The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
Discuss the article on the Forums.

IOM report release date 10 Feb 2015

Discussion in 'Upcoming ME/CFS Events' started by Denise, Jan 9, 2015.

  1. Denise

    Denise Senior Member

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  2. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    I don't see a link or anything.
     
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  3. Denise

    Denise Senior Member

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    Thank you for looking. (I thought it was just me who didn't see it.)
     
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  4. Valentijn

    Valentijn Senior Member

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  5. Denise

    Denise Senior Member

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  6. Valentijn

    Valentijn Senior Member

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    The "Register For This Meeting" link on the right side of the initial link :p
     
  7. Denise

    Denise Senior Member

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    :rofl:
    I am certain the link was not there when I first looked.... ( I say, while questioning my sanity)
     
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  8. Valentijn

    Valentijn Senior Member

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    Here's the email I got:
     
  9. Valentijn

    Valentijn Senior Member

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    I guess we'll never know ... regarding either :lol:
     
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  10. Denise

    Denise Senior Member

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    So true!
     
  11. Bob

    Bob

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    These conference videos often only require registration if you intend to participate in some way, such as submitting a comment or question. Do we know if we need to register simply to watch?
     
  12. Gijs

    Gijs Senior Member

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    This report will be very bad for ME/CFS. I think CBT will be the therapy for this disease according this report.
     
  13. Valentijn

    Valentijn Senior Member

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    It seems to be the only way to get a link to the webcast.
     
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  14. Ember

    Ember Senior Member

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    The NIH Draft Report bodes ill for the IOM Report. The IOM Committee was commissioned to “develop evidence-based clinical diagnostic criteria for ME/CFS for use by clinicians, using a consensus-building methodology:”
    The IOM Committee may not have had the benefit of the final Evidence Report that the NIH Panel seems largely to have ignored.
     
  15. Denise

    Denise Senior Member

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    The IOM report was out of the IOM committee's hands by the time the final evidence review (for P2P) came out (Dec. 9).
    That said, I believe the IOM committee did an evidence review (presumably based around clinical things) for their report.
     
  16. Ember

    Ember Senior Member

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    If such an IOM Committee evidence review exists, then wouldn't the IOM Committee have provided it to the NIH Panel to assure, consistent with the Statement of Work, “that relevant information is shared and that key messages are coordinated?” The NIH Draft Report makes no mention of ME or of the lack of evidence that CBT/GET treatment findings can be generalized to ME patients.
     
    Last edited: Jan 11, 2015
  17. Denise

    Denise Senior Member

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    I don't know that it was a formal review like the AHRQ review.
    I do not know if IOM provided anything to P2P.
    I don't know if NIH provided anything to P2P for that matter.
    I believe that Maier said there would synergy between P2P and IOM but I don't think we have seen any evidence of it.
     
  18. Ember

    Ember Senior Member

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    The expectation of communication and coordination between these HHS efforts is found not only in Dr. Maier's comments, but also in Dr. Lee's charge to the IOM Committee and in the Statement of Work. The Statement of Work further specifies that relevant information is to be shared and key messages coordinated. We await the evidence of IOM compliance.

    If the IOM Committee did comply, we may well have seen the results reflected in the NIH Draft Report.
     
    Last edited: Jan 11, 2015
  19. Nielk

    Nielk

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    Interesting that the report will only be released at this event. How can one prepare questions if they have not seen the report?
     
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  20. Valentijn

    Valentijn Senior Member

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    I think they only expect spontaneous questions in immediate response to the presentation.
     

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