Chronic Fatigue Syndrome: Right Name, Real Treatments

snowathlete

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UK
But still very influential as one can see from the services offered to patients in the UK and Dutch (for example).

Currently, yes. But their position is on the cliff-edge and you can see the enivitability of the sea claiming it. Till then, we need to challenge their propoganda.

Edit: from the front, the house probably looks deceivingly lovely. That's where I feel we are.
texas-house-cliff.jpg
 
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barbc56

Senior Member
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3,657
Currently, yes. But their position is on the cliff-edge and you can see the enivitability of the sea claiming it. Till then, we need to challenge their propoganda.

Edit: from the front, the house probably looks deceivingly lovely. That's where I feel we are.
texas-house-cliff.jpg

Hopefully this house isn't in an earthquake or mudslide zone like California. My stomach literally flip flopped when I saw this image but I'm not sure how much Peter White played into that.:D

Do you know where the house is located. I'll try a Google search image.

Barb

Oh my. Here's a follow up. I have been to the hill coubtry of Texas but certainly don't remember cliffs of this magnitude.

http://www.nydailynews.com/news/nat...ancial-emotional-hit-report-article-1.1828426

Barb
 
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worldbackwards

Senior Member
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2,051
For some reason, the Twilight Zone theme music is playing in my head.

"Imagine, if you will, a US website posting an article by a British psychiatrist in the rheumatology section with physiotherapy recommendations to treat a neurological disease." :ill:
The Twilight Zone said:
You're moving into a land of both shadow and substance...
Shadow, yes. Substance, not so much.
 

WillowJ

คภภเє ɠรค๓թєl
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4,940
Location
WA, USA
White also says:

The weight of research supports the separate existence of a CFS, particularly after certain infections.[1]
This appears to mean either "separate from SEID" or "separate from ME-itis", or possibly "existing as an entity of itself": he really wasn't clear.

The reference is to a Lloyd article about PVFS. Which is really not at all the same as Oxford-CFS.
http://www.medscape.com/medline/abstract/16950834
 

taniaaust1

Senior Member
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13,054
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Sth Australia
Imagine the poor disease they will go after when cfs/me is finally proven with biomarkers.
Maybe they could cure baldness with cbt/get??

Unfortunately they'll just hit the group out there who hasn't got ME and who haven't got post exertional fatigue and target the "chronic fatigue" group. I'm sure not everyone has the same illness with the same biomarker/s. Then they will use that group to justify why their psych studies showed success in us cause of that group being mixed with us.. it will never be to them that they did many bad studies but rather this other group will be their scapegoat out from looking bad.
 

SilverbladeTE

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Somewhere near Glasgow, Scotland
and one should also realize that not only are they protecting their position (CFS) but SEID is also a "gaming set up" which is also bad for us and should NOT be accepted (as it was a "shell game" and keeps alive the damned idea we're malingerers, FFS! Like calling M.S. "Gimpy Faking Bitch Syndrome", jeesh)
 

alex3619

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13,810
Location
Logan, Queensland, Australia
I'm really delighted to hear them say it because it tells me that they see the name change as damaging to them.
I don't think its the name change. I think its the insistence on PEM as a primary symptom, not to mention either dysautonomia or cognitive challenge.

Future studies will be difficult to pull off by them if they have to stick to a strict definition. Its also the case that psychiatric claims were rejected. The IOM panel did not take any of their claims or research seriously. It will now be much harder to claim that disbelief in their findings is all due to patients especially extreme activists.
 

aimossy

Senior Member
Messages
1,106
White also says:
"In the meantime, clinicians may be reassured that two treatments are moderately effective, safe, and cost-effective, and that patients can be given substantial hope of improvement—and sometimes recovery.[27]"

Oh yes a cognitive thought/theory which can be used as a 'therapy' or therapeutic tool wrapped up 'in a prescription type advertisement'!

Since when was therapy ever a prescriptive curative. They decide to wrap this all up in a package to enforce their own illness beliefs onto patients and somehow also think it is possible to measure therapy in the way they have! I don't think I will read much more in this area.

They are using CBT unethically by completely mismatching the purpose/use of this theory and therapeutic tool with how they are applying it. I used to be a therapist and it gets very hard watching them confuse and mess up and manipulate what CBT is and what it's for and what therapy is.

They are sullying 'CBT' and 'therapy' with sick manipulative motives that in my mind and training - don't even fit with all the original principles of CBT!

I can't read anymore of this rubbish, sorry Denise this wasn't directed at you, that quote was the last straw for me :)
 
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Cheshire

Senior Member
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1,129
They are sullying 'CBT' and 'therapy' with sick manipulative motives that in my mind and training - don't even fit with all the original principles of CBT!

That's really interesting. I'd be happy if you, with your therapist background, could explain us a little bit more, how they use CBT in a perverted manner. @Gingergrrl @Woolie and any other person with CBT or therapist skills...


Concerning the problem of subgrouping, I came across this discussion about autism http://sfari.org/sfari-community/co...the-merits-of-autism-as-a-diagnostic-category
 

aimossy

Senior Member
Messages
1,106
It would take a large effort to go through all my training notes and readings. I have 3 textbooks on CBT and other textbooks that contain information on CBT. I have not looked on the internet for information, but I know there are online CBT courses for patients. I'm sure people would be able to find information on the history, theory and practice of CBT and CBT therapy on the internet. Personally I don't have time to do that at the moment because of Microbediscovery tasks.

You have to immerse in it properly to get anywhere with formulating arguments well, based on principles and ethics with respect to what's going on with the issues. The foundations on which they have built their approach to me/cfs on are wobbly, and this could be pinned down to formulate good arguments against their work being valid. I think ethical boundaries have been crossed as well and this is victimising a group of patients and been abusive.

The sad thing here, is due to their approach, a valuable therapeutic tool which can help people cope better with any illness or general life stressors - when used appropriately in a decent therapeutic relationship - is being seen as negative. This is also in a population of people that really could benefit from any tool that helps decrease stress. How is that helping patients! It is perfectly rational to fear anything that could exacerbate any illness.

They are oversimplifying CBT and have filtered their own beleifs about the illness into it, and made it into a unique model for themselves with respect to one illness! It is the appliction of a theory that they have taken too far in my view.

I am also sure there are plenty of therapists and psychologists and psychiatrists for that matter that will be seeing this unethical application going on and will be unimpressed and even embarrassed by all this.
 
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Dolphin

Senior Member
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17,567
snowathlete said:
I'm really delighted to hear them say it because it tells me that they see the name change as damaging to them.
I don't think its the name change. I think its the insistence on PEM as a primary symptom, not to mention either dysautonomia or cognitive challenge.

Future studies will be difficult to pull off by them if they have to stick to a strict definition. Its also the case that psychiatric claims were rejected. The IOM panel did not take any of their claims or research seriously. It will now be much harder to claim that disbelief in their findings is all due to patients especially extreme activists.
The name Systemic Exertion Intolerance Disease ensures PEM as a primary symptom.
 
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I am also sure there are plenty of therapists and psychologists and psychiatrists for that matter that will be seeing this unethical application going on and will be unimpressed and even embarrassed by all this.

if that is the case they really should be speaking out - because the propagation of this fallacy is doing serious damage not only to patients but also psychiatry and as you say CBT...
 
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