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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Forgetting to breathe sensation loss in CFS?

    Yeah it seems to be related to autonomic issues. I had POTS and other autonomic problems and got this breathing issue as well the last 2 years. Whatever brain dysfunction causes the autonomic issues seems to cause other strange issues with things that should be "automatic". I had issues with...
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    Summary of Research

    Thanks for the input guys. Never thought about how the biomarkers may change over time and such. Seems very complicated. I hope Steven Holgate gets his 5000 patient study funded and done soon. Wish we could help somehow.
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    Forgetting to breathe sensation loss in CFS?

    Hi. Was just wondering if anyone gets this symptom with CFS. It's common in all the subsets of POTS/OI I find. I will post a few excerpts from a POTS support group forum about it. If it rings a bell then I'd be interested in finding out how common it is in CFS and how frequently people get it...
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    Summary of Research

    Hmmm. I guess Daniel is right. Research was so fragmented into individual silos until recently. I hope someday soon some worthy ideas come about now that there is renewed interest (due to the XMRV I heard there is renewed interest). By the way I am partial to the autoimmunity theory, but if...
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    Summary of Research

    So do you think that no one has defined any subsets yet? Klimas in 2009 said she thinks it's 3 to seven different illnesses. http://phoenixrising.me/archives/61 Are you aware if these were ever defined in any way? Did she ever define them even roughly? What I'm looking for doesn't have to be a...
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    Summary of Research

    Hi guys, This is my first time posting but for a month now I've been reading a bit on CFS/ME and I think it's time I finally ask a question. Some researchers say that CFS/ME is "3" different illnesses (I think Klimas said this in 2009 with no elaboration I could immediately find). Others say...