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Check out this video. The last segment is about a lady who is doing much better about being treated with rituximab at the OMI in Silicon Valley.

That's positive. Wonder if it will be similar in NZ since we are a small country here too.

Never thought I would get so excited and for it to bring a massive smile on my face seeing Researchers in different countries having dinner together!! This is so nice to see!

Oh my oh my this is so exciting and gives hope.

I used to catch everything under the sun! People used to think I was exaggerating and so I kept pushing through, working despite having bad colds/flus and then my ME began and I haven't had a cold/flu for a year and a half. I have gone out a bit and been around people who are sick (my hubby had...

Thank you :-)

Hi guys I hope you don't mind me posting in this section, I searched for this study but couldn't find anything? Does anybody know when the results of the Haukeland Cyclophosphamide 40 person study will be published? I know it was due early 2017? :-)

I did the Lightning process late last year, as had heard of people I knew (not personally but through friends) who recovered. I was desperate, hopeful and did do some research. Obviously not enough, as I went ahead with it and it was terrible. Gave it a months go after the course ( putting the...

I just came across this link while googling Ampligen, quite unwell today so unsure if it will be helpful-only skim read it, but thought it may be useful...

Thank you Kati :)

I found their facebook page but unfortunately can't find this post for some reason? When was it posted?

Could someone post the link to this facebook post? I can't find it and keen to share it with a friend who lives in Queensland :-)

So awesome!! Go OMF!

Yes, especially if I am inside and it is busy! There is a nice rural cafe, near where i live, with a big outdoor dining area on a grass field, I find that a lot better than a busy cafe/restaurant.

Yes, I think the kind of thing you are describing is what I have has consistently since the symptoms of my CFS began about a year and a half ago. I have described it as feeling spaced out all the time, just not really there and feel i am almost in a movie sometimes. It is no fun. Is it part of...

Found that information in the "Purpose" section of this current Rituximab trial study record detail: https://clinicaltrials.gov/ct2/show/NCT02229942

My info is an observation :)

I find it so interesting this is the case!! I know for a fact I used to catch everything under the sun, and now I haven't had a proper cold or flu for over a year!! Would love to know the reasons or theories behind this occurrence!

I used to catch everything. My husband has been sick with colds and flus and I have caught nothing this past year. I have been sick for a year and two months.

Hi guys, I have been reading up online about the Rituximab trials and came across information where it says that Rituximab might be helpful in treating a subset of CFS patients who have a chronically activated immune system. Was wondering if anyone knew what kind of CFS is more likely to be...

Foam earplugs - makes sure I won't be woken and can have a full nights sleep :) Dry shampoo- for days when I am unable to shower Radio by my bed - to flick on when I am resting in bed and up to listening to something

Hi guys, I have felt constantly spaced out/ out of focus and constantly had slightly blurry vision/visual floaters since my CFS began (just over a year ago now). i know there is another thread about feeling spaced out but interested in more if others take anything for this? Had anybody had...

I can drive but no point really as driving somewhere (even 5 mins) would use my energy for the day.