• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. S

    Poll: Freddd's B-12 Treatment Plan

    Freddd- One thing is clear-When someone says you don't understand something, they usually are hearing something they do not want to hear!!!! YOU MAY WANT TO RETHINK YOUT RESPONSES!!!!
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    Poll: Freddd's B-12 Treatment Plan

    I have not tried Fredd's B-12 plan. However something I have found is if I increase any of my B Vitamins and I do take Hydroxy shots 3 ml 2 x a week IM. I also have to increase my Probiotics. I take a mixture-My own concoction of VSL#3 Med food. Pro _5 by Schiff 2- 3 times a day, Schiff...
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    B12 working but can't sleep.....

    TROBPAH- Before you do anything see a sleep specialist. Let them do an overnight study . I did and am on a CPAP. machine.Stopped all my sleep issues and most of my Palpitations. Neurologist told me you cn take 9 mg if needed in melatonin. However., I would to be on the safe side have a sleep...
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    Dr. Bradstreet

    Thomas- Having problems with getting PM to go through.. Also am on my way out door to meeting. Before I would go with anything considering the Brain with Bradstreet, I would see a Neurologist and have a Brain MRI. This is a serious thing and don't know what his qualification are. You could have...
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    Dr. Bradstreet

    Thomas I am not familiar with the procedure you are talking about. I do know some are talking about deep Brain Stimulation. However most of my Dr think anything invasive when you are really down or on a downward spiral-which I assume you were when you had Fecal transplant can be dangerous...
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    Dr. Bradstreet

    Thomas may want to go on Google and research Dr. Bradstreet when he was in Florida. Evidently was involved in a lawsuit there on treatment of a child. Don't know any details. I had considered seeing him also. He is not too far from me. San Diego #1
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    Will KDM look for and dx OI/POTS etc?

    ANYONE IN THIS GROUP TRIED A CPAP MACHINE FOR DIZZINESS OR POTS? WORKED FOR ME. SAN DIEGO #1
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    Looking for Covered California Obamacare advice

    On the sleep issues- I have found after asking my Dr. to see a Sleep Specialist and using a CPAP sleep machine- My sleep issues and Palpitations are almost completely gone. Have to see someone that knows what they are doing and how to adjust the pressure. It has made all the difference in me. I...
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    Looking for Covered California Obamacare advice

    I NEVER, NEVER, ASK FOR A CFS DR. I GO TO INFECTIOUS DISEASE, OR ENVIRONMENTAL. OR NEUROLOGIST. SAN DIEGO #1
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    Looking for Covered California Obamacare advice

    i HAVE FEDERAL BLUE CROSS BLUE SHIELD IN GEORGIA PPO-THEY HAVE PAID WELL ON MY CFS. I THINK IT DEPENDS ON THE CODES YOUR PHYSICIAN PUTS IN. AS CFS COVERS MANY AILMENTS. DON'T KNOW ABOUT THE REG BLUE CROSS-BLUE SHIELD. ALSO A LOT OF THE CFS DR. DON'T TAKE INSURANCE AT ALL. BEST SAN DIEGO #1
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    B-12 - The Hidden Story

    SOME VERY GOOD POSTS HERE.I HAVE HAD CFS/MS SINCE 89. INF DISEASE DR. PUT ME ON IMMUNE GLOBULIN. IM WEEK LY AND ON CYANCOBOLOMINE AT THE SAME TIME. WITHIN A 3 WEEK PERIOD I WAS IMPROVED WHEN BEFORE I HAD TO QUIT WORK AFTER PESTICIDE POISENING AND MONO .. I REALIZE THIS WAS A LONG TIME...
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    B-12 - The Hidden Story

    What is Freddd's Methalation Protocal??
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    B-12 - The Hidden Story

    Where is the FAQ page??? San Diego #1
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    GcMAF for XMRV--Gc protein-derived macrophage activating factor--anyone taking it?

    What Vit E are you taking? San Diego #1 What vitamin E are you taking?
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    In Belgium to see Dr de Meirleir

    When is he coming to the US? Interesting Post. San Diego #1
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    'Science to patients' web seminars continues

    Series- -facinating -interactions between the Heart-Brain-and other organs with the Orthostatic info. San Diego
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    A great starting point for M.E. tests......

    Stretched- I came down with WHATEVER IT IS- in 1986. I was an athelete. running and then walking 60miles aweek plus yoga and aerobics. Everyone in our office came down with MONO. I was lucky enough after 3 months to have seen an infectious disease Dr. that was doing research with Immune...
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    Dental Health: Yet One More Challenge For Those With ME/CFS

    I am a Registered Dental Hygienist. One of the best and easiest things anyone can do to take care of their mouth is to buy an Oral B Electric toothbrush in SOFT. This is easy to use and you can buy additional brushes to use when you need a new one- they fit on the electric base. Even if you are...
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    U.S. docotors that you reccomend besides Dr.Klimas and Dr. Rey?

    I AGREE WITH YOU- I REFUSE TO GO TO ANOTHER CFIDS DR. AGAIN. I JUST HEARD FROM ANOTHER CFIDS DR. THAT DR. MEIRLEIR IS RETIRING??????? IS THIS TRUE??? san diego #1 San Diego #1
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    Anyone seen Colin Chan, M.D. in St. Petersburg for cfs?

    I have not heard of him. Would be interested to hear about him though. Does he have a website?? San Diego #1
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    The Subverting of the ME/CFS Mind

    One thing that has touched me emotionally this last month is -We have had a close friend die every week of August of different things. Some quick, some unexpected, A Wasp sting (allergic reaction). Another Massive Heart attack at a family reunion-getting into his boat.This puts things in...
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    The Subverting of the ME/CFS Mind

    MeSCI- Yes it was fried foods( you mean you don't understand CFID talk???) Ha. I will go to that website. Interesting about the Olive Oil and Coconut instead. May try that. Are you using the Krill oil for Omega 3's? I have done well with the VSL#3 for Gut. But also cut out dairy.. When you say...
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    The Subverting of the ME/CFS Mind

    Daffodil- You are wrong. You just related to me. Start a Journal- even if it is a sentence. People do care- I care!!!!! Better Days!!!! San Diego #1
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    The Subverting of the ME/CFS Mind

    Me& Cat- I often write a post and forget I wrote it. Read it later and wonder who that person is-sounds familiar!!! Ha!!!! Think I have already written this but just in case. I could not find Peanut Butter the other day and my husband said (SARCASTIC) are you sure you didn't put in the...