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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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There isn't really anything else that we can say to you. Until you get a diagnosis from a neurologist, you won't know what is wrong with you. I totally understand that you want answers now, you don't want to have to wait, and I feel bad for you that you do have such a long waiting period to be seen. However, we can't give you the answers that you want to hear and you have to accept that. Getting upset with us isn't going to change anything.I wish people would stop urging me to see a doctor.
I have been put on a long waiting list to see the neurologist. By the time the appointment arrives, all my nerves will be permanently damaged.
I am not choosing to not see a neurologist. I am being forced to wait.
Oh yes, lots of those, plus electric shock-type sensations, lots of muscle twitching too. So much muscle twitching I got really worried about having ALS. (But nope, good ole' ME).what exactly were your symptoms? Was it actually pins and needles?
that's an interesting comment about hyperventilation.I had terrible paresthesia and peripheral neuropathy for several years. Fat-soluble thiamine got rid of 90% of it in less than a week.
However, by far the most common cause of 'pins and needless', numbness etc. is chronic hyperventilation / anxiety disorders. It can be hard to spot and diagnose because the hyperventilation doesn't look like an acute panic attack, it tends to be maintained by occasional deep sighing respiration which perpetuates the chronic acid-base imbalance and electrolyte derangements (calcium, phosphate, potassium).
Can peripheral neuropathy actually be tested for?
that's an interesting comment about hyperventilation.
I have considered it as a cause, but I don't see how it can cause the symptoms I have.
If Im getting pins and needles why doesn't it go away if I immediately slow my breathing?
And why would it always get worse immediately during a hot bath? And after a long walk?
I actually do have an unusual breathing pattern.
It tends to be very shallow most of the time and I even pause my breathing if I'm focusing on something.
But I thought Hyperventilation is when you're getting too much air not too little?
Isn't more oxygen taken in as well though?
And why would hot bath worsen it?
Can peripheral neuropathy actually be tested for?
@Hip. Explain to me how pins and needles can be caused by anxiety?
Of course I've heard that before but I've never seen any explanation for it other than hyperventilation.
It seems to be a bogus explanation
anxiety could be defined as a cluster of thoughts then anxiety is by its nature physiological
Anxiety, stress and psychosomatic disease are just excuses to explain unidentifiable rare or obscure diseases.
I don't buy any of it. It's dangerous. Ms is a serious disease. We can't afford to entertain quack diagnoses given the seriousness of my situation.