• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

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    IIMEC14 conference report - from Dr Ros Vallings

    From https://www.facebook.com/groups/5804522506/permalink/10156426317792507/ First of the #IIMEC14 conference reports http://www.investinme.org/IIMEC14.shtml#report Thanks to Dr Ros Vallings PDF here http://www.investinme.org/…/IIMEC14%20Conference%20ReportRV…
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    Invest in ME Research Supports NIH Thinking the Future Conference

    http://investinme.org/IIMEC14-news-190303-TtF.shtml IiMER DEVELOPING THINKING the FUTURE for ME Thinking the Future for ME - London and Washington 2019 IiMER Supporting THINKING the FUTURE for ME Conference in Washington The Thinking the Future Young/EarlyCareer Researchers network is an...
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    Thinking the Future for ME - Young/ECR Researcher Conferences

    https://meetings.ninds.nih.gov/Home/Index/22837 http://investinme.org/TtF-London2019.shtml
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    Remembering Jonas Blomberg

    http://investinme.org/IIMER-Newslet-190201JBL.shtml Sad News 6 February 2019 Jonas Blomberg Today we had the sad news that Emeritus Professor of Clinical Virology Jonas Blomberg from Uppsala University in Sweden had passed away. Over the years whilst the charity has been making huge...
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    House of Commons Full Debate on ME next Thursday 24th January 2019

    http://investinme.org/IIMER-Newslet-190103PDEB.shtml The Debate Is Over - Inaction for ME Is Not An Option GIVE ME PATIENTS A FUTURE A parliamentary debate in the main chamber has been arranged for 24th January 2019. The person responsible for getting all of this started is a supporter of...
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    12th Invest in ME International ME Conference 2017 registration is open

    http://www.investinme.eu/IIMEC12-news-170202.shtml CDC Participating in Colloquium and Conference INTERNATIONAL RESEARCH COLLABORATION FOR ME Dr Elizabeth Unger from CDC Attending #BRMEC7 / #IIMEC12 The objective with Invest in ME Research’s Colloquiums are to encourage and facilitate...
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    BBC: Research in Norwich could offer ME/CFS breakthrough

    Scientists at the Institute of Food Research (IFR) have uncovered a new mechanism linking bacteria in the gut to Inflammatory Bowel Disease (IBD) http://www.ifr.ac.uk/news/latest-news/2017/01/new-evidence-how-gut-microbes-affect-inflammatory-bowel-disease/
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    BBC: Research in Norwich could offer ME/CFS breakthrough

    Later BBC interview - with Professor Simon Carding of UEA/IFR - regarding the UK Centre of Excellence
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    EMEA Writes to World Health Organisation

    http://www.euro-me.org/news-Q42016-002.htm EMEA Writes to World Health Organisation The Disappearance, Continued Absence and Its Consequences of the Enforcement of the ICD-10 G93.3 Within the Linearization of the ICD-11 Public Beta Draft Version EMEA: PRESS RELEASE - For Immediate Release...
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    Norwich to be home to the Quadram Institute, a new £81.6m Food & Health research centre

    http://www.ifr.ac.uk/news/latest-news/2016/02/norwich-be-home-quadram-institute-new-816m-food-health-research-centre/#.VsEeYcPU9EE.twitter The Quadram Institute is the name of the new centre for food and health research to be located at the heart of the Norwich Research Park, one of Europe’s...
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    Extended B-cell phenotype in patients with ME/CFS: A cross-sectional study

    http://www.ukrituximabtrial.org/Rituximab%20news-Sep14%2002.htm
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    Extended B-cell phenotype in patients with ME/CFS: A cross-sectional study

    http://www.ukrituximabtrial.org/Rituximab%20news-Aug14%2002.htm
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    11th Invest in ME International ME Conference 2016 Registration Open

    "The 11th International ME Conference 2016 will take place on 3rd June 2016 in Westminster, London. We welcome researchers, clinicians, healthcare staff, media, patient groups and patients to our 11th annual international biomedical research conference heralding a new decade of ME research...
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    New £50,000 pledge for Invest in ME Rituximab Trial/B-cell Research

    http://www.ukrituximabtrial.org/Rituximab%20news-Sep15%2002.htm Investing in ME Research - A New Development ONE event can change everything for ME. ONE small charity with ONE BIG Cause announcing it intended to get a rituximab trial project initiated in the UK when others said it couldn’t be...
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    IiME Conference Trailer for DVD

    http://www.investinme.eu/IIMEC11-news-0801.shtml 10 Years of IiME International Biomedical Research Conferences The IIMEC International Biomedical Research Conferences and associated Biomedical Research into ME Colloquiums (BRMEC*) have generated education about ME, increased knowledge amongst...
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    Institute of Food Research Takes On ChilliChallenge

