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legs, body feel too weak to deal with hardness of floor, chair etc

Discussion in 'Skeleton, Skin, Muscles, Hair, Teeth, and Nails' started by Rlman, Dec 27, 2017.

  1. Rlman

    Rlman Senior Member

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    Toronto, Canada
    I'm 30 years old, and have been ill with severe cfs for the past 7 years. I basically feel too weak to stand and can walk only a few steps at a time before exceeding my energy limits. so mostly bedroom-bound (though can slide down stairs to go out to appointments or dropped off to cafe or to sit outside on porch). i eat with plastic cutlery bc arms are too weak to hold metal cutlery. i sit when i take a shower. if i exceed my energy limits, i become so weak that i have to lie in bed in fetal position (and only able to whisper) till energy recharges, which can take days.

    I have been experiencing some new symptoms:

    a)1.5 years ago the wooden chair i normally sit on in my bedroom started feeling too hard for my butt, so since then i have needed to sit on a pillow on that chair. before then, i have sat on that same chair for 15 years without it ever feeling too hard for me and never needing a pillow.

    b) 2.5 years ago i became too weak to click on the built-in laptop mouse that is below the keyboard as my arm muscles became too fatigued from clicking, so i now use a separate mouse that is plugged into the laptop and requires less force to click

    c) until last winter i was able to comfortably sit on the bench on my front porch while wearing my hiking shoes (including orthotic insoles) or snow boots (no orthotic insoles). in winter 2016-2017, for the first time, i was unable to sit in my hiking shoes on the bench as my legs felt too weak to do so, as if the resistance from the cement floor was too strong for my legs too handle. but if i put a blanket under the hiking shoes, it was fine, my legs could handle that. During that winter i could still wear the thicker snow boots comfortably on that porch/bench. now this winter, even when wearing the snow boots, my legs feel too weak to sit on the porch, as if the cement floor resistance is too hard on legs. so things have deteriorated. so now I have been sitting on a chair which is higher than the bench and which allows my legs too hang so they don't touch the cement floor of the porch. this way my legs don't get tired as they would if resting on the porch.

    - one day a few weeks ago i did try sitting on the bench with snow boots and my legs lost so much energy that even at home at my desk i needed to put a blanket under my feet as they felt too weak to rest on the floor, they just felt they couldn't deal with the resistance of the floor. i hope i am explaining this feeling correctly.

    - btw my arms also need padding underneath them if resting on a hard surface which is provided by my clothes layers/jackets. when i was healthy i never needed such padding.

    *Note 1: i have very flat feet and wear insoles. However my insoles were made before the feet became even flatter during this illness. so i should probably get new insoles. the insoles help a lot, without them i would be unable to walk as much as i can, my legs and body feel like they lose all their energy almost instantly if i try walking barefoot. also my thighs ache a lot if barefoot.

    *Note 2: my thighs often ache, including when i try being barefoot without insoles though also when wearing insoles like when legs feel too weak to deal with cement floor of porch in hiking boots point C. feel like the bone is aching rather than muscle though i could be wrong.

    my questions are:

    1) is the deterioration in points a,b,c due to muscle wasting/deconditioning? or is it due to loss of bone density? or due to flat feet and inappropriate insoles (though if so why would things get worse the past year if have flat feet for many years)? or is something else causing all of this?

    -i have lost muscle the past few years for sure. and have weight loss even though have normal appetite and eating the same foods and amounts as previous years, no digestion issues from what i can see.

    2) have other people with such long periods of inactivity experienced such symptoms?

    3) why would my arm suddenly be unable to click on the laptop mouse if i have been doing so daily until then, which i though would maintain my arm muscles?

    Thank you everyone for reading this long post! Best wishes to you all!
     
    Last edited: Dec 27, 2017
  2. pattismith

    pattismith Senior Member

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    @Rlman , I feel sorry to read you are so weak.

    Did you notice any weakness in your face muscles. For example did you notice if your eyelids are droping more than before. (This can be difficult to see, and sometimes it's easier if you can see on a photograph).
    Or did you notice if some of your wrinkles are less pronounced than before?
     
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  3. Rlman

    Rlman Senior Member

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    Toronto, Canada
    @pattismith I haven't noticed any weakness in my face muscles. my eyes do feel like they want to be closed (take energy to keep them open) but when they are open, i don't think the eyelids are drooping more than usual. my wrinkles are as evident as usual.
     
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  4. PatJ

    PatJ Forum Support Assistant

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    I've lost so much weight and can't seem to gain any past a certain point. I need cushions on hard chairs and thick socks because walking on a hard floor can uncomfortable. I spend much of my day bedbound on the softest memory foam bed I could find, but I still need to turn occasionally to relieve pressure on certain points of my body that have little padding.
     
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  5. Rlman

    Rlman Senior Member

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    Toronto, Canada
    Thanks so much for sharing @PatJ. So i guess muscle wasting could be contributing to these symptoms or at least a big factor.
     
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  6. Rlman

    Rlman Senior Member

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    @PatJ is your weight loss due to muscle loss? how long did you have CFS for before you started needing the cushions/softest mattress?
     
  7. PatJ

    PatJ Forum Support Assistant

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    I've got muscle and fat loss. I think my ideal weight is around 150 lbs. (based on being male, and 5' 10"/178cm tall) but at the moment I weigh 115 lbs. My weight fluctuates and according to the last couple of years 116 lbs. is my plateau. At my lowest I was 98 lbs.

    My weight gradually reduced as my health declined. I've had ME since 2003 so I don't remember much from the early days (time and brainfog conspiring against me). As a guess I would say it was between 2009-2012 that hard chairs were becoming uncomfortable.
     
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  8. Rlman

    Rlman Senior Member

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    Toronto, Canada
    thanks for the info @PatJ . Sorry to hear you have been ill for so long and are mostly bedridden :( I wish you a speedy and full recovery to vibrant health!
     
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