Chronic Fatigue Syndrome: Right Name, Real Treatments

[Roseblossom]

For some reason, the Twilight Zone theme music is playing in my head.

"Imagine, if you will, a US website posting an article by a British psychiatrist in the rheumatology section with physiotherapy recommendations to treat a neurological disease."

Oh ha! thank you so much, halcyon - now the Twilight Zone theme music is playing in my head too

 

[thegodofpleasure]

I just came across this upcoming talk by Prof James Coyne, highlighting common problems in psychology research : https://sdhi.wordpress.com/2015/02/...in-psychology-false-an-activists-perspective/

The slides from an earlier presentation on the same subject, given by Prof Coyne when he was in Australia last year can be found here: http://www.slideshare.net/jamesccoyne/canberra-most-false-activist

There is also a Youtube video featuring Prof.Coyle talking about the problems in research methodology that he studies

Interestingly, pretty much every criticism he highlights in such research could be applied to the PACE trial and I would therefore dearly like Prof Coyne to get his teeth into White et al.

 

[barbc56]

@thegodofpleasure

While I haven't had a chance to look at everything, this looks like is a valuable source of information. I'm a big fan of James Coyne. I'm wondering if your post also deserves a thread of it's own as it's information has implications that reach beyond this thread.

Thanks.
Barb

 

[thegodofpleasure]

@thegodofpleasure

While I haven't had a chance to look at everything, this looks like is a valuable source of information. I'm a big fan of James Coyne. I'm wondering if your post also deserves a thread of it's own as it's information has implications that reach beyond this thread.

Thanks.
Barb

I did give thought to posting it as a separate thread, but concluded that it doesn't, of itself, represent a particularly extensive topic for us atm.
However, I'm happy if Mods think differently and choose to move it.

I can recommend following Prof. Coyne - @CoyneoftheRealm - on Twitter, where he is currently engaged in an ongoing (heated?) dialogue with Editors at Elsevier Publishing related to censorship and the gagging of alternative viewpoints.

 

[Denise]

I can't read anymore of this rubbish, sorry Denise this wasn't directed at you, that quote was the last straw for me

I am glad your ire wasn't directed at me --- I understand that the quote is disturbing.

 

[biophile]

Currently, yes.

But their position is on the cliff-edge and you can see the inevitability of the sea claiming it.

Till then, we need to challenge their propaganda.

Edit: from the front, the house probably looks deceivingly lovely. That's where I feel we are.

An update on said house analogy (may still look OK from the front but with 'heated debate' behind the scenes!).

 

[biophile]

Interestingly, pretty much every criticism he highlights in such research could be applied to the PACE trial and I would therefore dearly like Prof Coyne to get his teeth into White et al.

Yeah, about that, probably won't happen given this:

Coyne: "I know Simon Wessely and know that he has had death threats over his interpretation of a trial of CBT chronic fatigue. I do not think he wants to step back into the fray late judgments about a trial of CBT for unmedicated schizophrenics."

https://jcoynester.wordpress.com/2014/02/12/my-response-to-the-hacking-of-this-blog-site/

 

[August59]

"moderately effective"

Ha! That's a knee slapper!

 

[thegodofpleasure]

Yeah, about that, probably won't happen given this:

Coyne: "I know Simon Wessely and know that he has had death threats over his interpretation of a trial of CBT chronic fatigue. I do not think he wants to step back into the fray late judgments about a trial of CBT for unmedicated schizophrenics."

https://jcoynester.wordpress.com/2014/02/12/my-response-to-the-hacking-of-this-blog-site/

Point taken. But it really depends how much of the detail pertaining to that story he has heard. I tend to think that he has only heard Wessely's self-serving anecdote, that is so popular in Psyche circles these days.
On the face of it Wessely is merely an acquaintance of Prof Coyne - probably via many Psyche conferences they've both attended.
I would like to think that he wouldn't let that get in the way of his current crusade against bad science in psychological research. It certainly hasn't prevented him from embarking on his current Uk speaking engagements on that subject.

 

[snowathlete]

An update on said house analogy (may still look OK from the front but with 'heated debate' behind the scenes!).

Ha, that's brilliant. That progressed quicker than I anticipated.

