• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. Vanessa_M

    Anyone tried folic acid for overmethylation?

    He doesn't have a clinic just a research institute, he is not treating or consulting with any patients directly. He trains physicians in his methods, and is certified to do so by the American Medical Association. I don't think anyone could do his protocols without working through a...
  2. Vanessa_M

    Anyone tried folic acid for overmethylation?

    @Jonathan Edwards Ok - If you have reviewed a number of his publications and it is not up to your standards, then fair enough. I trust the practitioners I work with, and if they are getting good results with his protocols then I think it is worth giving it a shot. My naturopath did reverse...
  3. Vanessa_M

    Anyone tried folic acid for overmethylation?

    @Jonathan Edwards Here is an article written by a psychiatrist who has seen impressive results in her clinical practice using his protocols. She mentions that Walsh has trained 500 physicians already and is certified by American Medical Association to provide this training. The majority that...
  4. Vanessa_M

    Anyone tried folic acid for overmethylation?

    @Jonathan Edwards From my perspective all I was doing here was sharing a resource that I felt was relevant to questions asked about over methylation - NOT pretending to be any kind of authority. I've seen far worse offeses in methylation threads on this site, where members are directly giving...
  5. Vanessa_M

    Anyone tried folic acid for overmethylation?

    How do you know it is not serious science, please explain. It is something I am investigating for my own reasons (I have a complex chronic illness - with a mental health component) and was sharing because you had asked the question. Walsh Research Institute is a non-profit, so as far as I can...
  6. Vanessa_M

    Anyone tried folic acid for overmethylation?

    I agree there are a lot of methylation threads on this forum that are incredibly confusing, and completely unclear where people are getting their information. Seems like a lot of people are referencing this guy Fredd as a source, or Dr. Lynch. I also think there a lot of people are just...
  7. Vanessa_M

    Anyone tried folic acid for overmethylation?

    Hi Jonathan, I think this is a question a lot of people have. There are a lot of different perspectives out there on overmethylation /undermethylation and I think there are practitioners (who have gained a certain level of popularity and presence on the internet) who are exclusively focused on...
  8. Vanessa_M

    Anyone tried folic acid for overmethylation?

    This was a great response. I think a lot of people in other threads are confusing overmethylation with this methyl overburden issue that may result from taking too many supplements. They don't realize that there are a number of people who are overmethylated to start with (if we go with Walsh's...
  9. Vanessa_M

    Fibromyalgia a sleep disorder? A recovery story

    Thanks for commenting :) From what I've read about the medications like amitriptyline, I think it may only a subset of people that really respond or do well from it, so maybe I just lucked out. My specialist really impressed upon me how sleep loss can affect cognitive functioning, mood, energy...
  10. Vanessa_M

    Fibromyalgia a sleep disorder? A recovery story

    Well, I have been doing that. I joined here because there were a select few threads that were relevant to my interests and experiences and have been following those closely. This forum is quite huge, so I doubt I'll be spending a lot of time reading a lot of the CFS related threads, because it...
  11. Vanessa_M

    Fibromyalgia a sleep disorder? A recovery story

    Hi there, Havent heard of those tests, but I think you were wise to do more than one to be sure. Reliability of any given test is always up for debate. I hear people say hair mineral testing is not reliable, but I also hear standard bloodwork or urine is not either - because it doesn't...
  12. Vanessa_M

    Fibromyalgia a sleep disorder? A recovery story

    No, it didnt take several years. I was a mess and non functional up until the point that I did that 8 month intensive healing period, which I described above. I took a few months to start noticing the pain dissipating. More sleep really made a difference for me but yes, I also attribute the...
  13. Vanessa_M

    Patients Say Fibromyalgia Drugs Make Things Worse, Rest is Best

    Hmmm interesting. It seems like a lot of GP's are quick to recommend various new antidepressants to help with fibromyalgia, and I've been skeptical about this. I can report that I experienced major benefit from taking Amytriptaline for one year, one of the older school tricyclics. I...
  14. Vanessa_M

    Hair Mineral Testing

    Wow, okay this really sounds promising!! Please do send them. I would like to find a way to get the lead out of my system without having to do chelation, so that is amazing if B2 helps with that. I will share this info with my friend who has CFS - similar results, and her liver enzymes were...
  15. Vanessa_M

    Copper Dumping

    My naturopath had advised me to take things more gradually, and to back off of higher doses if this kind of worsening took place. She told me that a copper dump could be experienced as worsening psychiatric symptoms and nervous system symptoms, hypersensitivity etc... I have been taking zinc...
  16. Vanessa_M

