Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Discussion in 'General ME/CFS News' started by Gerwyn, Apr 30, 2010.

  1. Gerwyn

    Gerwyn Guest

    According to the GMC doctors who prescribe drugs without any scientific evidence in their support and may be harmful should have restrictions put on their licence and no longer be able to prescribe drugs.

    Doctors in the UK prescribe aspirin for patients to prevent heart attacks(primary prevention)There is no scientific evidence in support of this but there is ample evidence of harm.Therefore if the GMC are going to be consistent they should now introduce a blanket ban on GP,s to prevent them prescribing drugs of any kind
  2. liverock

    liverock Senior Member

    Prescribing aspirin is the least of it, off label prescribing is a well established fact in the medical profession.

    There is nothing illegal about "off label" prescribing, much of it is carried out in the paediatric and psychiatric fields. In most cases there is peer consensus or doctor based trials particularly in the paediatric area.

    However, if something went wrong then the doctor could find himself in front of the GMC and also being sued by the patient or his relatives.

    In the US there is a lot of "off label" prescribing.

    Some doctors are worried about the possible implications of doing this.

    Unfortunately due to pharma companies "pushing" certain drugs on doctors and supplying false information about their drugs, consultants can be put in a position where they will try a drug based on dodgy information provided by the drug companies.

    Phizer recently paid a $1.2 billion fine for pushing one of their drugs after the FDA had banned it 4 years before.

    One of the main reasons for "off label" use of drugs is because contrary to what most people assume, drugs on the whole do not work except on a minority of patients.

    The Head of research at GSK blew the gaff on drugs when he admitted their drugs did not work on most people.

    The British Medical Journal commenting on the speech criticised the wasted NHS funds on drugs that dont work.

  3. Esther12

    Esther12 Senior Member

    What about the way anti-depressants were doled out for CFS, even after we knew how ineffective they were?
  4. Min

    Min Guest

    the g.p. who prescribed me the slow release ibuprofen that has wrecked my bladder should be before them
  5. jace

    jace Off the fence

    A GP that prescibed me Ibruprophen 600mg x 4 times/day. Innocent that I am, it wasn't on my prescription, but the pharmacy (at the clinic) gave me this extra box. One pill was enough to know it was tearing a hole in my stomach. I should have photographed them before returning them to the clinic. This doctor is the local 'expert' on CFS, and she is knowingly abusing patients. Wish I had the proof now. It's not over the max supervised dose, which is 3200mg/day, but no paper trail to the prescription? Odd.

    jace x
  6. lotusflower


    My autistic son went into a coma after MMR with a strange illness, that they never did know what it was. la I was given seroxat during the years I was trying to find out what was wrong with my son, as he had such strange processing problems. I had bad reactions to seroxt and took an overdose which left me permanently harmed. loss of memory Iq neural sensory processing problems, communication difficulties and auditory processing fatigue, pains all over my body, kidney disease etc. That is what those drugs do too some people.

    I had loads of pharmaceuticals as a child for allergies etc asthma inhalers etc but I believe the drugs side effects are now related to my illness.

    I wish I knew then what I knew now, but when I innocently took these drugs, I genuinely believe they had been properly tested for safety, I now know with seroxat, they covered up information on their safety and knew it was causing suicides in children, they withdrew it for children but only because they got caught out. If it is not safe for under 18s what makes them think it is safe for over 18s expecially as I am only 4 10 and weigh six stone, I lost 10 pounds on that drug too. and it used to burn my stomach.

    When I tried to explain the side effects, I was ignored and given anti psychotics, which made me collapse,

    It took me 2 years to get off them and it was hell the withdrawal was shocking, I had to reduce by 1/8 of tab a day which I worked out myself, no gp helped advise as they said they were non addicitve. some years later they prescribed them again, even though I tiried to explain I had sucide attempt on them, none before or since, but they did not listen, just ignored me and so in a weak moment I took one (stupid me) and I had what is known as a severe kindling reaction and had a seizure, I went tot he hospital, they could not find anything wrong, told me to go back to gp. When I recalled my blood tests recently as I'm putting in a complaint, I checked on bloods meant it seems one test did show an inflammatory reaction after the seizure the baso test. I also discovered I had kidney disease which no one had informed me about, in the 10 years since my suicide attempt.

    The docs at the time fabricated my records to cover themselves and I think the cover up has continued simply because they can and no one does anything about it

    Still I know now these drugs do not detoxify from your body, they do stay there and I found out on paxil progress forum that a kindling reaction is normal although not as severe as I had.

    I am now predjudiced against the use of pharmaceuticals , due to my experiences although maybe some can be useful in small amounts
  7. willow

    willow Senior Member

    East Midlands
    Lotusflower I feel for you.

    I have a friend who suffered on seroxat. She also developed a pitutary tumour during this time which 5? years later she continues to treat.

    Isn't it bizarre the way many GPs and other doctors fail to beleive prescription meds can have negative even damaging side effects. Worse that they take no notice of the experience of their patients. Potentially very harmful, but most of all I can't over how illogical and unscientific that stance is.

    What substance does have effects other than the primary intended ones?

    I know a number who work in pharma research and I don't think I've met any who refuse to believe pharma has side effects. Infact some are frustrated that the way our medical system uses them implies that they are an easy, symptom free way to treat, and argue this attitude is potentially dangerous, that pharma have to be monitored carefully and continued only when the benefits outweigh the negatives.

    Of course they also believe in pharma over herbs etc, think some are life savers in certain situations and long to discover the 'big one'

    My medical records from the age of 4-17 are missing. My Mum tells me that I had an adverse reaction to almost everything I was given for my recurrent infections. I remember the throat and lip swelling from Septrin but even that is not noted anywhere. One dentist was incredulous that this had been given to a child when other abx were available.

    Anyway now I have no clue which other medications I received or which ones I reacted to. Wish I did.

    Since old enough to make my own decisions on this I've refused almost everything, taken nothing at all for well over 15yrs.

    For me herbs and biomeds haven't been much better. I oversensitised myself, I think by trying too many different ones at small doses and those too became pretty much a closed avenue.

    FWIW my pharma research friends tell me that these days aspirin would never be approved for clinical use- too many serious side effects.

    I'm sure I've read/heard doctors in the media recommending it for heart attack prevention. Very public recommendations, with a much wider audience than Sarah Myhill's.
  8. jace

    jace Off the fence

    The mastoid process infection and associated benign brain tumour that nearly killed me, age 19, were a result of chronic ear infections from early childhood that never completely cleared even with antibiotics.

    My father was a GP. I was born in the era when penicillin was a miracle cure-all, and we got the pediatric suspension of penicillin (lovely raspberry medicine - not) for every little sniffle. I believe that is connected to the eventual need for a radical mastoidectomy.

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