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NIH ME/CFS Telebriefing - 3/7/2018 (Wed.) at 3:00 pm (EST)

Discussion in 'Upcoming ME/CFS Events' started by Wally, Feb 26, 2018.

  1. Wally

    Wally Senior Member

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    TRANS-NIH ME/CFS WORKING GROUP

    Upcoming Events


      • NIH ME/CFS Advocacy Call
        March 7, 2018 at 3pm ET
        Dial-in: 866-844-9416, Participant passcode: 4042892
    See, https://www.nih.gov/mecfs/events (note - link copied from 2/22/2018 page update).
    —————

    E-mail received from NIH Listserv on 2/22/2018

    “News from NIH: ME/CFS Telebriefing - March 7, 2018


    “We request your participation in a telebriefing about updates on NIH’s efforts to advance research on ME/CFS. The telebriefing will be held on March 7, 2018, 3:00 until 4:00 pm ET. If you will be calling from the U.S., please use the following dial-in information for the telebriefing.

    Dial-in: 866-844-9416

    Participant passcode: 4042892

    If you will be calling from another country, please see the attached chart for your country’s access information.

    Please remember to register at NIHME-CFSWorkingG@ninds.nih.gov if you plan to participate in the call.

    Thank you in advance for your participation and we look forward to an engaging, thoughtful and productive conversation.

    Regards,

    The Trans-NIH ME/CFS Working Group”

    [Here is the link to subscribe to the listserv for the Trans-NIH ME/CFS Working Group - https://list.nih.gov/cgi-bin/wa.exe?SUBED1=NIH-MECFS_INFORMATION&A=1]

    ————————

    (This is the chart (which I modified to be easier to read) that was included as a PDF attachment to the listserv e-mail.)

    *COUNTRY
    Toll Numbers
    Freephone/Toll Free Number
    (Restrictions may exist when accessing freephone/toll free numbers using a mobile telephone.)
    Passcode: 4042892

