CFS/overtraining

[Little running man]

No adrenal problems where picked up in my bloods. I don't know if that means they ruled it out?

They wouldn't test for them normally.

I had full blood counts done, iron,ferritin,glandular fever,hiv. Etc even at heomotology where they did full blood screens they didn't check for it.

I had to kick up quite a fuss to get him to book me a test (still waiting a date)

Dr was quite happy to dump me in CFS without any further tests....

But it's just a theory! However not everyone recovers from OTS so it's worth a thought?

 

[PandaDarling]

They wouldn't test for them normally.

I had full blood counts done, iron,ferritin,glandular fever,hiv. Etc even at heomotology where they did full blood screens they didn't check for it.

I had to kick up quite a fuss to get him to book me a test (still waiting a date)

Dr was quite happy to dump me in CFS without any further tests....

But it's just a theory! However not everyone recovers from OTS so it's worth a thought?

So can adrenal fatigue be visible in bloods? I know they checked my thyroid amongst others. I shall ask my gp to do a test

 

[Little running man]

All I want to do is cycle again! If I ever get better I will spend a year cycling - that is my dream and that dream keeps me going ...

That's a great thing to want to do. We all need a dream! I hope you get to do yours.

This year I ran 2045 miles ......which just happens to be enough miles to run to Napoli and back. So I'd love to spend a year doing that as I'd like to visit again. Mind you cycling it would be cool as well.

 

[PeeWee]

I don't know much about adrenal fatigue - I must read more about it - but it seems lots of doctors don't believe it exists: https://en.wikipedia.org/wiki/Adrenal_fatigue - that might be why your doctor didn't check for it.

 

[Little running man]

So can adrenal fatigue be visible in bloods? I know they checked my thyroid amongst others. I shall ask my gp to do a test

The one he's sending me for (somebody put a link on this thread) is to test cortisol response. What I read was its a blood test to check cortisol levels then the spike you with a injection before re testing your blood to see if the adrenal glands kick in sufficiently to change the cortisol reading. If not it suggests adrenal fatigue.

This would give all the same symptoms of CFS and I believe (I'm going to check in a mo) it's treatable.

This is what I'm pinning all my hopes on.

I just think it's too easy to lump everyone with CFS and not many people would push for further tests if a dr diagnosed CFS.

I know CFS is real. But with no tests it's to simple to say 'you've CFS' and with no treatment available they can wash their hands of us.

 

[Little running man]

I don't know much about adrenal fatigue - I must read more about it - but it seems lots of doctors don't believe it exists: https://en.wikipedia.org/wiki/Adrenal_fatigue - that might be why your doctor didn't check for it.

Sports Drs believe in it!!! My dr didn't seem to know much about OTS at all and without me bringing it up wouldn't have considered it. There's also a lot of Drs don't believe in CFS. But if you think of the small number of people that get to the latter stages of OTS that get correctly diagnosed must be minuscule! It's not the thing most Drs would consider. Also andersons (?) disease is linked.

 

[Little running man]

The one he's sending me for (somebody put a link on this thread) is to test cortisol response. What I read was its a blood test to check cortisol levels then the spike you with a injection before re testing your blood to see if the adrenal glands kick in sufficiently to change the cortisol reading. If not it suggests adrenal fatigue.

This would give all the same symptoms of CFS and I believe (I'm going to check in a mo) it's treatable.

This is what I'm pinning all my hopes on.

I just think it's too easy to lump everyone with CFS and not many people would push for further tests if a dr diagnosed CFS.

I know CFS is real. But with no tests it's to simple to say 'you've CFS' and with no treatment available they can wash their hands of us.

I also had my thyroid tested .....I asked for results and they said 'normal' but normal could be 3-20 (just a example) so a 4 would be normal but still very low and they wouldn't treat you for it. Yet a 4 could respond to drugs and cure it. Also different counties have different ranges of normal

Also thyroid has almost all the symptoms as well. So if you were a 4 and counted as normal they'd dismiss it and you'd end up labeld CFS by the dr.

I'm just saying that all fatigue isn't always necessarily CFS it's just that the Drs don't know what it is.

Though it's important to note I'm not saying anybody doesn't have CFS just that some might not. It's just a theory!

 

[MeSci]

Some scientists think that ME/CFS consists of several different diseases, and that they need to be teased apart or grouped into sub-groups.

