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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. K

    Sulfur and Methylation

    There is another spelling on the bottle that says Sufat, if that helps :-). I didn't know I had a problem with any of my greens, my doctor suspected it due to symptoms. So I wanted to confirm it before continuing the very restrictive diet. Now I know but a month of the diet hasn't changed my...
  2. K

    Sulfur and Methylation

    My bottle says Sulfate. These are the ones I have: http://www.ctlscientific.com/cgi/display.cgi?item_num=91329
  3. K

    Metametix GI Test Results - SCFA??

    Thank you both! The link above was very helpful! When I took the test, I had been eating a lot of protein, celery, cucumbers, salads and usually one serving of broccoli or asparagus for dinner. I have since then been following a low sulfur diet and reduced my protein, added seeds like chia and...
  4. K

    Metametix GI Test Results - SCFA??

    Also curious what the Drug Resistance Gene - aacA, aphD means??
  5. K

    Metametix GI Test Results - SCFA??

    Yes, I was eating a pretty low carb diet. Since then I have been on a the Low Sulfur diet, juicing twice a day, eating more squash, vegetables and limiting animal protein to 6 oz a day.This seems to to have fixed my issues with constipation. But the low SCFA's, is that all it is, low fiber...
  6. K

    Sulfur and Methylation

    Does anyone know accurate these strips are? How long do you have to be on a Low Sulfur diet to see improvement? I have been on this Low Sulfur diet for 3 weeks and haven't seen anything change in symptoms or my sticks, they are always 1200.
  7. K

    Metametix GI Test Results - SCFA??

    Can anyone shed some light on my results?
  8. K

    Sulfur and Methylation

    Yep, I did that but when I try to compare the strip to the bottle, the top two oranges match the > 1600 but the bottom two match the >800, they don't match the full "strip". Does that make sense?
  9. K

    Sulfur and Methylation

    I received my Quantofix strips today. I am not sure how to read the results. Is anyone else using these? If anyone else is using these, here is my question. There are 4 blocks on the strip. But when I match the results up to the back of the bottle, the top two are lighter than the bottom two...
  10. K

    Sulfur and Methylation

    I did an epsom salt soak on my feet and seemed to have no ill effects. Thank you for the link to the test strips, I will give those a try. How accurate is the 23andme test? My doctor didn't recommend it because he says you can get false positives.
  11. K

    Sulfur and Methylation

    Thanks, I am working with a doctor. He suggested the molybdenum and the low sulfur diet. I am not sure if its the moybdenum but I am getting a tight feeling in my neck and chest after I take it. In addition, the diet is really restrictive and so I was exploring if there are other ways to support...
  12. K

    Sulfur and Methylation

    Are there other things you can do to speed up SUOX reaction addition to molybdenum? I have the hetero A1298C. We don't have tests on other mutations but from my symptoms my doctors says sulfur levels are probably high and COMT is not happy either. I know my Vit. C, B6 and Glutathione are low. My...
  13. K

    Alcohol Tolerance Poll

    I posted this before in another part of the forum. I see now it was better suited here. I am currently in the process of researching and testing what I have. In addition to my regular long list of symptoms, I have a strange symptom that pertains to alcohol that no one has ever heard of or...
  14. K

    Revised Simplified Methylation Protocol (August 25, 2012 Revision)

    With regards to testing - is it going to skew test result of the Methylation Pathways panel or the GI Effects Complete Profile if I have been taking Hydro b12? If so, how long should I stop before taking the tests? Would I be able to get enough information from the TRIAD test from Metametrix...
  15. K

    My skin hurts if I consume alcohol

    Now that I have read a little more, this is speaking to me. I know I have issued with histamines. I have suspected maybe I am histamine intolerant because I can often manage many of my symptoms by adhering to a strict low histamine diet. My triggers are typically food, though food allergy tests...
  16. K

    My skin hurts if I consume alcohol

    Thank you! I appreciate your input. I will take a look and do some more research.
  17. K

    My skin hurts if I consume alcohol

    Some of it does an some of it doesn't at all. I have taken many tests over the years, nothing is ever concluded from them because my blood labs are always perfect. Except this time I knew enough to see a trend in my RBC's to pick out a b deficiency. The the mast cell symptoms, I do not have any...
  18. K

    My skin hurts if I consume alcohol

    I am currently in the process of researching and testing whether I have a breakdown in my methylation cycle. In addition to my regular long list of symptoms, I have a strange symptom that no one has ever heard of or experienced. In all my research I have never heard it mentioned except for in...