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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. J

    B-12 - The Hidden Story

    @Bree17 I didn't do well on methylfolate either. Just recently I decided to try folinic acid and like quite a few on here do very well on it. I have source naturals megafolinic cut it in quarters and put the quarter between gum and cheek. The total anemic feeling like a massive void inside and...
  2. J

    LED red intranasal light therapy

    @perchance dreamer are you still experiencing the mental benefits by using the VLGamma? @raghav what a shame sounded so promising. I have found quite a few things that have helped my health but they usually prove temporary. It seems the body tends back toward the lower baseline.
  3. J

    PEMF device experiences

    @Deltrus I am looking into the ICES device. Do you think it's a worthwhile investment based on your experience? Did you find a way to get long term relief from your symptoms by using the ICES?
  4. J

    The Undetectable Infection

    Roonie I have done nowhere near all of Elphs suggestions but the following is what have been up to including some of my own stuff: - Showering with betadine or chlorhexidine and rotating on a nightly basis. Within a few minutes I feel a different person. I also spray my bed each day with either...
  5. J

    The Undetectable Infection

    Its been over a month since I have adopted some of elph68's suggestions and it is by far the best month of health I have had since I crashed in 2001. I sleep much better. For the 1st week particularly I noticed I wasn't hyperventilating when I woke up. My prostate area is a lot more comfortable...
  6. J

    The Undetectable Infection

    But still struggle big time with cognitive issues
  7. J

    The Undetectable Infection

    Yes I am very interested too let us know @Elph68 I got real crook after some surgery to open the airways in 2001 and got some real bizarre nose symptoms and a terrible brain fog like my head was full of some awful virus. The worst of the nose symptoms went away last year after I applied a...
  8. J

    Transdermal B12 oils

    Gary I just want to add it is crazy when we hope that our health problems have been caused by mercury poisoning - I suppose the reason there is a way to detox and get it out and others have gotten better. A big thanks for sharing me your dosages on the Core 4.
  9. J

    Transdermal B12 oils

    Its worth keeping in mind that Cutler believes ability to detox mercury naturally without the use of chelators varies 20 fold amongst different individuals. So for some a couple of silver fillings may be fine whilst for others catastrophic.
  10. J

    Transdermal B12 oils

    Somewhere earlier in this thread ahmo has had success with her own transdermal diy b12 and whilst messier from memory it had similar potency to these oils. Gary that is very interesting - seems to indicate varying levels of detox abilities regarding mercury. Since your body has removed a...
  11. J

    Transdermal B12 oils

    I have only tried the b12 oils in various forms the past few weeks but have noticed the same as Gary since taking the methyl only in the early morning the past week. Normally I wake as though have been smashed by a truck. The past week I awake at 3am when terrible anxiety sets in (as have...
  12. J

    B-12 - The Hidden Story

    @Freddd you mention veggie folates cause problems for you - do you or anyone have a list of veggies that cause problems ??? does one exclude all veggies in our cases? I do notice I pay dearly if I have veggies in terms of energy and function but haven't really documented it. Interested in...
  13. J

    Copper deficiency....?

    Thanks @CCC. Has your son had big changes in his wellbeing overall with copper supplementation? He hasnt had the need obviously to scale upward like Freddd. My peripheral neuropathy is gone with this copper supplementation. My memory and brain so much better. Robbins seems to only recommended...
  14. J

    Copper deficiency....?

    Really glad you guys are talking about this. Just started taking copper this week and noticing my personality coming back. Crazy laughter and what I would term fire in the belly. Otherwise using freddds words I am completely flattened. Will also check out this Morley Robbins and his ideas on...
  15. J

    Quicksilver scientific Intestinal metal detox (IMD)

    Hi Paul, Just to let you know have done a few rounds of the cutler protocol and have noticed some real improvements already and some days feel like pre illness. After the first round my perennial itchy scalp subsided. I am taking a load of supplements as support I think the mercola lypo vitamin...
  16. J

    Quicksilver scientific Intestinal metal detox (IMD)