    ARGENTINA
    0800-444-0891

    AUSTRALIA: ADELAIDE
    61-8-8121-5054
    1-800-027-350

    AUSTRALIA: BRISBANE
    61-7-3102-2043
    1-800-027-350

    AUSTRALIA: CANBERRA
    61-2-6100-0105
    1-800-027-350

    AUSTRALIA: MELBOURNE
    61-3-9010-0854
    1-800-027-350

    AUSTRALIA: PERTH
    61-8-9467-5282
    1-800-027-350

    AUSTRALIA: SYDNEY
    61-2-8209-1531
    1-800-027-350

    AUSTRIA
    43-1-92-81-450
    0800-005-805

    BELGIUM
    32-2-400-9833
    0800-3-8929

    BRAZIL: RIO DE JANEIRO
    55-21-40421433
    0800-7610654

    BRAZIL: SAO PAULO
    55-11-3958-0778
    0800-7610654

    CANADA
    866-845-8493

    CHILE
    1230-020-5986

    CHINA: CHINA A
    86-400-810-4796
    10800-712-2423

    CHINA: CHINA B
    86-400-810-4796
    10800-120-2423

    COLOMBIA
    01800-9-157005

    CROATIA
    080-08-06-410

    CZECH REPUBLIC
    420-2-25-98-56-26
    800-700-241

    DENMARK
    45-7014-0294
    8088-2739

    EGYPT
    0800000-9037

    ESTONIA
    800-011-1126

    FINLAND
    358-9-5424-7157
    0-800-9-14619

    FRANCE: LYON
    33-4-26-03-51-62
    080-510-2764

    FRANCE: MARSEILLE
    33-4-86-06-48-62
    080-510-2764

    FRANCE: PARIS
    33-1-72-25-40-65
    080-510-2764

    GERMANY
    49-69-2222-4866
    0800-800-1420

    GREECE
    30-80-1-100-0647
    00800-12-8034

    HONG KONG
    852-3001-3890
    800-963-172

    HUNGARY
    36-1-700-8827
    06-800-11152

    INDONESIA
    007-803-011-0169

    IRELAND
    353-1-506-0475
    1800-936-202

    ISRAEL
    1-80-9212604

    ITALY: MILAN
    39-02-3604-6279
    800-977-454

    ITALY: ROME
    39-06-8751-6068
    800-977-454

    ITALY: TORINO
    39-011-510-0168
    800-977-454

    JAPAN: OSAKA
    81-6-7878-2610
    0066-33-812353

    JAPAN: TOKYO
    81-3-6868-2610
    0066-33-812353

    LATVIA
    8000-3206

    LUXEMBOURG
    352-27-000-1392
    8002-9169

    MALAYSIA
    1-800-81-4674

    MEXICO: GUADALAJARA (JAL)
    52-33-3208-7366
    001-866-944-7658

    MEXICO: MEXICO CITY
    52-55-5062-9166
    001-866-944-7658

    MEXICO: MONTERREY
    52-81-2482-0666
    001-866-944-7658

    NETHERLANDS
    31-20-716-8075
    0800-020-0350

    NEW ZEALAND
    64-9-970-4640
    0800-456-285

    NORWAY
    47-21-590-067
    800-10580

    PANAMA
    011-001-800-5072373

    PERU
    0800-53785

    PHILIPPINES
    63-2-858-3759
    1800-111-42417

    POLAND
    00-800-1213477

    PORTUGAL
    351-2-10054708
    8008-14925

    ROMANIA
    40-31-630-01-34

    RUSSIA
    8-10-8002-5624011

    SAUDI ARABIA
    800-8-110059

    SINGAPORE
    65-6883-9196
    800-120-5221

    SLOVAK REPUBLIC
    421-2-322-422-78
    0800-002074

    SLOVENIA
    0-800-81359

    SOUTH AFRICA
    080-09-82147

    SOUTH KOREA
    82-2-6744-1051
    00798-14800-7786

    SPAIN
    34-91-414-21-71
    800-300-906

    SWEDEN
    46-8-503-34-824
    0200-899-945

    SWITZERLAND
    41-44-580-4320
    0800-001-428

    TAIWAN
    886-2-2795-7345
    00801-136-036

    THAILAND
    001-800-1206-66632

    TURKEY
    00-800-151-0810

    UNITED ARAB EMIRATES
    8000-35702387

    UNITED KINGDOM: BIRMINGHAM
    44-121-210-9182
    0808-238-9816

    UNITED KINGDOM: GLASGOW
    44-141-202-0812
    0808-238-9816

    UNITED KINGDOM: LEEDS
    44-113-301-0012
    0808-238-9816

    UNITED KINGDOM: LONDON
    44-20-7950-1256
    0808-238-9816

    UNITED KINGDOM: MANCHESTER
    44-161-601-0112
    0808-238-9816

    URUGUAY
    000-413-598-3837

    USA
    1-203-369-5026
    866-844-9416

    VENEZUELA
    0800-1-00-2884

    VIETNAM
    120-11746
     
    Last edited: Feb 26, 2018
  2. Wally

    Wally Senior Member

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    I have sent the following e-mail to the NIH with questions I have about the public notifications they have published about this telebriefing, See a copy of my e-mail below. I will update this thread when I receive a response to these questions.

    Questions re the NIH ME/CFS Listserv E-mail and the Public Announcement on the NIH’s Website for a ME/CFS Telebriefing on 3/7/2018

    Trans-NIH ME/CFS Working Group,

    I have several questions, which are set forth below, regarding the public information communicated via a 2/22/2018 NIH ME/CFS Listserv e-mail and information posted on 2/22/2018 on the NIH’s website page for its Trans-NIH ME/CFS Working Group event announcements.

    My questions relate to the statement in the e-mail communication, quoted below, but not appearing on the NIH’s website for ME/CFS event announcements.

    “Please remember to register at NIHME-CFSWorkingG@ninds.nih.gov if you plan to participate in the call.”

    When clicking on this link it opens an e-mail link to mail an e-mail to the NIH. However, no instructions or other identifier(s) are included with this link.

    Based on the instruction, quoted above, I have the following questions about the request for “registration” for this telebriefing.

    1) What information is being requested to be sent in this e-mail?
    2) When does this e-mail communication need to be sent/received by the NIH (i.e. deadline for sending the e-mail)?
    3) Why is registration for this event being requested by the NIH’s listserv mailing, but not on the NIH website event notificication page?
    4) Is registration required in order to have access to this telebriefing?

    In addition to the questions set above, I was wondering why the PDF or the information in the PDF, which was included in the Listserv E-mail, does not appear on the NIH’s website page for ME/CFS Event Announcements. The PDF provides the call-in phone numbers for callers who are located outside of the U.S.

    Thank you for your anticipated prompt response to my questions.
     
  3. Mary

    Mary Moderator

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    Southern California
    @Wally - I think I did this once before. In the e-mail I just gave my name and said I would be participating. I'm sure I referenced the name and date of the meeting in the subject line (ME/CFS Telebriefing March 7, 2018) I may have given my phone number, I can't remember. But it wasn't a big deal as I recall.
     
  4. Gemini

    Gemini Senior Member

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    East Coast USA

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