Liver failure

[tizmo]

Has anyone heard of someone needing a liver transplant due to liver failure because of mthfr genes?
I have Lyme and Before realizing I had gene mutations I was on detox drops which put me in the hospital. My liver has been severely inflamed and swollen now for the past 6 months and is declining. Enzymes were very high but went back down. Except I'm so miserable with racing heart and fluid retention and can no longer take any supplements so on Thursday I had to get a Liver Biopsy. The pain was so severe which is not normal. I'm still in excruciating pain and yellowing. I will have results tomorrow. I think the detox drops kept pulling toxins and my liver couldn't get rid of them so now it's really congested. I'm afraid I will need a new liver or I will die. Has this sort of thing happened to anyone else? I'm screwed. Even if I get a new liver then what? Will it just clog with toxins?

My genetic mutations:

ACAT1-02 +\-
CBS A360A +\+
CBS C699T +\-
COMT V158M +\-
COMT H62H +\-
NOS rs1800783 +\+
NOS rs1800779 +\+
NOS1 rs3782206 +\-
NOS3 G10T +\+
NOS3 T786C +\+
MTRR A66G +\-
MTRR 11 A664A +\-
MTHFR 03 P39P +\-
MTHFR A1298C +\-
MTHFR A1572G +\-
MAO A R297R +\-
VDR Taq +\-

 

[Sushi]

tizmo

So sorry that this has happened. If you can tell us what the detox drops contained and what toxins they were pulling, some here might have some ideas. There are some here who are good with interpreting genetics.

Were the drops specifically for lyme?

Very best wishes,
Sushi

 

[tizmo]

The drops were called UNDA Numbers 39, 14, 243 and a few others. They are suppose to detox the body intracellularly and safely. I have heard of no one else reacting like this. One homeopath told me I must have been to weak and now I need to build my body back up but how could that cause liver failure? I had phone consults with methylation doctors Shawn bean, nancy Mullan and ave had contact with Amy Yasko. Next step is they want me to take the urine and fecal metals test but I can't take any supplements at all so don't want to do the test and flush 380 down the toilet if I'm not excreting anything and it doesn't show anything.

 

[Sushi]

And what do the liver specialists suggest? And the doctor who prescribed the drops?

Has anyone suggested xifaxan?

The U.S. Food and Drug Administration today approved the use of Xifaxan for reduction in the risk of the recurrence of overt hepatic encephalopathy (HE) in patients with advanced liver disease. This is a new use for Xifaxan (rifaximin), a drug that has been approved for the treatment of traveler’s diarrhea.
Hepatic encephalopathy is a worsening of brain function that can occur in patients whose liver can no longer remove toxins from the blood. Increased levels of ammonia in the blood are thought to play a role in the development of HE, and Xifaxan works by reducing these levels.

 

[tizmo]

I haven't been to a liver specialist yet. Regular doctors don't believe in genetic mutations causing these issues and I have a feeling the liver specialists won't either. The biopsy results will be in tomorrow. I was on rifaximin not that long ago for small intestinal bacterial overgrowth and my liver did not like that either. I decided after 23 doctors and still declining, to see a Chinese medicine person tomorrow since they are they are all about the liver. I really hope the biopsy does not come back as autoimmunity but I would like some answers to.

 

[Jarod]

Hi there.

Your "detox" drops that you took, do they contain "chelators" by any chance?

I know if I take chelators I can have GI problems.(cramping etc). This can correct slowly over time by stopping them.

Not sure if a fecal or urine metals test would be sensitive enough to pick it up the kind of minor mineral situation I'm talking about.

 

[baccarat]

So called mutations don't cause liver damage, it's usually the consequence of an indiscriminate use of supplements, prescription drugs, pain killers, alcohool, fats etc. I had liver pain from using Flagyl and it took a few weeks to resolve.
The remedies you took may have been poisoning your liver rather than pulling toxins out.
You seemed to have been in the hands of ignorant practitioners, if no one at the first signs of liver problems ever suggested you use high doses of standardised milk thistle, widely used by german doctors. It's by far the most effective liver protecting remedy. In germany they also treat liver damage with beetroots and artichoke hearts.
You don't want to start any metal chelation provocation tests or any detox program, before you raise enzymes activity in liver cells with appropriate antioxidants, milk thistle being one, particularly if your glutathione is low.

 

[Victronix]

I haven't been to a liver specialist yet.

I would push to see a specialist (if you aren't already, following your test results). You've been to the hospital for your liver, have had an ongoing liver inflammation that is worsening, and have had a liver biopsy -- it seems crazy if you are not already seeing a specialist. I would demand it.

There are many reasons for liver failure and difficulties, for example, if you had hepatitis you can end up with problems decades later. Tylenol overdose is the leading cause of liver failure. It seems hard to imagine that a homeopathic supplement alone could lead to this, but regardless of the cause, you want to get the best treatment for yourself.

A friend of mine in her 50s died of stage-4 liver cancer after seeing a naturopath who misdiagnosed her for months as having a stomach flu.

For some things a traditional specialist is the best person to rely on.

 

[merylg]

tizmo can you get a referral to see a Hepatologist? (A Gastroenterologist with special expertise in Liver problems)

 

[Lisa Marie]

I think seeing a Chinese herbalist is a great idea. Following a chemical exposure I have had severe liver pain for years. No one seemed to take this seriously because my liver enzymes are unusually low (it seems they only worry about high enzyme levels, though I have read that low enzymes can also reflect liver disease). Chinese herbs are the only thing that helped until I started taking methylfolate and that has hugely helped my liver pain too. Taking milk thistle might be a good idea, but I have found that single herbs often have paradoxical effects on me--Chinese herbal formulas are more sophisticated and tailored to each individual.