The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Cold hands and Red Feet

Discussion in 'Autonomic, Cardiovascular, and Respiratory' started by David_101, Oct 5, 2018.

  1. David_101


    My feet seem to be getting progressively colder and have recently been turning red. Read Raynaud's online but not trying to scare myself. Also not sure how this is even related to Dysautonomia which is what some of my doctors suspect.

    Other new symptoms:

    Some muscle weakness in thighs like I worked out. I did do a bit of walking around but legs don't seem to recover.

    My heart seems to have irregular beats. Seems to beat faster and harder when I stand. Gets into irregular beats like trigeminy (was told it's benign but don't feel that way).

    Also shortness of breath.

    Also seem to have lightheadedness and/or stars in eye when I deep breath.

    Any idea what's going on and have others had this?

    So far I have done some further testing from Brigham and Women's. Still awaiting more results but here's what I got:

    - Myocytosis present
    - ANA Nucleor pattern 1:160 and recently retested 1:40 Nucleor
    - Anti Cardiolipin 27 (medium positive. First time doing it
    - Anti ccp 8.1 (slightly above)
    - IGD 15.8 (slightly above upper limit)

    Let me know. Waiting for approval to be admitted to hospital right now.
    Last edited: Oct 5, 2018
    Wolfcub and ScottTriGuy like this.
  2. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

    Toronto, Canada
    Good, somethings not right.
    Wolfcub likes this.
  3. Wolfcub

    Wolfcub Senior Member

    SW UK
    I am wishing you well @David_101 I hope the hospital will sort this out.
    Mel9 likes this.

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