• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Forget rituximab! The DWP can cure you at the Job Centre!

Countrygirl

Senior Member
Messages
5,479
Location
UK
I wonder if we're getting our knickers in a twist over nothing. This is taken from the fundraising page:

http://www.merecoveryassociation.org/colinscharitypage

If he was fundraising for MECFRA in 2012, does this mean the website @Countrygirl found is obsolete? @Wildcat found information that showed the Chrysalis Effect had a knuckle rap by the ASA in November last year.

Pity the MECFRA site isn't dated. How annoying.

Yes, I was misled by Colin to start with. Then I listened to her video on the website and she refers to the ASA Nov 2014 judgement against her, which suggests that this website is new. It is however a nuisance that it is not dated.

The organisation is supported by this woman:
Dr Avril Crollick

I have googled her and found this. I cannot be certain though that this is her.

Dr Avril Crollick

Integrated Medical Centre
43 New Cavendish Street
London W1
Appointments telephone: 020 7224 5111

And

Cromwell Hospital
Cromwell Road
London SW5 0TU
United Kingdom

And

2 The Mall
East Sheen
London SW14 7EN
Appointments telephone: 020 8876 1815

Dr Crollick says she is going to call this new organisation the ME Association! (Does she mean just during her talk or to her patients?) The 'real' MEA clearly has competition.I think it is time Dr Shepherd checks this out.

According to Dr Crollick's presentation at the launch of the MEA mark II we are high achievers, and highly pressured with left brain dominance.................who need to be protected against 'snake oil salesmen'! Oh dear!

She does mention mitochondria and the work of Dr Myhill and also maintains that it is a 'real' (physical?) illness, ................but then continues to promote the Chrysalis programme.

................still listening to her presentation on the launch of the 'new' MEA...................endorsing the organisation for ME and Fibro patients.:bang-head::bang-head::bang-head:She at least sounds as if she means well, I guess, and is an open-minded doctor.
 

Kyla

ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ
Messages
721
Location
Canada
I wonder if we're getting our knickers in a twist over nothing. This is taken from the fundraising page:

http://www.merecoveryassociation.org/colinscharitypage

If he was fundraising for MECFRA in 2012, does this mean the website @Countrygirl found is obsolete? @Wildcat found information that showed the Chrysalis Effect had a knuckle rap by the ASA in November last year.

Pity the MECFRA site isn't dated. How annoying.
According to the Wayback machine (internet archives ) the current version of this site has been up since June 2013 - it could have been up for a few months longer than this before the site was crawled and indexed by WBM, but there is a "coming soon" page archived in March 2012, so it was definitely put up sometime between those dates.

https://web.archive.org/web/20130615000000*/http://www.merecoveryassociation.org
 

Countrygirl

Senior Member
Messages
5,479
Location
UK
Diana Powley: speaker at the launch of the new MEA :D........................recovered from ME and earns her pennies with this: http://www.hypnotherapy-directory.org.uk/member_11446.html

Combining Hypnosis and NLP works very well and may help you overcome and manage a wide range of issues, including:


  • Stop smoking (my program includes 1-year of free unlimited support)
  • Weight management
  • Eating disorders
  • Excessive drinking
  • Stress / Exam nerves
  • ME / Chronic Fatigue Syndrome !
  • Natural Childbirth
  • Pain control
  • Psychosexual issues
  • Relationship issues
  • Snoring / Insomnia
  • Panic attacks
  • Fears / Phobias / Anxiety
  • Headaches
  • Compulsive behaviours
  • IBS
  • Sports Performance
  • Skin Problems
  • Assertiveness & Confidence
And much more…


And here is Charlotte Watts, I believe: http://www.charlottewattshealth.com/
http://www.charlottewattshealth.com/nutrition/television-appearances/
 

Countrygirl

Senior Member
Messages
5,479
Location
UK
According to the Wayback machine (internet archives ) the current version of this site has been up since June 2013 - it could have been up for a few months longer than this before the site was crawled and indexed by WBM, but there is a "coming soon" page archived in March 2012, so it was definitely put up sometime between those dates.

https://web.archive.org/web/20130615000000*/http://www.merecoveryassociation.org

How strange then that she refers to the ASA informing her that she was making unsubstantiated claims at the launch of her the latest organisation! Given Kyla's post, this therefore suggests she has been ordered to remove her false claims more than once.
 

Scarecrow

Revolting Peasant
Messages
1,904
Location
Scotland
From Companies House:

http://wck2.companieshouse.gov.uk//compdetails
THE M.E, CFS AND FIBROMYALGIA RECOVERY ASSOCIATION C.I.C.
2 THE WALK
TANDRIDGE
OXTED
SURREY
RH8 9NY
Company No. 07553337

Date of Incorporation: 07/03/2011
Prior to 27/04/2012, the company was known as THE M.E AND FIBROMYALGIA RECOVERY ASSOCIATION LIMITED


A C.I.C. is a Community Interest Company - more info here: https://www.gov.uk/government/organisations/office-of-the-regulator-of-community-interest-companies

I'm pretty sure that the CEFRA website isn't compliant. AFAIK, it should be displaying the company registration number and the registered office address on the footer of the website.
 

