International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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an update

Discussion in 'General ME/CFS Discussion' started by littlebird6180, Apr 3, 2017.

  1. littlebird6180

    littlebird6180 Senior Member

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    I just wanted to give an update here because I find I tend to come here during my worst times for help and I wanted to make sure I shared my "best" with you as well.

    I got some incredible advice here and it helped pull me out of one of the worst crashes I've had - the advice combined with help from my doctor.

    In short, I was doing really well until christmas when I experienced one of the worst crashes ever.

    A month ago, I decided to go off of just about everything. I stopped taking fludrocortisone, salt pills, rhodiola, b12 injections. I stayed on atenolol, LDN, ketotifen.

    I felt a bit better after going off everything and I think essentially I've determined the fludrocortisone and salt pills were having bad side effects for me.

    What really changed everything for me though was the decision to pulse my b vitamins. So now I alternate the following in 3 day cycles: folinic acid, L-MTH-5 and niacin. This way, my body doesn't get used to them and they have the same incredible energy rush that they do the first day. So I've been feeling really strong energy, mental clarity, no more depression, no body/muscle aches and just all in all, I feel like I can keep up with my kids. This has been huge. I have no idea if it will last but I wanted to document while I'm feeling good.

    Thanks for everyone's help.
     
  2. Basilico

    Basilico Florida

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    Glad to hear you're feeling better!
     
    Mary and Hutan like this.
  3. jason30

    jason30 Senior Member

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    The Netherlands
    Good news!
     
    Mary and Hutan like this.
  4. belize44

    belize44 Senior Member

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    That's great news! I hope it lasts a long time.:)
     
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  5. Mary

    Mary Forum Support Assistant

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    ahimsa likes this.
  6. Johnskip

    Johnskip Senior Member

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    Nice to hear good luck!
     
  7. Shoshana

    Shoshana Northern USA

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    Thanks for telling us!
     
  8. maybe some day

    maybe some day Senior Member

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    Nice to hear! I wish it was something simple as that for me :0(
     
  9. Gingergrrl

    Gingergrrl Senior Member

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    Are these two different types of Folate or Folic Acid? I am doing well with Methyl B-12 now but trying to find a type of Folate that I tolerate. Are you taking two different types of Folate or am I totally confused?!!

    And am so glad you found something that is working for you!
     
  10. lafarfelue

    lafarfelue Senior Member

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    Hooray, this is great! I hope it continues for a good long while for you. :thumbsup:
     
    Izola likes this.

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