Here are two threads that discuss this possibility:

http://forums.phoenixrising.me/inde...-for-radical-change-in-me-cfs-research.24763/

http://forums.phoenixrising.me/index.php?threads/do-mes-cause-cfs.31930/

 

[MeSci]

All I want to do is cycle again! If I ever get better I will spend a year cycling - that is my dream and that dream keeps me going ...

I would love to be able to cycle again - not competitively, but just to have that independence again - to be mobile other than just walking to the shops once a week, with rests before and after.

I initially kept cycling after becoming ill, trying to get fit, which was of course exactly the wrong thing to do, but without enough income to run a car any more I didn't have much choice.

I kept a bike in my shed for some time before I admitted to myself that I might as well give it away and stop kidding myself.

Then one day in recent years I had a sudden surge of energy after starting a new supplement and started dreaming about getting mobile again. But as we so often find, the surge didn't last. It was a lovely feeling while it did.

On the other hand, the fact that our bodies can suddenly start working properly - even if just for a few hours - means that it is not permanently broken. We just need to find the key/switch/fuel/whatever it is to get it functioning again. I had been ill for at least 15 years when I had my 'surge'.

 

[Little running man]

I'm thinking there's a link to the chronic diseases like rheaumatoid arthritis that brings on or incorporates CFS as well. My wife has RA and is fatigued all the time. Practically bed bound most days and uses a wheel chair (though she puts the fatigue down to pain/drugs) .........now what's the chances of me getting CFS as well? Pretty slim I'd think......which is why in my case I'm doubtful of the dr saying its CFS for me.

But what in trying to say is that with athletes who get CFS it could be totally misdiagnosed and not be CFS at all?

 

[Little running man]

I would love to be able to cycle again - not competitively, but just to have that independence again - to be mobile other than just walking to the shops once a week, with rests before and after.

I initially kept cycling after becoming ill, trying to get fit, which was of course exactly the wrong thing to do, but without enough income to run a car any more I didn't have much choice.

I kept a bike in my shed for some time before I admitted to myself that I might as well give it away and stop kidding myself.

Then one day in recent years I had a sudden surge of energy after starting a new supplement and started dreaming about getting mobile again. But as we so often find, the surge didn't last. It was a lovely feeling while it did.

On the other hand, the fact that our bodies can suddenly start working properly - even if just for a few hours - means that it is not permanently broken. We just need to find the key/switch/fuel/whatever it is to get it functioning again. I had been ill for at least 15 years when I had my 'surge'.

I really hope that something turns up to fix this.

At the moment I'm very lucky as I'm much better off than you guys. I can still function normally. Albe it with a bit of fatigue/ tiredness but not bad really.

I think that's why I'm banking on OTS/adrenal fatigue.....but only time will tell. But I have to check it out for my own peace of mind.

 

[MeSci]

The one he's sending me for (somebody put a link on this thread) is to test cortisol response. What I read was its a blood test to check cortisol levels then the spike you with a injection before re testing your blood to see if the adrenal glands kick in sufficiently to change the cortisol reading. If not it suggests adrenal fatigue.

It was on your other thread, but I'll post it here too:

http://forums.phoenixrising.me/inde...renal-axis-function-in-cfs.25602/#post-392250

 

[Little running man]

It was on your other thread, but I'll post it here too:

http://forums.phoenixrising.me/inde...renal-axis-function-in-cfs.25602/#post-392250

Thanks......as you can see I'm not very good with technology and I'm getting confused answering every comment! I didn't realise I had another thread, I thought it was all one

 

[Little running man]

I'm not liking the dismal results that this link suggests! I'm pinning all my hopes on this test!

 

[MeSci]

I'm not liking the dismal results that this link suggests! I'm pinning all my hopes on this test!

I don't think you should pin all your hopes on anything. You need to have a contingency plan to avoid serious disappointment!

 

[Little running man]

I don't think you should pin all your hopes on anything. You need to have a contingency plan to avoid serious disappointment!

I know you're right but I can't accept I won't run/cycle again. I know I may have to accept it eventually but I'm not ready to yet.

I just can't understand why the dr won't look down the sports route. I've asked to see a sports specialist dr. I'm not holding my breath but I'll keep asking.

Surely in my case (and many others) it's more likely to be sports related than CFS related?

