New Atmosphere, New Vision: Gibson and Whittemore Kick Off Invest in ME Conference 2016
Mark Berry reports on Dr. Gibson's introduction and Dr. Whittemore's keynote speech, at the 11th Invest in ME International ME Conference in London.
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PANDORAs First Town Hall Virtual Meeting - Guest Speaker Mr. Patrick Erin Murphy

Discussion in 'Action Alerts and Advocacy' started by Little Coqui, Nov 14, 2011.

  1. Little Coqui

    Little Coqui

    Please join us on Nov 15, 2011 at 2:30 pm

    PANDORAs First Town Hall Virtual Meeting -

    Guest Speaker: Mr. Patrick Erin Murphy, a candidate running for the U.S. House of Representatives, district 22 in the state of Florida.

    This first webinar will be part of a series of Advocacy and Lobby Days that we hope to bring to our community in the months ahead. It is part of the Advocates Extraordinaire(TM) Program, an ongoing advocacy leadership program sponsored by PANDORA to create awareness for

    NeuroEndocrineImmune diseases (NEIDs)

    TIME: 2:30 to 3:30 pm

    Reserve your Webinar seat now at:

    System Requirements

    PC-based attendees

    Required: Windows 7, Vista, XP or 2003 Server

    Macintosh-based attendees

    Required: Mac OS X 10.5 or newer

    Our goals include to reach out and educate current and future political candidates in the crucial issues at least 20 million Americans, who are their constituents are forced to face. The NEIDs community is looking for Heroes in Congress and across the political spectrum, so together we can address the disenfranchisement of so many Americans who have become INVISIBLE and VOICELESS.

    The dismal federal governmental research funding for these illnesses ($2 per patient based on total annual estimated combined 2011 National Institutes of Health (NIH) & Department of Defense Research (DOD) $40 MM) directly contribute to the financial, physical and emotional hardships experienced by Americans stricken with NEIDS and destroying their quality of life.

    It is important to educate our political leaders of our plight in states across our country. Because of the physical and financial hardships the majority of sick Americans are unable to visit congressional offices in Washington DC. They are also too ill to visit their own states political representatives. Part of our strategy will be to use current technology and take our voice to our state and federal political leadership. We will make our plight visible and effectively influence change that will restore quality of life for our community of suffering.

    Send your questions & suggestions to Tina Tidmore:

    The webinar will last one hour and will be archived.

    The first 5 individuals to sign up for the webinar will either receive a copy (your choice) of the book What Nurses KnowChronic Fatigue Syndrome: The Answers You Need from the People You Trust, or the video Living with Fibromyalgia: A Journey of Hope of Understanding and the Advocates Extraordinaire pin.

    We look forward to having you on November 15, 2011. Due to the fact that the meeting will be on November 15, 2011, I have tagged many in our Facebook community so please share with your membership and friends. I appreciate your collaboration on spreading the word about this important meeting. Patrick has a very busy schedule but he is looking forward to this opportunity to connect with our overall community and learn about our crucial issues.

    Stay tuned for other educational webinars similar to this one coming up soon.

    Visit our event page on Facebook:

    Thank you!
  2. usedtobeperkytina

    usedtobeperkytina Senior Member

    Clay, Alabama
    Date and time has been changed. Now Nov. 16 at 2 p.m. EST.

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