    The heat is on for the Chilli ME Challenge with IFR Feeling hot? You might start feeling even hotter if you take up the Chilli M.E. Challenge. Started by four girls from Ireland, UK and USA, the aim is to spread awareness and raise funds for biomedical research for myalgic encephalomyelitis...
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    European ME Alliance Joins European Federation of Neurological Associations

    http://www.euro-me.org/news-Q22015-002.htm EMEA PRESS RELEASE - For Immediate Release 21 June 2015 European ME Alliance Joins European Federation of Neurological Associations EMEA: PRESS RELEASE – For Immediate Release The European ME Alliance (EMEA) joins the European Federation of...
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    Invest in ME International Conference 29 May 2015, London

    BRMEC5 Colloquium Maximum CPD Points "The Biomedical Research into ME Colloquium 5 has been awarded maximum 12 points for the event which occurs on 27th - 28th May in London. Clinicians attending both BRMEC5 and the 10th IiME International ME Conference 2015 - IIMEC10 - can now receive 18 CPD...
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    Matchstick Campaign for ME Awareness - Using Art to Raise Awareness of ME

    From Invest in ME (Research) http://www.investinme.org/matchsticks.htm Matchstick Campaign for ME Awareness Using Art to Raise Awareness of ME May 2015 Art has the power to inspire, to evoke reflection, to see things differently, to force change. An image can capture a thousand words...
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    Invest in ME International Conference 29 May 2015, London

    http://www.investinme.eu/IIMEC10-news.shtml New Conference Speakers Announced Two more speakers almost complete the IIMEC10 line-up. Professor Betsy Keller from Ithaca College, USA, has expertise in the two day CPET testing involving ME/CFS patients and has published research inidicating...
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    Eye Health for diagnosing ME/CFS?

    Dr Claire Hutchinson (Lecturer in the College of Medicine, Biological Sciences and Psychology at the University of Leicester) is speaking at the IIMEC10 conference in London on 29th May http://www.investinme.eu/index.shtml#presenters
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    Let's March On A MILLION!

    http://www.investinme.org/IIME-Newslet-1503-01.htm March 2015 Last month (February 2015) marked a major landmark in ME research, and Invest in ME’s history, with the milestone being reached of IiME’s supporters raising £500,000 –for biomedical research into ME. 2015 will mark the beginning of...
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    Invest in ME Press Release - 1/2 Million Reasons for Progress with ME

    Invest in ME (Research) Press Release - 1/2 Million Reasons for Progress with ME http://www.investinme.org/IIME-Newslet-1502-01.htm PDF version here INVEST in ME PRESS RELEASE: Agents for Change - ½ Million Reasons for Progress with ME For Immediate Release UK 21st February 2015 UK...
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    Invest in ME International Conference 29 May 2015, London

    IIMEC10 Keynote Speaker Announced "IiMER are delighted to announce the keynote speaker at IIMEC10 will be Professor Ian Charles. Professor Ian Charles will join the Institute of Food Research in May 2015 to lead the programme to develop the UK’s new Centre for Food & Health to be based at the...
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    IFR Advent Calendar

    The Institute of Food Research (IFR) in Norwich Research Park (NRP) have an advent calendar this month which is educational as well as festive - which, on each day during the run up to Christmas, will highlight the details of the science relating to each picture on the calendar. Today -...
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    10th International IiME ME Conference 29 May 2015

    IIMEC9/2014 - Mady Hornig, James Baraniuk, Maureen Hanson, Dan Peterson, Andy Kogelnik, David Kaufman IIMEC8/2013 - Dan Peterson, Andy Kogelnik, Rakib Rayhan, Linda Tannenbaum, Andy Kogelnik, Isabel Barao IIMEC7/2012 - Mady Hornig, James Baraniuk, Dan Peterson, Andy Kogelnik, Noel Rose...
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    New Invest in ME Project - The potential role of B cells and their products in ME/CFS Patients

    From Invest in ME September newsletter http://www.investinme.org/IIME Newsletter September 2014 2.htm and http://www.investinme.org/Documents/Newsletters/Invest in ME September Newsletter 2014m.pdf - "In the recent article produced for IiME by Dr Jo Cambridge [1] the status of the current work...
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    Is tolerance to psychobabble the biggest issue in medicine today?

    Not so. This is already being done. Scientists and researchers are changing because of the IiME conferences - and more importantly the research colloquiums. You are maybe unaware of what is being performed already - "Prior to the conference IiME organised the 4th Biomedical Research into ME...