Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
Discuss the article on the Forums.

Activity perception in chronic fatigue syndrome and asthma: development of a new measure

Discussion in 'Latest ME/CFS Research' started by Dolphin, Aug 25, 2016.

  1. Dolphin

    Dolphin Senior Member


    Via this tweet:
    Valentijn and Esther12 like this.
  2. Snow Leopard

    Snow Leopard Hibernating

    South Australia
    Did they use actgraphy, or is this just another investigation of questionnaire answering behaviour?
  3. Sean

    Sean Senior Member

    So which direction is the causation running?
  4. Keela Too

    Keela Too Sally Burch

    Definitely @Sean they have it all back to front.

    Recently my physical health has improved due to a treatment, and look at what changes I've had:
    • I have less fear about the effects of moving about on my future wellbeing
    • I'm feeling a load more mentally buoyant (okay I never actually got "depressed" as such, but mood is better)
    • I'm much less sedentary
    • I'm online less
    • I have fewer symptoms
    • I have way fewer negative effects from being ill
    I still believe this is a VERY serious illness though, because I have been very physically low, and have seen how low others can go with this. That doesn't change, now that I'm physically improving, BUT perhaps if I'd never been so low, and never interacted with those I know to be low, then I mightn't think the illness serious?

    But all those changes are down to my health improving. "Making" those change won't improve my health!!

    Surreal the type of studies they think meaningful.

    It's a bit like observing that men who wear hats are often bald, and so blaming the hat wearing for making the men bald without considering that the bald men wear hats to keep their heads warm! Oh and then suggesting that bald men should never wear hats if they want to grow their hair back!
    Last edited: Aug 26, 2016
    Snow Leopard, Dolphin, Mel9 and 5 others like this.

See more popular forum discussions.

Share This Page