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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Rolo

    Intestinal cramps/gas leads to major cognitive improvements! Why?

    Hi, Over the last 15 years, I've learned a lot about food, diets and the associated symptoms, but there's one strange thing where I can't find an explanation for. Whenever I get intestinal cramps (+ gas) my cognitive functions are improving a lot and even my energy levels are rising. It feels...
  2. Rolo

    Tetrahydrobiopterin (BH4) deficiency in CFS and the connection to folate metabolism

    To increase BH4? Will long and really hot baths also work? Sweating means release of ammonia. Less ammonia means more available BH4, right? Or is there something special about sauna's that is beneficial for BH4. Thanks, Rolo
  3. Rolo

    Tetrahydrobiopterin (BH4) deficiency in CFS and the connection to folate metabolism

    I'm confused. I would think there's rather a problem with low NO, not to much. I found different threads on this forum that explains that the a high percentage of PwMe have a to low NO level. Especially when you have autistic like symptoms. Rolo
  4. Rolo

    Beware of the bird(s) (chicken, ...)

    Hi, For the last couple of years I'm writing all things down that I find important in a logbook. Like what I eat, medication and supplements that I take, changes in symptoms, activities, and much more. I've learned a lot about what to eat and not eat, what supplements are working (sort of) or...
  5. Rolo

    Is there BH4 supplement/medicine?

    Hi Aquariusgirl, Nice to hear that BH4 is somehow working for you. If you cognitive functions are improving, how would you then describe your detox symptoms? What product (brand) do you take? Thanks, Rolo
  6. Rolo

    $5 off iherb code

    If there's a party, I will join to. :lol: My iherb code is VQW773 Regards, Rolo
  7. Rolo

    $5 off iherb code

    Just placed my first order by iHerb. Thank you for your code. The discount code is still working! :thumbsup: Heaps code was still working. It seams it can be used over and over again by new customer with there first order. Fine by me if somebody is making of it, although I doubt anybody is...
  8. Rolo

    Is there BH4 supplement/medicine?

    The wikipedia page for Tetrahydrobiopterin mentions Kuvan as brand name. Maybe that's on option, but I'm not sure. It was just something I came across when I was doing my own research http://en.wikipedia.org/wiki/Tetrahydrobiopterin http://www.kuvan.com/ According to...
  9. Rolo

    SNP Testing

    Hi Trying to answers some of my own questions.:thumbdown: I browsed through different threads and it's seams that the 23andMe test misses the following SNP's: ACE DEL16 COMT L136L MTRR S257T NOS-3 G894T SUOX S370S SUOX A628G VDR FOK BHMT-01 How important are these to solve methylation...
  10. Rolo

    SNP Testing

    Hi, I'm also interested in doing the 23andMe test. Are there any hidden costs for 23andMe test. According there site the cost for me would be 99$ for the kit and 80$ for international shipping (Belgium). A total cost of 180$ or 140 €. Are there any other cost. Like shipping's cost for returning...
  11. Rolo

    What Is Your Body Temperature? Rethinking 98.6

    Your story is actually very similar to mine. Low body temperature when feeling hot, high body temperature when feeling cold. I also have problems with these night sweats. I also call them pressure sweats, because I only sweat at body parts where some pressure is applied. I suppose bad blood...
  12. Rolo

    Best Type of Selenium for Glutathione, Mercury (Pros and Cons)

    Thank you guys for all the tips, advice and insides!. I've stared with taking selenomethionine 200 mcg a day. Primarily because it seams somehow to inhibit the coxsackie virus. http://www.drpasswater.com/nutrition_library/selenium1.html It 's also an element of equilibrant.
  13. Rolo

    Best Type of Selenium for Glutathione, Mercury (Pros and Cons)

    Thanks for the advice. Do you think that Methylselenocysteine is a better choice then Selenomethionine??
  14. Rolo

    Best Type of Selenium for Glutathione, Mercury (Pros and Cons)

    I'm taking a mix of Calciumascorbaat and Magnesiumascorbaat. May I conclude that I'm relative save then? Thanks Rolo
  15. Rolo

    Best Type of Selenium for Glutathione, Mercury (Pros and Cons)

    I also want to try Selenium and I can choose between 'Selenomethionine' or the yeast form. Unable to find SeMSC or other forms. As advised by Anteh I would go for 'Selenomethionine' but I just have noticed that Equilibrant contains the yeast form. So I'm not sure any more. Is there a consensus...
  16. Rolo

    Oxymatrine in the UK?