Countrygirl

Senior Member
Messages
5,479
Location
UK
I won't provide a link yet as I am not certain of the accuracy of the information, but I have just read claims that the organisation has become insolvent this year after taking between £1000 - £5000 from each of 100 people who purchased their training programmes. Good job, if true! It sounds as if the would-be scammers of patients have been the main casualties of this attempt to fleece sick people of their cash.
 

ukxmrv

Senior Member
Messages
4,413
Location
London
There was a claim by someone who said that they were owed money on either their webpage or facebook page.

That person said that they had done the internet work for them to create the page and not been paid. I saw it at the time but my memory is bad on which one it was.

They essentially took over the page with this claim.

p.s. I don't know if this is the original page or shows the same information from then

https://www.facebook.com/TheMeCfsAndFibromyalgiaRecoveryAssociation/info?tab=page_info
 
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TiredSam

The wise nematode hibernates
Messages
2,677
Location
Germany
I won't provide a link yet as I am not certain of the accuracy of the information, but I have just read claims that the organisation has become insolvent this year after taking between £1000 - £5000 from each of 100 people who purchased their training programmes. Good job, if true! It sounds as if the would-be scammers of patients have been the main casualties of this attempt to fleece sick people of their cash.

Most reassuring to hear that they really are a non-profit organisation.
 

Scarecrow

Revolting Peasant
Messages
1,904
Location
Scotland
start smiling is back . . . wish I could remember what it was like before . . . did it mention 'cfs/me'? . . . i can't remember - doesn't seem to now.

https://startsmilingagain.com/
Beverly's disappeared.
So has M.E.
And his mobile number.

It's almost as if somebody has been reading this forum. At least they can take feedback. Can't say fairer than that.
 

TiredSam

The wise nematode hibernates
Messages
2,677
Location
Germany
Beverly's disappeared.
So has M.E.
And his mobile number.

It's almost as if somebody has been reading this forum. At least they can take feedback. Can't say fairer than that.

If you scroll down on the home page, Beverly's video is still there, she's the third satisfied customer.

The website seems to be deliberately vague now, so that he can still offer whatever it is he offers without being held to account for anything. He can help with stress, anxiety, and perhaps depression. So the DWP make sure that ME patients are classified as suffering from stress, anxiety and perhaps depression. Everyone can start smiling again.
 

Scarecrow

Revolting Peasant
Messages
1,904
Location
Scotland
If you scroll down on the home page, Beverly's video is still there, she's the third satisfied customer.
So she is - a happy client rather than a success story.
He can help with stress, anxiety, and perhaps depression. So the DWP make sure that ME patients are classified as suffering from stress, anxiety and perhaps depression. Everyone can start smiling again.
I don't think so. If someone has a medical diagnosis of ME/CFS, even the DWP couldn't put you on a stress and anxiety course. If someone has stress, anxiety and ME/CFS, possibly, provided their M.E. doesn't make them medically unfit to work.
 
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Chrisb

Senior Member
Messages
1,051
We should just be grateful that they may be real people whose stories are told. I make no comment as to the veracity of the stories. I wonder where the DWP under IDS learned the trick of creating characters with a view to telling their positive stories. As in yesterday's news. You couldn't make it up...... but they could.
 

TiredSam

The wise nematode hibernates
Messages
2,677
Location
Germany
So she is - a happy client rather than a success story.

I don't think so. If someone has a medical diagnosis of ME/CFS, even the DWP couldn't put you on a stress and anxiety course. If someone has stress, anxiety and ME/CFS, possibly, provided their M.E. doesn't make them medically unfit to work.

It's what happens in Germany. You can have a medical diagnosis of CFS, but if you then are unable to work and want to claim benefits you have to be seen by a different doctor (from your health insurance company or DWP equivalent), who will say that your CFS diagnosis means that you have depression (because that's what it says in their incorrect guidelines), so you have to accept rehab for depression before they give you any money. Rehab for depression means GET. You can fight it and if you're lucky and fight it through court to the second instance they might have to reconsider. A lot of people give up before then and say "ok, called me depressed if you want" because it's the only way, or the easiest way considering your health, of getting the money.

Unbelievable and it shouldn't happen, but it does, it's the most common story that people at my local self-help group tell. It's all described very well here (in German I'm afraid):

http://www.cfs-aktuell.de/august10_4.htm
 

alkt

Senior Member
Messages
339
Location
uk
just more parasites trying to make money of the sick. it must of failed because the advert says the course was in 2011. surprised if they weren't taken to court.