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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. J

    Rethinking Probiotics.

    Anyone used this probiotic - if so - how did you find it
  2. J

    Rethinking Probiotics.

    I did try Alflorex Infantis which I think helped but I decided to try the Seeking Health ProBiota for people who have histamine issues - 4 strains of the bif probiotic, no acidophillis but it does have inulin as a prebiotic, leucine and some polysaccharides - not sure if this is going to create...
  3. J

    Rethinking Probiotics.

    That seems to be me at the moment even old faithful the one I go back to is giving me headaches - tried custom pro infant powder that is giving me headaches and a bit of a racey heart - and stomach pains. How has manuka helped you - helped with bloating etc. and how do you take it and when...
  4. J

    Rethinking Probiotics.

    Do you think this is a good one to take - is there anything in this that isn't good for histamine etc. Can someone please help me with getting rid of the bloat I am desperate and struggling now to find probiotics that help. The one I am taking at the moment has acidophillis and bif bifidum in...
  5. J

    Rethinking Probiotics.

    Which one did you recommend - must have missed it as just found this post yesterday - I eat clean - veg, chicken, turkey, salmon avoid as much as I can the following - no sugar, no yeast, no dairy, no wheat, no gluten - as much as I can unless it is hidden. After last week I'm pretty scared of...
  6. J

    Rethinking Probiotics.

    It's a nightmare what is MCAS - what happens if they lower histamine level too much I that dangerous. The D lactate free one is that the baby powder - I have that but didn't think it did much - what has the D lactate free one helped you with - bloating is my worst problem the Biokult last week...
  7. J

    Rethinking Probiotics.

    I have been pretty ill with trying probiotics that have raised histamine and the bloating last week really scared me I wonder sometimes does any probiotic do you good when sometimes you feel worse when you take the - I am at the point where I may just quit. I have Gut Pro Supplement in the...
  8. J

    Rethinking Probiotics.

    Which is the bet one for getting rid of bloat
  9. J

    Rethinking Probiotics.

    What about GutPro Probiotic it has:- Bif Infantis Lactobacilus Plantaurum Bif Bifidum Bif Longum Lactobacillus Gasseri Lactobacillus Salivarius
  10. J

    Rethinking Probiotics.

    What about GutPro Probiotic it has:- Bif Infantis Lactobacilus Plantaurum Bif Bifidum Bif Longum Lactobacillus Gasseri Lactobacillus Salivarius Bif Breve Bif Lactis and L.Leucine Is this safe - I ask because I have had a really scary week where I was taking Biokult and I do have histamine...
  11. J

    Adverse effects on probiotics

    I've just ordered one and made the mistake of not seeing it had Vit D3 added as an extra could kick myself - do you think I would get any similar reactns to the previous one - what will Vit D3 do in a probiotic in terms of benefits, what will it do for me - so annoyed with myself though as I...
  12. J

    Adverse effects on probiotics

    I think it was a reaction to either potato starch or absorbic acid but not sure which would do that. What is a proper herx reaction like
  13. J

    Adverse effects on probiotics

    Thanks Bob I tend to use them for bloating - some help better than others but also I do tend to feel better on them - apart from this Optibac one - I'll wait till things settle down and give them a try - for now the Pro-5 looks a good one because it is a fairly low dose, no added fillers and...
  14. J

    Adverse effects on probiotics

    Thanks for that Bob - wonder if that was why I had problems with Biokult - the only other thing with this probiotic was it did contain a little dairy and it said a little soy - maybe it was that but my face always looked puffed out like a hamsters cheeks. What about the other probiotic...
  15. J

    Adverse effects on probiotics

    Nutritional Information this is Optibac every day Filler: potato starch; Live cultures: (Lactobacillus rhamnosus Rosell-11, Lactobacillus acidophilus Rosell-52, Bifidobacterium longum Rosell-175, Lactococcus lactis Rosell-1058, Bifidobacterium breve Rosell-70, Bifidobacterium bifidum Rosell-71)...
  16. J

