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I took one Citalopram earlier today and I feel energized. If the HPA Axis theory that @nandixon describes be correct, should I just take the drug 14 days before the effects can revert??

Hi I am a bit desperate because despite me resting my condition worsens every day, i am now at the severe end, what can I do?

So I took 2 drinks of Whey yesterday, and one hour after the second drink most of my leg weakness and pain had disappeared. It came back this morning but I was able to do significantly more. I am sure now I have a methylation problem, and too much oxidative stress. Will add B12, Vit C and...

That is interesting, I found this paper: "Based on a small case series (n=198) patients with COVID-19 had a noticeable increase of glutathione reductase (GR) levels occurring in around 40% of COVID-19 patients.(3)"...

I might be able to drag myself to the doctor on Monday. But muscle twitches are not so uncommon in ME/CFS are they?

Thanks for that! For reducing oxidative stress, would B12 and whey protein work? My doc Dr Bieger suggested to take NAD+

I never had such weak muscles. Could it be a mild form of Guillian Barre syndrome? But I worry that this is a severe relapse 😔. I would appreciate any help how to maybe get out of this.

So my muscle weakness is getting more and more severe every day. Almost my entire body is twitching now. However, I do not feel so much exhausted. I am still taking LDN 2.25 mg every day, wich was my sole therapy for the last 2 years. Any idea what could cause these extremely weak and burning...

Also, SARS-CoV-2 is potentially associated with Guillain-Barré https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(20)30109-5/fulltext

Interesting, thank you! Will check tomorrow with my doc, maybe there are other explanations for this but I doubt it....

Hi, I have CFS since 2008 and over the years got better and better. The last five years I worked full time, and the last two years I was even riding around town on my electric bike. Four weeks ago I got a light viral infection, a light fever, and a dry cough that persisted for more than two...

Thanks, @Sushi ! It is not required, but advised, and I think it would be wise to get it. Did it make your symptoms worse for a long time? Some, even healthy people, have reactions up to a week afterwards.

Hi, I planned a trip for a wedding to Brazil this summer (Rio area and Fortaleza), and just looked into travel vaccines. Should I get yellow fever and other vaccines? What's your experiences with those? Did they make your CFS worse?

Yes, there was a thread on Mestinon, which I tried myself for POTS/ME with only very mild effects. http://forums.phoenixrising.me/index.php?threads/mestinon.21483/ Definitely not a magic treatment.

@Marc_NL @A.B. I also got back a test with high sIgA. What did explain this in your cases?

Not really. In 8 years I saw my CFS doc 3 times. Did not have money for more visits. No fancy treatment. I guess I was lucky to be a moderate/mild case. I am not saying that this is the rule, don't get me wrong, but there is hope :) !

Absolutely possible. The first months might be very difficult, but you can get better over time. I am living an almost normal life, finished a PhD and work fulltime. No Sports, though, and occasional crashes. But overall my life is more enjoyable than that of many on this planet.

I heard the same. Also my German doc thinks celltrend is not reliable. I have been tested twice for these antibodies. Once by cell trend, the other by a German university hospital because of my POTS. Both times negative.

Did anyone get his amino acids measured?

A word of caution: I just talked to a German doctor who had used cell trend to test his patients. Apparently, he got very different results for the same patient if they were tested multiple times. He thinks the test is crap (not testing for these auto-antibodies in general, but this specific...

I started it, too. Had one big spoon yesterday and feel already better today. I had good results with other BCAA before, but at some point it seemed to stop working. Funny story, it also got me through a Japan holiday where I did up to 20,000 steps a day. Almost immediately the day after coming...

Any long-term effects of this diet?

did anyone try this protocol so far?

Thanks everyone. Olive leaf and zinc are great suggestions, I will try them. Overall, this condition does not seem to be very common for people with CFS/ME....

Hello, I recently developed an infection of my armpits, with clusters of painful abscesses. Apparently, this is a condition called Hidradenitis suppurativa or Acne inverse. Here is the Wikipedia article: https://en.wikipedia.org/wiki/Hidradenitis_suppurativa According to this, I directly...

Yes, its Bieger from Germany. I did not vote, but I see him from time to time. While he might not conduct frontier research, he is up to date. He is also taking enough time to talk to patients and is open to different approaches. Also, seeing him and getting bloodwork done in his lab is not...

I don't know whether this has already been discussed, but I recently came across this study from 1994 by Brelley and Lord: http://performancelab.fi/wp-content/uploads/2016/05/Amino-Acids_Chronic_Fatigue_1077.pdf They had amazing results with supplementing amino acids, almost 75% of the (small)...

Thank you @PatJ and @ScottTriGuy !!

Hi everyone, I am taking LDN since a couple of month (4.5mg) and I am doing quite okay on it. However, I wanted to add BCAA to help with PEM. Do you think this is a safe combination? Did anyone try it out? Thanks so much, Jim

Does anyone else get nightmares from Mestinon?