Jill McLaughlin
Senior Member
- Messages
- 196
Dr. Lee,
When will the public testimony from the November CFSAC meeting
be put on the website?
The CFSAC continues to use ME/CFS. They made recommendations
but no changes have been accepted or approved. On whose authority does
this committee become an ME/CFS committee or about ME/CFS, a made up
term which has no HHS recognition or accepted case definition and is
unrecognized by the WHO?
The CFSAC is a "Chronic Fatigue Syndrome Advisory Committee."
The objectives and scope pertains to issues related to CFS and
operates under FACA guidelines. CDC recognizes and states
the difference between ME and CFS and NCHS has classified them
separately and in different Chapters of the ICD. The CFSAC
recommendation in coding CFS to ME makes them synonymous
terms and combines them, interfering with another illness and
subjecting ME patients to inappropriate treatments associated with CFS.
Jill McLaughlin
cc:
Dr. Howard Koh, Assistant Secretary for Health (ASH)
Senator Sheldon Whitehouse
Senator Jack Reed
Congressman David Cicillini
Vice President Joe Boden
President Barak Obama
When will the public testimony from the November CFSAC meeting
be put on the website?
The CFSAC continues to use ME/CFS. They made recommendations
but no changes have been accepted or approved. On whose authority does
this committee become an ME/CFS committee or about ME/CFS, a made up
term which has no HHS recognition or accepted case definition and is
unrecognized by the WHO?
The CFSAC is a "Chronic Fatigue Syndrome Advisory Committee."
The objectives and scope pertains to issues related to CFS and
operates under FACA guidelines. CDC recognizes and states
the difference between ME and CFS and NCHS has classified them
separately and in different Chapters of the ICD. The CFSAC
recommendation in coding CFS to ME makes them synonymous
terms and combines them, interfering with another illness and
subjecting ME patients to inappropriate treatments associated with CFS.
Jill McLaughlin
cc:
Dr. Howard Koh, Assistant Secretary for Health (ASH)
Senator Sheldon Whitehouse
Senator Jack Reed
Congressman David Cicillini
Vice President Joe Boden
President Barak Obama