Forget rituximab! The DWP can cure you at the Job Centre!

[Scarecrow]

Setting up a "social enterprise, not for profit organisation" is a tax dodge.

Technically, that's a libellous comment. What is Phoenix Rising?

I'm not defending these Recovery jokers by the way. I just think you should choose your words carefully,

 

[Chrisb]

I presume that Charles will be on top of this. Can someone who knows how to do such things link him in just to make sure. This needs to be taken up through Peter Bottomley and the Countess of Mar to the relevant departments.

 

[Sean]

Maybe I'm being too harsh

No, no, you are not.

 

[TiredSam]

Technically, that's a libellous comment. What is Phoenix Rising.

I'm not defending these Recovery jokers by the way. I just think you should choose your words carefully,

I'm a qualified solicitor in two jurisdictions (UK and Germany).

I'm not worried.

 

[Scarecrow]

Saying "Have the right mindset", or "believe that you can get well", otherwise the program won't work, is just another way of saying "you are never allowed to question or criticise". She, like many other psychoquackers, has set up her program/method so that she gets to be 100% right all the time and immunity from criticism is built into the framework.

Is that something that someone who was genuinely interested in helping would do, deluded or otherwise? Smacks more of egomania to me. Even if she's deluded, she should be banned from taking money from the sick in return for a useless program that they are not allowed to have an opinion on or it won't work.

When it comes right down to it, the problem with this lot is that they make claims they haven't substantiated.

If Elaine Wilkins wants to put her holistic approach to the test, she could run a trial on a carefully selected cohort, report on her methods and let us see the results.

Until she does that, some of the statements on that website should be removed............... immediately.

 

[Scarecrow]

I'm a qualified solicitor in two jurisdictions (UK and Germany).

I'm not worried.

Well, in that case I'm surprised at your choice of words. I didn't use the word 'libellous' as a warning to you. It just doesn't help us to make comments like that. Perhaps you should have said "...can, in some instances, be used as a tax dodge". To state that setting up a not for profit association is a tax dodge is simply ridiculous.

 

[Raines]

so whats the best way to explain to well meaning people why this is nonsense?
I ask because I kow its nonsense but find with my brain I cant expalin it well to others, especially those with little or no understanding of ME.

 

[TiredSam]

Well, in that case I'm surprised at your choice of words. I didn't use the word 'libellous' as a warning to you. It just doesn't help us to make comments like that. Perhaps you should have said "...can, in some instances, be used as a tax dodge". To state that setting up a not for profit association is a tax dodge is simply ridiculous.

I would like to thank my learned friend and advise, without prejudice, that I have amended the post in question accordingly.

 

[Scarecrow]

so whats the best way to explain to well meaning people why this is nonsense?
I ask because I kow its nonsense but find with my brain I cant expalin it well to others, especially those with little or no understanding of ME.

@charles shepherd Is the ME Association aware of this 'M.E., CFS and Fibromyalgia Association'? As @Countrgirl mentioned above, they were founded by the director of the Chrysalis Effect.

They are making claims about recovery that they haven't demonstrated. They look to have been set up to protect practitioners rather than to help patients.

Edited: I meant to quote Chrisb above, not Raines.

I presume that Charles will be on top of this. Can someone who knows how to do such things link him in just to make sure. This needs to be taken up through Peter Bottomley and the Countess of Mar to the relevant departments.

 

[Raines]

They are making claims about recovery that they haven't demonstrated. They look to have been set up to protect practitioners rather than to help patients.

short simple and to the point, thank you scarecrow!

 

[Scarecrow]

I would like to thank my learned friend and advise, without prejudice, that I have amended the post in question accordingly.

Thank you, I think.

Now we just need to get MECFRA to mend their ways, or preferably, disappear.

 

[Scarecrow]

I wonder if we're getting our knickers in a twist over nothing. This is taken from the fundraising page:

http://www.merecoveryassociation.org/colinscharitypage

Colin ran the Leeds half marathon in May 2012 in 1 hour 44 minutes and raised over £700 in support of the M.E Recovery Association. Colin was so excited that he has decided to run the Chester marathon in October to raise more funds. He is now running this years Leeds Half marathon to try to achieve is personal best and raise more funds for The Association. Please show Colin your support and give generously so that we can help to support recoverers and carers of this debilitating condition worldwide.

