Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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ME/CFS fact sheets for May 12th?

Discussion in 'Action Alerts and Advocacy' started by ahimsa, May 11, 2015.

  1. ahimsa

    ahimsa Rarely on PR now

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    I'm hoping to feel up to going out tomorrow for a few errands. I'm going to be wearing my blue ribbon for May 12th. If someone asks me about my ribbon I'd like to have a one sentence answer ready and then hand them a fact sheet. This should reduce brain fog issues as well as preserve my energy (talking takes up time/energy).

    Any suggestions on a good ME/CFS handout?

    By the way, I hope to avoid any heated arguments in this thread (e.g., name issues, diagnostic criteria, problems with HHS and IOM, etc.) I know that people have different ideas about these issues!

    What I'm hoping is in this thread we can just post links to handout suggestions. Perhaps we can post any criticism of these fact sheets in a different thread save this thread for suggestions only? :) Thanks in advance! :)

    At any rate, here are two possibilities that I found:

    http://iom.edu/~/media/Files/Report Files/2015/MECFS/MECFS_KeyFacts.pdf

    http://solvecfs.org/wp-content/uploads/2013/06/SMCI_MECFS_FactSheet.pdf

    Any others?
     
    Last edited: May 11, 2015

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