Nielk
Senior Member
- Messages
- 6,970
I was asked to start a new thread on the criteria issue to be used for the new NIH consortia. I initially posted here.
For those who were wondering which criteria will be used for these studies, Dr. Bateman replied on her FB page that the IOM diagnostic criteria will be used for research. She will be providing the patient samples (200) for the JAX clinic site.
This is maddening to me bc the IOM are overly broad criteria, to begin with. The gov't stated and the IOM committee stated the definition was to be used for clinical diagnostic purposes.
But, as warned by knowledgeable advocates, what the gov't states is not what they end up doing. They warned that once the IOM criteria are created it will be used for research as well.
For those who were wondering which criteria will be used for these studies, Dr. Bateman replied on her FB page that the IOM diagnostic criteria will be used for research. She will be providing the patient samples (200) for the JAX clinic site.
This is maddening to me bc the IOM are overly broad criteria, to begin with. The gov't stated and the IOM committee stated the definition was to be used for clinical diagnostic purposes.
But, as warned by knowledgeable advocates, what the gov't states is not what they end up doing. They warned that once the IOM criteria are created it will be used for research as well.