Invisible Illness Awareness Week 2016: Our Voices Need to Be Heard
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Me/cfs awareness

Discussion in 'Action Alerts and Advocacy' started by priscilla, Feb 16, 2011.

  1. priscilla


    Raising and maintaining awareness in all sectors of the community about the needs of people with ME/CFS, and reaching out to enlist support for the ME/CFS cause, is more urgent now than ever before.

    In an effort to encourage actions which will result in better health outcomes for people with ME/CFS, please help to email or copy and distribute this leaflet, as one never knows who might read it and be able to make a difference and advance the cause of ME/CFS. A PDF link is provided below.

    What if you, or someone close to you, fell ill with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and:

    * you can't get promptly diagnosed?
    * you can't find a ME/CFS doctor or specialist?
    * you can't receive medical treatments based on latest studies and research?

    Teenagers, and people of all ages, may be bedridden or incapacitated for months, or years, impacting their relationships, education, employment, retirement, independence and quality of life.

    Help stop the suffering. Talk to medical specialists, politicians, and scientists, about treatments and funding for research, clinical trials, and the establishment of specialist ME/CFS clinics.

    Some of the latest research and developments can be accessed at:

    Search for the pioneering and latest work of Prof Kenny De Meirleir.

    For clinical studies and a treatment option for a subset of patients, go to:

    Print ME/CFS Awareness (PDF, 14Kb)
  2. alex3619

    alex3619 Senior Member

    Logan, Queensland, Australia
    Hi everyone, this leaflet is already being distributed in Australia, although I am not aware how widely this has been done so far.

    Alex Young

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