    Hi, I was able to order White Tiger Oxymatrine via the site of Biomed bv from the Netherlands. It seams that they are the European distributor for White Tiger and they ship across Europe. You have to contact them via email or phone for more information about delivery costs and payment options...
  17. Rolo

    Oxymatrine in the UK?

    I just have checked there site and it looks that they do ship internationally. From there FAQ page: Equilibrant is made in the US. Do you ship internationally? Yes. Please register an account and proceed with purchasing, select international shipping options and checkout. Shipping options do...
  18. Rolo

    Lost the ability to vomit

    Hi, I've noticed that I've lost my ability to vomit since I 'v been ill. I only had to vomit once in the last 10 years! This doesn't mean I don't feel nauseous, actually I do feel regularly! I also feel the urge to vomit on a regular base, but unable to do so. Even forcing myself to vomit by...
  19. Rolo

    Vitamin D Receptor Dysfunction

    Hi Sushi, Indeed he talks about vit D but he stays very vague about it. Have you any idea about his theories? Is it in line with Marshall theories or is it just the opposite? He refers to a study they have done. Is there any detailed information around about this study or his ideas? He also...
  20. Rolo

    Web seminars with Prof. K. De Meirleir with english subs

    It seams that the 3 first videos of the interview with prof. De Meirleir are available with English subtitles. I suppose the rest will follow. http://www.youtube.com/user/WetenschapvMEcvsVer/videos First video Best regards, Rolo
  21. Rolo

    Dr. DeMeirleir speaking Jan 28/13

    I've just noticed that the 3 first episodes are re-uploaded with English sub titles!! I suppose the rest will follow http://www.youtube.com/user/WetenschapvMEcvsVer/videos Enjoy Rolo
  22. Rolo

    quercetin, yes -- but adding bromelain?? probably no

    Hi Sherlock, Your conclusion confuses me. I thought bromelain was just healing the gut lining. I'm far from a medical specialist but I would think that they mean something else with "Improvement of the intestinal membrane permeability" . Namely an improvement of the normal uptake through the...
  23. Rolo

    Resveratrol [...] is a functional scavenger of peroxynitrite

    Ok thanks for the reactions. Like always, we seam to react differently then most healthy people. I will post my experience's later Feeling drunk? Maybe not filtered enough, to much 'red wine' in the supplement ;-));):p
  24. Rolo

    My Prof De Meirleir patient experience...

    Hi Clodomir, The food in your diet are the things that I'm typically craving for. It's a diet that I can't keep up for long. When I eat fats, especially in combination with carbohydrates, I have to deal with some terrible symptoms, especially at night. Things like: extreme night sweats...
  25. Rolo

    My Prof De Meirleir patient experience...

    Hi Clodomir, My experience is that my gastritis is related to fats. When I leave all fats out of my diet, my gastritis disappears within 3 days. Leaving out for me means: Leaving all out (near 100%), so no meat, fish, nuts, avocado's, etc or anything else that contains fat. Especially...
  26. Rolo

    Resveratrol [...] is a functional scavenger of peroxynitrite

    Hi Sushi, Hixxy, NanoNug, I'm also interested in taking resveratrol. How did you react on resveratrol. Positive? Negative? Side Effects? What dose did you take?. Thanks for the feedback, Rolo
  27. Rolo

    D-ribose Teitelbaum study on 257 CFS/FM patients

    For some it's working for other it is not. It seams there's a clear correlation with the intake of other supplements. What are the other supplements you are taking and do you have any idea which are the synergetic ones: Maybe Q10, Mg, L-Carnitine, ?? Nice to hear you are doing well.
  28. Rolo

    Low fat diet for lyme?

    Hi Erist, I have CFS/ME and I have tried so many different diets over the last 15 years, but nothing that really helps, But since 12 days I'm trying out a complete fat free diet. This means no fat except a little bit from lean chicken (cooked). I'm also leaving out all carbohydrates/grains...