• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. M

    Dr Igor Markov Says ME/CFS Is Caused by a Bacterial Dysbiosis in the Kidneys, and Says Autovaccine Therapy Cures 93% of ME/CFS Cases

    So.. is there any doctor/researcher out there that is going to give this a try? Markov says he wants to teach doctors how to do this and open franchises all over the world. Maybe someone should take him up on it. Goto ukraine, learn how it's done, look through the records.. and if it looks...
  2. M

    OMF-funded research: T cells and molecular immunology

    Agreed
  3. M

    How can we help accelerate Dr Naviaux's ME/CFS Suramin trial?

    Bayer refused to give suramin to dr. naviaux for the trial. Looks like no trial this year. So disappointed.. Also disappointed it didn' work for the few people who tried it. There is no hope
  4. M

    Pineapple fund--donation to OMF increased to $5 million!

    Another day, another (million) dollar. ☺
  5. M

    Pineapple fund--donation to OMF increased to $5 million!

    They convert right away
  6. M

    Pineapple fund--donation to OMF increased to $5 million!

    Btw - this is almost 10% of the entire pineapple fund.
  7. M

    Pineapple fund--donation to OMF increased to $5 million!

    Good thing they didn' keep the bitcoin last time. It went down so much. Too bad they won' keep the bitcoin this time either. It will probably go up so much. (Actually, noone knows what' going on with bitcoin atm. Crazy bitcoin)
  8. M

    Naviaux at TACA 2017 - Video

    i really really wish he would get some money to do the trials that he wants. the second autism trial fell apart the first cfs/me trial didnt happen the drug company that is going to make suramin will take 2 years to do it im so glad he joined ron davis's team at the OMF, but their grant got...
  9. M

    Novartis to Charge $475,000 for $20,000 Cancer Cure Funded by Taxpayers and Charity (CAR-T)

    bob posted a post about this therapy a year ago (for auto-immune diseases) http://forums.phoenixrising.me/index.php?threads/reengineering-chimeric-antigen-receptor-t-cells-for-targeted-therapy-of-autoimmune-disease.45514/
  10. M

    Novartis to Charge $475,000 for $20,000 Cancer Cure Funded by Taxpayers and Charity (CAR-T)

    i found this article about a new type of immunotherapy, that re-engineers chimeric antigen receptors t-cells, and just got approved by the FDA for acute lymphoblastic leukemia, and also the back story behind it. i dont know if this field of research could be useful for me/cfs, but if it is, i...
  11. M

    Mitochondrial and Energy Metabolism Dysfunction in ME/CFS — Myhill, Booth and McLaren-Howard Papers

    any other mitochondria test out there besides Myhill's?
  12. M

    Mitochondrial and Energy Metabolism Dysfunction in ME/CFS — Myhill, Booth and McLaren-Howard Papers

    what "widely accepted" test is there for mitochondrial function? where can you get a test?
  13. M

    Tracking my Heart Rate Variability (HRV)

    i didnt think you could do that yet. how accurate is that?
  14. M

    2016 Aviva Contest--Action CIND Competing for $100K for ME/FM Research in Canada

    what happened last year? did we win anything?
  15. M

    Much worse after short course of Equilibrant

    i dont see any "oxymatrine" in equilibrant. i just see herbs and mushrooms. where is it?
  16. M

    UK-only petition hits 10,000 target & still rising - government must now respond! Still time to sign

    will it go to the same people, who told the lyme people, to piss off a few days ago? http://forums.phoenixrising.me/index.php?threads/uk-gov-response-to-lyme-testing-petition.44805/
  17. M

    Ron Davis at San Francisco rally: very close to a biomarker, looks like a mitochondrial problem

    i know mitoq is the best, but why? is it simply more absorbable? if so, why not just take large dose of coq10 ubiquional? you can get it cheap here: Ubiquinol-10 improves autonomic nervous function and cognitive function in CFS
  18. M

    Ron Davis at San Francisco rally: very close to a biomarker, looks like a mitochondrial problem

    i tried coq-10, even took high doses, it did nothing. i even took pqq, also nothing. dont these treatments work? will ron davis invent new treatments? i didnt know there was a way to test mitochondria, are these tests accurate? how come everybody has 25%? i wonder if there are any healthy...
  19. M

    Canadian Provincial Health Contacts for Advocacy Work

    good job! thanks
  20. M

    Canadian Provincial Health Contacts for Advocacy Work

    no quebec?
  21. M

    Canadian Provincial Health Contacts for Advocacy Work

    its the same people
  22. M

    Canadian Provincial Health Contacts for Advocacy Work

    copy and paste terry.lake.MLA@leg.bc.ca, judy.darcy.mla@leg.bc.ca, edmonton.glenora@assembly.ab.ca, cypress.medicinehat@assembly.ab.ca, calgary.mountainview@assembly.ab.ca, he.minister@gov.sk.ca, minister.rrhe@gov.sk.ca, saskatoonmasseyplace@ndpcaucus.sk.ca, stbchmla@mts.net...
  23. M

    GETSET - Graded Exercise Therapy guided Self-hElp Treatment (GETSET)

    i would like to see this in the news headlines: new study shows how to make "still very sick" look like "recovered"
  24. M

    Staph vaccine to treat CFS??

    small summary: the original Staphypan® vaccine contained the following alpha-toxin, lipase, clumping factor, fibrinogen-binding protein (antigen), cell-wall components (antigen?), entire cell walls (antigen), enterotoxin A, enterotoxin B, enterotoxin C, toxic shock syndrome toxin 1...
  25. M

    New Microbe Discovery site! Columbia CII need $5M. Our researchers need funding.

    $750,000, then $1.5 million, now $5 million?? i dont think patients should be funding studies like these. we should only be funding small studies, about things that we know will work, to prove that they do. so that we can get certain treatments approved and pilot larger studies and show where...
  26. M

    Staph vaccine to treat CFS??

    i dont understand this. this seems to be helping psychiatric symptoms, right? how do you know the improvement is real, and not just statistical improvement on non-existant symptoms? what is a CPRS scale and is it relevant?
  27. M

    #MillionsMissing need feedback on DC slogans/chants

    No Funding No Specialists No Hope
  28. M

    Petition for $100m/year in ME/CFS research funding gets 30,000 signatures and counting

    mary, you are awsome! thanks for doing this :)
  29. M

    What is least damaging med for depression, panic

    you may want to try the "impact study" from CAMH. it will tell you which psychiatric meds you can take. http://impact.camhx.ca/en/home.php