International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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CDC Web Survey

Discussion in 'Action Alerts and Advocacy' started by Ren, Mar 10, 2014.

  1. Ren

    Ren .

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    If it hasn't been shared elsewhere, I wanted to note that a web survey is (sometimes) popping up at www.cdc.gov. The survey has generic questions about the speed of the site and the ease of accessing information. They also ask about recommendations for the site and information presented on the site - or something to this effect.

    I just thought that this could be a quick and simple way to comment to the CDC about its support for CBT/GET for ME/CFS - and/or request info on PENE and associated dangers be posted - and/or request for the CCC and/or ICC to be added, etc.


    Edit:
    Perhaps a FOIA request can be used to access these collected comments at a later date. I didn't take a screenshot of the comments I included, but for others, this might be a good idea since information the government is responsible for seems to very often inexplicably disappear.
     
    Last edited: Mar 10, 2014
    Valentijn, Iquitos, Esther12 and 2 others like this.

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