Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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Protein shake anyone?

Discussion in 'General ME/CFS Discussion' started by Maria1, Mar 26, 2017.

  1. Maria1

    Maria1 Silence speaks volumes

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    Hi there people

    I bought some whey powder at new year when it was on offer in my local Spar. I bought it impulsively having read a few positive comments on here about it making a difference, and branch chain amino acids being mentioned in some research (forgive my vagueness; I am quite badly brain fogged and find specifics a challenge).

    Around a week ago, I started taking it every day, one serving at 25 grams. I'm thinking about doubling what I'm taking to twice a day.

    I'm not sure if it's doing anything but somehow I'm feeling good about taking it. I look forward to it! I am not severely affected and currently managing to walk around 8000 steps a day. I became ill in 2012 and no longer work. For the first two or three years I was unable to walk more than a short distance but I've improved quite a bit recently. I started walking when I got a puppy, in June last year. I have good days and bad days but usually manage to walk her. I have to be careful about pacing and not doing much else at all.

    For the past few days, I've found myself dancing in the kitchen! Not sure it's just coincidental but I have tried all sorts of supplements and not really ever felt a direct improvement.

    Anyway, I wondered if a post specifically on whey powder might be an idea? For those taking it or who have taken it. What are you taking and are you noticing a difference?

    I'm taking PHD diet whey, banana flavour. It has a rather unpleasant, artificial banana flavour, but I've improved that by adding by adding other stuff, currently courgette and flax seed!
     
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  2. gregh286

    gregh286 Senior Member

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    Londonderry, Northern Ireland.
    hi,
    good news. I am big supporter of aminos,.took me to an 8 level from 5.
    diet PHD is the best, dont change. Its very high in glutamine which is highest benefit.
    Do not fall into trap think you slacken off, need to keep taking 3-4 a day (100g)
    Body can use amino as alternative to glucose.
    Aminos only thing that has direct correlation to me also. I have tried everything.
    Latest research shows variation in amino profile from man to woman so keep on broad spectrum amino like PHD.
    BTW banana and vanilla the best! Belgian choc is RANK
     
  3. Eastman

    Eastman Senior Member

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  4. Murph

    Murph :)

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    I've written about this all over the forum, but I've got good benefits from hydrolysed whey protein isolate. The brand recommended by my doc is dymatize iso 100.

    It is whey protein isolate, which means it is broken down, and it is hydrolysed, which means it is broken down even more. The point of that is that it should be extremely fast-absorbing, and have lower risk of containing proteins your body may react to. It should be more or less just amino acids. (I think).

    I've looked at greg's PHD powder and it seems to have milk protein concentrate in it, which would not be ideal for me as I don't tolerate casein well. I'm sure there are other hydrolysed whey protein isolates but I haven't fund them yet.

    You said "I've found myself dancing in the kitchen!" and that's my experience too. Its effect is kind of amazing.
     
    Last edited: Mar 26, 2017
  5. dannybex

    dannybex Senior Member

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    It's my understanding that glutamine/glutamic acid are the highest naturally occuring aminos in all whey and other protein powders.
     
    Last edited: Jul 18, 2018
  6. dannybex

    dannybex Senior Member

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    @Murph I know this is an old post, but I just googled the Dymatize ISO 100, and the ingredients list that it 'contains milk and soy'. But you were still able to not only tolerate it but do well on it? Or are there flavors that don't contain milk/soy?
     
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  7. Murph

    Murph :)

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    My understanding is it is made from milk, but the part of milk I can't tolerate - casein - is excluded. Milk has two proteins, casein and whey, and this is the whey part. Furthermore the whey is broken down substantially into its amino acid constituents and even below that to peptide particles.
     
  8. Wolfcub

    Wolfcub Senior Member

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    I'm not really into "shakes" and stuff, but one thing I noticed is I have definitely been craving protein for some reason, for weeks and weeks. Any form of protein. I feel there is a clue in it. Our bodies are not stupid.
     
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  9. Learner1

    Learner1 Forum Support Assistant

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    As referred to above, Fluge and Mella found ME/CFS patients tend to burn amino acids for energy, so that we need more than healthy people.

    After solving a lot of individual smino problems, as I ran short of glycine, tyrosine, methionine, ornithine, etc., we found my labs consistently showed low total protein and amino acids, which matched the pattern in the study. And this was with eating about 1.4g/kg of protein a day and craving meat.

    Protein powders are problematic - when I checked the amino acid profile in each powder, they didn't match what I was short of - I tended to have enough of what they were high in, but I was depleted in the aminos the powders didn't have much of. Many are contaminated with heavy metals and glyphosate.

    Finally, my doctor ordered a pure custom amino acid powder, with ratios of aminos that match my needs, and I get an extra 40g of aminos a day this way. I stopped craving meat and feel a lot better.
     

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