Yes this is helpful @Gingergrrl. Wow that must have been scary only being able to inhale till shoulders. So happy for you that you and your drs figured out what was going on and were able to treat it. Kudos to you for your perseverance, which is very inspiring!
I had significant/severe muscle weakness years back. I still have muscle weakness but nothing like I used to. I went to 6-7 different neurologists because of this and some other really weird symptoms...........nothing ever showed up as abnormal.
I've had the muscle weakness for 22 yrs since the onset of my EBV infection. It waxed and waned as to the severity........but it was always pretty bad. My muscle weakness has improved since medicalmedium protocol but not to the degree that some of the other symptoms have improved. Perhaps this may be the symptom that takes more time or is going to be the most stubborn..........I don't know. I'm just trying to be patient.