    Copper Dumping

    I was told that zinc forms an essential component of the Metallothionein protein (which can carry copper and other metals out of body by binding to it) - so if one is deficient in zinc, you may also not have sufficient metallothionein proteins to regulate the copper in your system and transport...
  17. Vanessa_M

    B-12 - The Hidden Story

    Was anyone else other than Fred cured of their ME/CFS from taking the right B12? I am asking, because a close friend of mine has CFS and she has struggled to find the right B12. She got worse on the one she was trying - but she also has SIBO. Apparently she found an article that explained...
  18. Vanessa_M

    Hair Mineral Testing

    Ok thanks, this is VERY helpful to hear. I've heard people make the argument that it has been debunked, but then people don't share links to where they found this out. And when they do, it is usually that 1980's study. I think if I do a follow up test, I will choose the ARL labs next time...
  19. Vanessa_M

    Copper Toxicity

    Hi there, which methylation protocols are you following? Have been looking to connect with others that have tested positive for copper issues, plus who also have found methylation issues. I've been following Dr. William Walsh's work, he is connecting copper overload to overmethylation (in...
  20. Vanessa_M

    B2 I love you!

    @brenda Is there any way to accurately test for B2 defciency? You mentioned the OAT - is this reliable? Also, what patterns would appear on a hair element test, to indicate B2 deficiency? Me and a friend both had hair testing done - we both appeared to have copper overload, low zinc...
  21. Vanessa_M

    Hair Mineral Testing

    Hi there, I've heard people say this before, and I would like to evaluate this for myself. Can you provide some of the sources you a referring to when you say that 'hair analysis has be thoroughly discredited'. Who has done the discrediting and debunking of this?? I know there was one study...
  22. Vanessa_M

    Hair Mineral Testing

    I had a hair element test done with Rocky Mountain Analytical. I'd be willing to submit my reports to you, if you are still doing this research. I've only read through part of this thread so far, because it is quite long. I have an autoimmune condition, and secondary fibromylagia (but...
  23. Vanessa_M

    Fibromyalgia a sleep disorder? A recovery story

    @barbc56 @Kina I want to share too, that a lot of my own research has been focused around autoimmune disease, mental health, the microbiome, and nutrient therapeutics - and not specifically or exclusively on FM/CFS treatments or science. That is my personal bias and area of interest anyway...
  24. Vanessa_M

    Fibromyalgia a sleep disorder? A recovery story

    I certainly was not trying to antagonize anyone or create resentment or defensiveness by my post, but I can see now that it would be frustrating if many people here had already tried some of the things I'm talking about. I was not aware that there could also be posts by internet shills, trying...
  25. Vanessa_M

    Fibromyalgia a sleep disorder? A recovery story

    Ok yes, I hear what you are saying. I genuinely thought I was presenting an angle that maybe some people had not considered before and I am fairly new to this forum, and was curious to see if anyone else had had success with sleep recovery, diet and other methods. The doctor I saw was working...
  26. Vanessa_M

    Fibromyalgia a sleep disorder? A recovery story

    Ok got it, I was not aware this type of retraining had come under such heavy criticism. But that being said, I am going to see what happens with my close friend. She is trying it, and I may give it a shot too if she gets good results. We both know that we have trauma related patterns/programs...
  27. Vanessa_M

    Fibromyalgia a sleep disorder? A recovery story

  28. Vanessa_M

    Social Anxiety, Panic - Methylation, Overmethylation, Histamine, Copper, Pyroluria

    @matt3n And thanks for explaining who Fred is, that was helpful! I was having a hard time understanding what other people were talking about. It seems like a lot of people have had the genetic testing done, and it just leads to a crazy amount of confusion - I'm not going that route The...
  29. Vanessa_M

    Social Anxiety, Panic - Methylation, Overmethylation, Histamine, Copper, Pyroluria

    @matt3n Thanks for this thoughtful reply and explanation of what CBT is about. That is helpful to hear that this can be a strategy that can target some of the other baggage (unhelpful thoughts, beliefs etc...) that comes with being chronically sick and can just keep a person stuck, and so it...
  30. Vanessa_M

    Fibromyalgia a sleep disorder? A recovery story

    @barbc56 Hello :) Thanks for sharing your experiences. This is such a brutal condition, I fully sympathize with what you describe. I wanted to share this, because I just want people to know that its not impossible to recover. What I share here may not be the answer for everyone, but it is...