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So.. is there any doctor/researcher out there that is going to give this a try? Markov says he wants to teach doctors how to do this and open franchises all over the world. Maybe someone should take him up on it. Goto ukraine, learn how it's done, look through the records.. and if it looks...

Agreed

Bayer refused to give suramin to dr. naviaux for the trial. Looks like no trial this year. So disappointed.. Also disappointed it didn' work for the few people who tried it. There is no hope

Another day, another (million) dollar. ☺

They convert right away

Btw - this is almost 10% of the entire pineapple fund.

Good thing they didn' keep the bitcoin last time. It went down so much. Too bad they won' keep the bitcoin this time either. It will probably go up so much. (Actually, noone knows what' going on with bitcoin atm. Crazy bitcoin)

i really really wish he would get some money to do the trials that he wants. the second autism trial fell apart the first cfs/me trial didnt happen the drug company that is going to make suramin will take 2 years to do it im so glad he joined ron davis's team at the OMF, but their grant got...

bob posted a post about this therapy a year ago (for auto-immune diseases) http://forums.phoenixrising.me/index.php?threads/reengineering-chimeric-antigen-receptor-t-cells-for-targeted-therapy-of-autoimmune-disease.45514/

i found this article about a new type of immunotherapy, that re-engineers chimeric antigen receptors t-cells, and just got approved by the FDA for acute lymphoblastic leukemia, and also the back story behind it. i dont know if this field of research could be useful for me/cfs, but if it is, i...

any other mitochondria test out there besides Myhill's?

what "widely accepted" test is there for mitochondrial function? where can you get a test?

i didnt think you could do that yet. how accurate is that?

what happened last year? did we win anything?

i dont see any "oxymatrine" in equilibrant. i just see herbs and mushrooms. where is it?

will it go to the same people, who told the lyme people, to piss off a few days ago? http://forums.phoenixrising.me/index.php?threads/uk-gov-response-to-lyme-testing-petition.44805/

i know mitoq is the best, but why? is it simply more absorbable? if so, why not just take large dose of coq10 ubiquional? you can get it cheap here: Ubiquinol-10 improves autonomic nervous function and cognitive function in CFS

i tried coq-10, even took high doses, it did nothing. i even took pqq, also nothing. dont these treatments work? will ron davis invent new treatments? i didnt know there was a way to test mitochondria, are these tests accurate? how come everybody has 25%? i wonder if there are any healthy...

good job! thanks

no quebec?

its the same people

copy and paste terry.lake.MLA@leg.bc.ca, judy.darcy.mla@leg.bc.ca, edmonton.glenora@assembly.ab.ca, cypress.medicinehat@assembly.ab.ca, calgary.mountainview@assembly.ab.ca, he.minister@gov.sk.ca, minister.rrhe@gov.sk.ca, saskatoonmasseyplace@ndpcaucus.sk.ca, stbchmla@mts.net...

i would like to see this in the news headlines: new study shows how to make "still very sick" look like "recovered"

small summary: the original Staphypan® vaccine contained the following alpha-toxin, lipase, clumping factor, fibrinogen-binding protein (antigen), cell-wall components (antigen?), entire cell walls (antigen), enterotoxin A, enterotoxin B, enterotoxin C, toxic shock syndrome toxin 1...

$750,000, then $1.5 million, now $5 million?? i dont think patients should be funding studies like these. we should only be funding small studies, about things that we know will work, to prove that they do. so that we can get certain treatments approved and pilot larger studies and show where...

i dont understand this. this seems to be helping psychiatric symptoms, right? how do you know the improvement is real, and not just statistical improvement on non-existant symptoms? what is a CPRS scale and is it relevant?

No Funding No Specialists No Hope

mary, you are awsome! thanks for doing this :)

you may want to try the "impact study" from CAMH. it will tell you which psychiatric meds you can take. http://impact.camhx.ca/en/home.php