If he was fundraising for MECFRA in 2012, does this mean the website @Countrygirl found is obsolete? @Wildcat found information that showed the Chrysalis Effect had a knuckle rap by the ASA in November last year.

Pity the MECFRA site isn't dated. How annoying.

 

[Scarecrow]

Elaine Wilkins has recently won an award from the APCTC (Association of Professional Coaches, Trainers & Consultants). The Chrysalis Effect programme is definitely still active.

http://apctc.com/expert-spotlight-elaine-wilkins/

 

[Valentijn]

It's only a scam if it's intentional..........if you're deluded, I don't know what it is.

A mental illness which is coincidentally highly profitable?

 

[alex3619]

She, like many other psychoquackers, has set up her program/method so that she gets to be 100% right all the time and immunity from criticism is built into the framework.

This is the same principle that led Sir Karl Popper to claim psychoanalysis was nonscience.

 

[Chrisb]

A comment on the Amazon site which is selling her book, claims she recovered from her severe ME by taking a course of thyroid medication. According to her book, she regained her health by finding her 'Authentic Self'. Personally, I never lost mine in the first place.

Am I missing something? If she was brought back to health by a course of thyroid medication she must have been misdiagnosed. Surely hypothyroidism should be excluded before diagnosis of ME. It must be presumed that she has been made aware of this. Any continuing claims that she recovered from ME rather than a thyroid condition might amount to fraudulent misrepresentation.

I know that thyroid medication to reduce slightly elevated TSH levels did nothing for me other than bring on a profound feeling of mortality as my heart took grave exception.

 

[Wildcat]

.
Elaine Wilkins uses the phrase 'Chronic Exhaustive Illnesses'. She targets ME sufferers, and complementary and alternative practitioners, claims recovery from ME, but also conflates ME with fatigue.

I strongly recommend reading this advertisement to recruit alternative practitioners ..... for insight into Elaine Wilkin's marketing tactics for the Chrysalis Effect (also called 'get your life back fromme').

http://www.getyourlifebackfromme.com/practitioners/guide

.

 

[mermaid]

Listening to her video, she became the patient of Dr Peatfield who specialises in thyroid problems. He promised her she would get better.....................by treating her thyroid problems(?) Many, of course, with this crippling condition do receive a diagnosis of ME or CFS before they are correctly treated, although not always successfully, of course. It is NOT the same as ME, although their advocates often aggressively claim it is.

I had treatment briefly from Dr Barry Durrant-Peatfield (no longer registered to prescribe incidentally) - 2 phone appointments after submitting my details. I also have his book Your Thyroid and How to Keep it Healthy which has a chapter called Chronic Fatigue and Thyroid Factor.

Basically in this chapter he explains that Chronic Fatigue Syndrome is an illness of thyroid dysfunction and of deficiencies which would include adrenal deficiency.

Unfortunately in my case I already had hypothyroidism diagnosed before being also diagnosed with CFS/ME. I have done all the things suggested in his book, including using T3 in addition to T4 as it seemed likely that I was not converting well, and supporting my adrenals. In spite of this I have not made much progress with my ME issues,(over 10 years) and in fact feel that in some ways I have got worse. My immune problems continue and I tend to go downhill with every infection and virus that comes my way. Changing to T3 did help me to lose weight but didn't improve my ME symptoms overall, though I suspect that if I was still on T4 only I would be a LOT worse by now.

 

[Countrygirl]

Am I missing something? If she was brought back to health by a course of thyroid medication she must have been misdiagnosed. Surely hypothyroidism should be excluded before diagnosis of ME. It must be presumed that she has been made aware of this. Any continuing claims that she recovered from ME rather than a thyroid condition might amount to fraudulent misrepresentation.

I know that thyroid medication to reduce slightly elevated TSH levels did nothing for me other than bring on a profound feeling of mortality as my heart took grave exception.

This information was from a review of her book made by someone whom I assume knew her. We don't know how accurate it really is.

 

[Sean]

An opportunity to become part of a collective voice to challenge the marketing restrictions that affect you business and stop sufferers from believing recovery is possible.

I speak only for myself:

You are a utter moron, lady.

Go away. Go a very, very long way away, and stay there. For the good of humanity.

And that is the polite version.