    Adverse effects on probiotics

    I don't think I have to much overgrowth if I'm honest now because I've taken probiotics for a while now and also because of my diet - eat clean as much as possible and I do avoid normally stuff with sucrose, maltodextrin, saccharin etc. etc. added in - this was a first for me. I take probiotics...
  17. J

    Adverse effects on probiotics

    Well never had this reaction with a probiotic that didn't have added fillers like PS and AA. This is the first time I have used a one with these in as I was assured it was a minimal amount and wouldn't effect me - however something has and I am convinced it's the potato starch and absorbic...
  18. J

    Adverse effects on probiotics

    Thanks for that Bob - I'm with you on this when you say Herx reactions and coming through them - I've never yet been able to ride the storm out on one and quit whatever was causing it -not sure what it is that's doing it - potato starch or absorbic acid but I've felt rotten all day - I won't...
  19. J

    Adverse effects on probiotics

    I look forward to any help I can get on this as the way I feel it's not pleasant
  20. J

    Adverse effects on probiotics

    Wonder if you can help me - I've been taking Optibac Every Day that has absorbic acid in as a filler along with potato starch but I am feeling really weird - on edge, a bit wired, racy heart, headachey - is this the potato start of absorbic acid - I normally take probiotics without any of these...
  21. J

    Alternative Remedy - Try Kefir

    Kefir is very good for detoxing the system. I'm going to give it a go and I found a really good company who is currently offering a 15% discount if you quote "kefircompany6839" to their email address info@buy-kefir.co.uk their website is www.buy-kefir.co.uk If anyone has tried it before or...
  22. J

    Liquid Betaine Hydrochloride

    I know if I eat nuts, seeds, yoghurts - to name but a few things, I can have a tiny amount before I get face bloating and puffiness yet tests showed I was neither allergic or sensitive to all of the above and was just told to not eat them every day - sort of a build up in my system. I've been...
  23. J

    Liquid Betaine Hydrochloride

    There is a lot of good information and what I liked was information that I'd not found on other sites especially with regards to the section on IBS, candida etc. and I like to hear reviews comments from real people - sometimes I'm sure some of the testimonials for products are made up. Trouble...
  24. J

    Liquid Betaine Hydrochloride

    I'd done a search for betaine HCI and it led me to this site - I found very little relating to customer reviews to see how they found it but there was some good info on here plus there was info on IBS and candida - I suffer from constipation which has been a huge problem for me but I'm getting there
  25. J

    Liquid Betaine Hydrochloride

    Oh no don't get me wrong I hope you didn't think I was being rude - sometimes they say it doesn't contain gluten and other times it does - I just eat it because it doesn't make me as bloated as bread - and I try to go wheat free so Ryvita was the best choice for me - gluten free bread I'm not...
  26. J

    Liquid Betaine Hydrochloride

    Well it seems to be easier and better than bread and I have it because it avoids yeast.
  27. J

    Liquid Betaine Hydrochloride

    I know - it's the hidden things in food that's the problem. I did do the anti candida diet and was really strict with it then after tests was told it was gone but I have twice been checked for other things and lemons, cane and beet sugar came out as being sensitive. So you can see how there...
  28. J

    Liquid Betaine Hydrochloride

    I do avoid it as much as I can - never had bread for nearly two years and eat Ryvita - I agree I think it's something either food related, possibly candida although I've been cleared for this, parasites or something along those lines. Thing is you see I feel fine otherwise - good energy levels...
  29. J

    Liquid Betaine Hydrochloride

    So is HCL and betaine two different things? Think I'm showing my ignorance on this. I can take apple cider vinegar and not get the burn in the tummy so would that be a sign of low stomach acid? I'll have to do the baking powder test but need to buy some.
  30. J

    Liquid Betaine Hydrochloride

    Just out of curiosity for those who have taken the betaine - how good has it been in reducing bloating - 50% better, 100% better - good /bad - I've not been able to find out any customer testimonials regarding anyone taking it apart from probably on this website. I get very nervous about taking...