Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Online comments bonanza! Post new media coverage here

Discussion in 'Action Alerts and Advocacy' started by Sasha, Nov 2, 2015.

  1. Sasha

    Sasha Fine, thank you

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    Can't keep up!

    All this PACE etc. stuff is a GOLDEN opportunity to hijack the media to get our own messages out. How-to hints here.

    Some vile coverage is, ironically, giving us the chance to boost the PACE petition:

    http://my.meaction.net/petitions/pace-trial-needs-review-now

    For example, there's an apparently vomit-making piece by Ron Liddle in the Spectator that I didn't bother reading but used to promote the petition.

    Let's use this crap to our advantage! And let's use the lovely stuff too.

    Please post new media coverage here so we can start using it.

    And please join in about the petition. 10,000 target, remember!
     
    Bob, Effi, Dolphin and 2 others like this.
  2. concepcion

    concepcion Senior Member

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    Chezboo and Sasha like this.
  3. Sasha

    Sasha Fine, thank you

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  4. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

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    Canada
  5. SOC

    SOC Senior Member

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    Those are actually great articles to post the petition in. Sensible people can see the kind of ignorance and hatred we are facing when they read sputum like Liddle's. I imagine it makes them more supportive rather than less.

    Note that I said sensible people. Liddle's admiring audience of hate-mongers will never support us no matter what happens. It's not them we're aiming at, I think.
     
    Valentijn, TiredSam and Sasha like this.
  6. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    australia (brisbane)
    I think they are really pushing the cbt/get stuff hard to try and cover up for the pace trial failings , they know the end is near for their psychobabble .
     
    Sasha likes this.
  7. Art Vandelay

    Art Vandelay Senior Member

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    I agree. They will lie, obfuscate and spin in order to keep their taxpayer-funded gravy trains going for as long as they can.
     
    heapsreal and Sasha like this.
  8. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    A little blurb in Nature's This Week In Science section, there is a comments section.

    http://www.nature.com/news/the-week-in-science-30-october-5-november-2015-1.18711

    Chronic fatigue The US National Institutes of Health is stepping up efforts to tackle chronic fatigue syndrome, also known as myalgic encephalomyelitis (CFS/ME). In an announcement on 29 October, the agency said that it would be centring its CFS/ME research programme in the National Institute of Neurological Disorders and Stroke. Its plans include a clinical study on its campus in Bethesda, Maryland, that will enrol patients with sudden-onset CFS/ME apparently caused by an infection.
     
    Sasha likes this.
  9. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    Sasha likes this.

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