I know you guys have done alot of research but for me and 3 of my friends all to possibly have this and be daubed CFS doesn't make sense statistically.

Or am I being to short sighted? There are similarities between all the people I've talked to on here....but most have a secondary problem as well,same as my wife Conic RA/severe fatigue.

 

[PandaDarling]

I know you're right but I can't accept I won't run/cycle again. I know I may have to accept it eventually but I'm not ready to yet.

I just can't understand why the dr won't look down the sports route. I've asked to see a sports specialist dr. I'm not holding my breath but I'll keep asking.

Surely in my case (and many others) it's more likely to be sports related than CFS related?

I know you guys have done alot of research but for me and 3 of my friends all to possibly have this and be daubed CFS doesn't make sense statistically.

Or am I being to short sighted? There are similarities between all the people I've talked to on here....but most have a secondary problem as well,same as my wife Conic RA/severe fatigue.

I went through this phase (re: running a marathon when I really should have not. AT ALL!)
It's so effin hard I know :'( You go through denial, anger, feeling low, useless etc.
It's taken me about a year to realise I needed to stop and now I am ok to just walk gently and do yoga once a week.
If you want to rant about it all then your very welcome to talk to me via a message or even skype.
I really empathise having been a very active sport loving person myself.
Panda x

 

[Little running man]

I went through this phase (re: running a marathon when I really should have not. AT ALL!)
It's so effin hard I know :'( You go through denial, anger, feeling low, useless etc.
It's taken me about a year to realise I needed to stop and now I am ok to just walk gently and do yoga once a week.
If you want to rant about it all then your very welcome to talk to me via a message or even skype.
I really empathise having been a very active sport loving person myself.
Panda x

Thanks panda, it's hard to rant/moan when you know you've been through worse than I am at the moment. Thanks for caring X

 

[Doublepush]

Hi running man,

I think your situation is very like mine. If I do not overdo it I am basically healthy. But id I try running get PEM for a few days with fatique, muscle weakness, brain fog, bad sleep etc. This has now lasted for 2,5 years.

For me it started after a trail running marathon. I should not have run it because I was a bit sick with flu and stress before it. After the marathon I had sore throat for a month and would get headache feeling sick if I tried exercising. Afew months earlier I run a regular marathon without provlems.

I had a similar CFS like period 10 years ago. Then it was not as bad and it lasted for 2 years. I did not do sports much after that for few years.

If only had I learned from the first experience. Also then had I been competing while having the flu. Now I was also had/have a stressful job and small kids waking me up sometimes. I also was training with high intensity in order to save time. My base was propably not good enough for the amount of high intensity training I did.

My advice: be very careful with training but do not stop it completely. For some strange reason I can do strength training, for instance a 5x5 program with long pauses. There are also otherd on this forum who van do strength traning but not aerobic training. I started Tai Chi which I like very much as it helps to relax. Swimming and being in the pool is also very good.

 

[Little running man]

Hi running man,

I think your situation is very like mine. If I do not overdo it I am basically healthy. But id I try running get PEM for a few days with fatique, muscle weakness, brain fog, bad sleep etc. This has now lasted for 2,5 years.

For me it started after a trail running marathon. I should not have run it because I was a bit sick with flu and stress before it. After the marathon I had sore throat for a month and would get headache feeling sick if I tried exercising. Afew months earlier I run a regular marathon without provlems.

I had a similar CFS like period 10 years ago. Then it was not as bad and it lasted for 2 years. I did not do sports much after that for few years.

If only had I learned from the first experience. Also then had I been competing while having the flu. Now I was also had/have a stressful job and small kids waking me up sometimes. I also was training with high intensity in order to save time. My base was propably not good enough for the amount of high intensity training I did.

My advice: be very careful with training but do not stop it completely. For some strange reason I can do strength training, for instance a 5x5 program with long pauses. There are also otherd on this forum who van do strength traning but not aerobic training. I started Tai Chi which I like very much as it helps to relax. Swimming and being in the pool is also very good.

That sounds very similar to me. Though no headaches or pain.

I tried the gym yesterday. Low intensity work and felt ok. I may try swimming as well though I'm not a fan.

I also wasn't training for a sub 3 marathon then decided to go for it close to the day so my speed increased dramatically and obviously know now running it with a virus wasn't sensible, but it was London, so you know how it is.

Interesting post though!