    Many thanks Paul. I ended up going the Dmsa route after reading some stuff by Dave Hammond " I am not convinced of the safety of taking ALA once a day, as seems to be the case with Chris Shade’s protocol. The effects of redistribution may not be apparent for many months. And I haven’t seen much...
  17. J

    Quicksilver scientific Intestinal metal detox (IMD)

    Btw have you tried boosting methylation or the freddd protocol??
  18. J

    Quicksilver scientific Intestinal metal detox (IMD)

    Yep agreed man re sinus issues mine compounded by a surgeon who experimented on my nose and the whole lot feels destroyed unless I experience no allergies which is rare. For example I will have the urge to sneeze for hrs on end but can't sending me nearly insane. Hence my urgency in trying to...
  19. J

    Quicksilver scientific Intestinal metal detox (IMD)

    Thanks Paul. No I haven't. But I do have massive anxiety that i believe stems from inflamed sinuses. I can keep it under control by doing sinus rinses and other protocols. @Hip thinks inflammatory cytokines in the sinuses being so close to the brain impacts it. I do feel like my brain is on...
  20. J

    Quicksilver scientific Intestinal metal detox (IMD)

    @PaulK I am doing the same as you taking the imd by itself (with a bit of vitamin c powder - gets it closer to metalsweep). I have also noticed improvements in the gut - a drastic reduction in runny stools, but nothing on the brain fog front. I do need to improve my diet though and that may...
  21. J

    B-12 - The Hidden Story

    @musicfan50 I have found the MacGill big 3 back exercises extraordinary for lower back pain
  22. J

    B-12 - The Hidden Story

    Have been getting strong effect by taking the potassium about an hr before the methyl b12 the past few days. It is weird half a day will have complete calm and stillness of mind then will experience the feeling of being wired like plugged into 120v with severe sinus pain especially where I was...
  23. J

    Resignation

    I was going to suggest something similar to Stretched and complements that approach. I had insomnia for years. I know the place you are in DD it is excruciating. I use to smack my head against the wall sometimes in the pure frustration I simply wanted to die. I use to get stressed at the...
  24. J

    B-12 - The Hidden Story

    Thanks Ahmo, I am a fellow Aussie (sandgroper) I have been reading your insightful posts and am giving serious thought to your metal detox protocol following removal in 2008 of 8 amalgams I had. I am trying these things for the reason you noted somewhere that is to be still, calm and once again...
  25. J

    B-12 - The Hidden Story

    Have been on the protocol for a few weeks. Most of my adult life I have suffered from fatigue. After some huge stress in my life in 2001 and then surgery my entire body seemed to collapse further the following were/are my symptoms following these events: - lose balance when walking -...
  26. J

    Completely eliminated my severe anxiety symptoms with three supplements!

    From what I gather it is best to maintain the natural arch in the back. When we slouch and dont maintain upright posture our lower rib cage pinches the hip and the result is pinched nerves and PAIN. I write this as sipping a latte and slouching in a nice leather lounge chair in a cafe...
  27. J

    Completely eliminated my severe anxiety symptoms with three supplements!

    Cheers gjack will do. Doing my iherb order tonight so fingers crossed that these supps can help with my anxiety. Saw a gp yesterday that specialises in laser acupuncture - complete relief for a few hrs woke up this morning in a state of pain again. Man this body is painful but I guess most...
  28. J

    Completely eliminated my severe anxiety symptoms with three supplements!

    I should also add one must wonder how many people have mental illness due to a sinus condition. The best ENT where I live years ago diagnosed me with vasomotor rhinitis. He then asked if the back of my head, neck etc feels tight I said yeh. He prescribed me low dose endep. That was quite...
  29. J

    Completely eliminated my severe anxiety symptoms with three supplements!

    Really interesting to have found this topic. I have suffered anxiety most of my life and it is completely derailing. I always thought it was mental but started to realize it was physiological. Due to a nasal injury a doc prescribed me avamys steroid spray more out of hope. The first day I...