Our Newly Ill Face Their First Holiday Season with ME/CFS
Don't look now! The holiday season is on its way. I've lived through decades of them with ME/CFS. So have many of you in our chronically ill community. That's beyond sad for all of us. But at least we have some idea what we're contending with, and have learned our ways of handling...
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For those of us in the UK

Discussion in 'Action Alerts and Advocacy' started by Scavo86, Nov 30, 2009.

  1. Scavo86

    Scavo86 Senior Member

  2. liverock

    liverock Senior Member

    Talking of Parliament that reminds me...............I received an email from 10 Downing St today.

    A month ago I signed a petition on the No 10 website calling on the government not to let the Big Pharma regulating body CODEX, start attempting to make the UK government prohibit for sale a lot of supplements and herbs used by patients for illnesses such as CFS.

    Back has come the reply which basically states 'We no longer have the power to do this, supplements in the UK are now regulated by the European Union'.

    People cannot get treatment from the mainstream health service for CFS and they could, in the not too distant future, find the supplements and herbs they are using to help themselves withdrawn at the whim of the pharmaceutical industry.

    You have been warned, Big Brother has arrived.

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