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Back muscles numb

Discussion in 'Neurological/Neuro-sensory' started by Heartl, Nov 10, 2018.

  1. Heartl

    Heartl Wife, mom, animal lover

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    Reno, NV
    I have gotten really sick twice since having ME. Both times housebound for two years but gradually getting to my baseline of 4-5 hours activity out of house. Both times felt like I had meningitis- stiff neck, stiff back and just all over inflammation and sickness. Was wondering if anyone else experienced/experience numbness in back muscles? Both times when this sick my husband will rub my back but it doesn’t feel good because I can’t feel my back muscles. When I feel better I can feel them...crazy illness
     
    Art Vandelay and Tallen like this.
  2. Art Vandelay

    Art Vandelay Senior Member

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    Adelaide, Australia
    Yes, I can relate. When I was at my worst, my back and shoulders felt numb. Oddly the top of my head and tips of my ears also felt numb.
     
  3. Heartl

    Heartl Wife, mom, animal lover

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    Reno, NV
    I supposedly have CEBV, I wonder if it is related. By chance have you ever been tested for EBV? I’m thinking it might be due to herpes viruses effecting the nerves in my spine causing numbness.
    Do you still get the numbness periodically or is it gone
     
  4. Art Vandelay

    Art Vandelay Senior Member

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    Adelaide, Australia
    Yes, EBV was a partial trigger for my illness. I really started to notice the numbness after I caught it.

    I still get it periodically when I'm experiencing a crash. A lot of my issues seem to be gut related (a stomach infection was also a trigger) so lately I wonder if it's related to leaky gut as it seems to be correlated with my gut symptoms.
     
    Last edited: Nov 12, 2018
  5. Heartl

    Heartl Wife, mom, animal lover

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    Reno, NV
    Same here, with stomach issues. I’ve been gluten, dairy, sugar free for two years and has helped but still have stomach issues. Did you treat your infections with something that has worked for you. I’m trying to get as much information as possible, thank you
     
  6. Tammy

    Tammy Senior Member

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    New Mexico
    Agree. Neurotoxins from the virus can inflame nerves and cause numbness.
     
    Heartl likes this.
  7. Art Vandelay

    Art Vandelay Senior Member

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    Adelaide, Australia
    The most effective thing to lessen my gut issues was a very low carb diet. I also had a blastocystis hominis gut infection and treating that with triple antibiotic therapy helped a reasonable amount. Another gut parasite, D.fragilis, has shown up in tests more recently as well as suspected Lyme but I haven't found anyone who knows how to treat either of those yet.
     
    Heartl likes this.

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