ok, you're ok" stupidity but while this was taught in the schools, most of us saw pdq that it wasn't a practical approach at the coal face. (One tutor introduced me to Frankl's Logotherapy and I've never looked back. Why Freud took hold and Frankl didn't I don't know. If you've never read "Man's Search For Meaning" you've missed a treat)
    But it was drummed into us "check all physical illness first". All new admissions had all sort of blood and urine tests done in those days. By the time I left we had to beg for even drug screening for obviously "high" admittees.
    We watched videos of insulin therapy and "the box" (ECT at it's scariest) as warnings of how psychiatry can go wrong. (ECT was still happening. It still does...)

    But while Ralph didn't see the dark side until he became ill, I began to see it increasingly as the years went by. Patient care was suffering and by the time I left psychi nursing and went to the Children's Hospice, it was clear that something was very rotten indeed in the state of psychiatry in the NHS. Corruption was rife, bed shortages made caring for patients horribly difficult and new staff were being chucked out of Uni with a degree in nursing, an no discernible skills.

    Vested interests were sucking up the money that was thrown at the bloated system and I think Wessley et al saw the gravy train and hopped aboard.
    By the time I became ill in Nov. 2002 the rot was well established.
    No one even tried to dx what was happening to me and I was left in limbo for over 7 years. My first inkling that things would go badly happened when two registrars stood on either side of my hospital bed that Nov, one an OB (I was 6mths preg) and the other a neuro and they argued about whether I was to get an MRI, and they weren't arguing over the safety of my baby. His welfare wasn't even on the neuro radar - but then neither was mine. The OB won and the neuro reluctantly signed off for me to have the MRI.
    It went missing immediately afterwards. Hospital manager had to be involved to find it.
    And so it began.
  6. Valentijn

    Valentijn Senior Member

    Finally, a explanation of what liaison psychiatrists really want to do to ME patients :p

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