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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    WPI UK XMRV testing/study

    Countrygirl and Knackered - Thanks for very helpful replies . T
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    WPI UK XMRV testing/study

    I was diagnosed as Moderate to Severe ME in 2004. Am I correct in thinking that some of those included in the XMRV UK tests do not have ME/CFS ? They are perhaps partners parents etc.! If so, how would we know what percentage were actually ME/CFS sufferers. This could also affect the final...
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    WPI UK XMRV testing/study

    received my email 10.16 am today.
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    WPI UK XMRV testing/study

    Opted for Gloucestershire venue which is approx 1 hour + drive from home - but it all depends on what date they set. May have to rearrange - I rely on someone to take me. Anyone else thinking of Gloucester?
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    Dr. Judy Mikovits IACFS/ME Newsletter Apr 2010 Q & A

    me too - sounds just the same for this old confused mind
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    Dr. Judy Mikovits IACFS/ME Newsletter Apr 2010 Q & A

    Was in good health till Hysterectomy and Ovaries removed then on Oestrogen........... that was 1996. then 2003 diagnosed mod to severe ME
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    Comment by 'tricia' in 'Dr Klimas Test results in !!'

    Leaves: Thanks for sharing your data with us .
    • tricia
    • Blog entry comment
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    Please sign the following iPetition...( Panorama investigation)

    I have signed - :Sign Good Job: in N Oxfordshire UK - waiting XMRV test.
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    WPI UK XMRV testing/study

    Me too - scared but anxious to know one way or other. Had total blood transfusion 1982. As for being at same venue and not knowing who is also testing XMRV - perhaps we should all wear the ME blue ribbon http://www.blueribboncampaignforme.org/ Cut out pic and use as badge!! I am in N...
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    Comment by 'tricia' in 'UK XMRV Communication'

    Thanks Jas. I am near Oxford and 1 hour only from London. I could manage that one by train. Do you know where the other testing locations would be. Tricia
    • tricia
    • Blog entry comment
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    Comment by 'tricia' in 'Alone in a Sea of People'

    :smiley-hug: HUGS thinking of you and feeling the same. at least here we have friends who understand. keep strong
    • tricia
    • Blog entry comment
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    WPI UK XMRV testing/study

    Any idea what the other regions will be. Anyone else live in Oxfordshire? I sort of thought I would have to go to London!