 

[Roy S]

There are now 125 comments for --
Chronic Fatigue Syndrome: Right Name, Real Treatments
Peter D. White, MD
March 12, 2015
http://www.medscape.com/viewarticle/841289
　
and 433 comments for --
Chronic Fatigue Syndrome: Wrong Name, Real Illness
Miriam E. Tucker
January 08, 2015
　
http://www.medscape.com/viewarticle/837577

 

[thegodofpleasure]

I would like to think that he wouldn't let that get in the way of his current crusade against bad science in psychological research. It certainly hasn't prevented him from embarking on his current Uk speaking engagements on that subject.

Given the following tweet (posted this a.m.) it seems that Prof Coyne does intend to get involved.

James C.Coyne ‏@CoyneoftheRealm 4h4 hours ago
At some point, I just must step into the CFS/ME/SEID controversy and will be well versed and skeptical when I do.

Perhaps his recent appointment as "Carnegie Centenary Professor of Psychology" at Stirling University will give him a good platform to do so.

 

[Jonathan Edwards]

Given the following tweet (posted this a.m.) it seems that Prof Coyne does intend to get involved.



Perhaps his recent appointment as "Carnegie Centenary Professor of Psychology" at Stirling University will give him a good platform to do so.

Intriguing - sceptical of what? Sceptical of ME? Sceptical of SEID? Sceptical of psychotherapy? I look forward to finding out.

Can anyone tell me how I copy both a previous post and the quote inside it?

 

[Sasha]

Can anyone tell me how I copy both a previous post and the quote inside it?

I've never found a way, other than brute force (that is, quoting the post and then manually inserting the missing quotation from it.

@wdb, is there an easier way?

 

[Bob]

Intriguing - sceptical of what? Sceptical of ME? Sceptical of SEID? Sceptical of psychotherapy? I look forward to finding out.

As far as I understand, he is sympathetic to ME/CFS patients. He seems to specialise in critiquing poorly designed psychological trials that are subsequently used to promote flawed psychology (e.g. CBT for schizophrenia). (Or is that Keith Laws? I get the two muddled up, but they have a similar interests.) So he's an honest broker of psychology and psychological interventions. He's aware of the PACE trial and CBT research for ME/CFS, and my initial interpretation is that he would bring his scepticism to that. But I may be wrong about any of this - I'm not too familiar with his background.

 

[Bob]

Can anyone tell me how I copy both a previous post and the quote inside it?

As Sasha says, you have to use brute force: You have to manually copy the text from the second quote, and then paste it into a new set of quote marks within your first set of quote marks. It's a bit fiddly.

 

[worldbackwards]

Intriguing - sceptical of what? Sceptical of ME? Sceptical of SEID? Sceptical of psychotherapy? I look forward to finding out.

A quick Google suggests he's on the ball…

I'd upload a screen grab but I can't seem to figure out how to upload pictures. Tell me how, people?

Edit - Yes, I appear to be going blind!

 

[Bob]

I'd upload a screen grab but I can't seem to figure out how to upload pictures. Tell me how, people?

You can simply drag and drop an image file into the text box where you write your text.
Otherwise click on 'upload a file' (see bottom-right, next to 'post reply' and 'more options')

 

[Sasha]

A quick Google suggests he's on the ball…
https://twitter.com/coyneoftherealm/status/562578204666646528

I'd upload a screen grab but I can't seem to figure out how to upload pictures. Tell me how, people?

Wow! That screen is most certainly worth grabbing.

When you create a post, you'll see a button that says 'upload a file' next to the 'post reply' button. That's how you can upload your jpeg.

 

[Jonathan Edwards]

As far as I understand, he is sympathetic to ME/CFS patients. He seems to specialise in critiquing poorly designed psychological trials that are subsequently used to promote flawed psychology (e.g. CBT for schizophrenia). (Or is that Keith Laws? I get the two muddled up, but they have a similar interests.) So he's an honest broker of psychology and psychological interventions. He's aware of the PACE trial and CBT research for ME/CFS, and my initial interpretation is that he would bring his scepticism to that. But I may be wrong about any of this - I'm not too familiar with his background.

Sounds interesting.