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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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My initial testing cost about 3,000 euros, though that can vary based on symptoms, what tests you want, and what tests you can afford. So you can talk to the doctor about it during the first appointment. Basically the doctor makes up the order forms, then a nurse goes over it with you later and you can cross off what you don't want.Anyone here know more or less how much would it cost for the whole treatment with Dr. De Meirleir?
Tests, stay, consults, medications etc.
Thx, they said he does treat fibromyalgia.
For those who were treated with him, how was it? do you have to stay in belgium for a long time or can you go there, and then proceed from home?
I'm from Brazil it would be too expensive to stay there a long time.
Yes, I have been seeing him for several years and he has helped me a lot. There are no guarantees though sadly.@Sushi How did it go for you? Was he able to help you?
i definitely would say he is the person to see. in my experience, it has not been that hard to find a local doctor to follow his protocols, because so many doctors are frustrated at not being able to help their CFS/FM patients, that many are gladly willing to try things (but certainly not all). I have found it easier in general to be treated by general practitioners than specialists and preferably a younger doctor. If you prefer specialist, I would go to an infectious disease one and not a neurologist or rheumatologist.Well I think in medicine there are never guarantees actually...
But it's nice to hear he's helping you. I've read amazing feedbacks about him but also read that he can get quite unpleasant some times.
It looks like in a range of no guarantees, he still the closest there is to something like that heheh.
hi Folk. yes, for lyme.IV antibiotics as for those with lyme right? Or there's another use for it also?
Why do you find it harder to get it in your place? No doctors to prescribe it?
hi Folk. no, it is not possible in Canada...I have looked into every avenue, believe me. The only option is for me to travel to British Columbia - naturopaths are allowed to prescribe antibiotics there - but they would charge me HUGE amounts of money more than KDM, and I would still have to pay for accommodation and travel. Also, they are currently not allowed to prescribe IV Azithromycin, which is what I was prescribed.Well in Brazil they don't even know what Lyme is. At least not chronic lyme.
But can't you manage to tell any story or get it behind curtains in any way?
You know, to live outside the law you must be honest.
hi folk. yes, there are some who cannot do IV and they do orals. I think some period of IV is better, that's all. Its never all IV...the majority of the treatment is oral.And doesn't he leaves you with some alternative to it? Or it gotta be IV antibiotics?
How are you doing on it btw? How long should it take?
I don't think it's probable I have lyme.. but who knows...