• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear phoenix I wrote reply countrygirl - I did email you did u receive it. I hope all are trying to keep well. In a way I feel I let down m.e community for not getting my case into the publicity domain. Recently had chat with Dr hyde. He OK. It's a shame I cantbget to see him. I still waiting...
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear m.e community I Hope you are keeping as well as you can. I'm still in the uk. I am still being medicated with the wrong medicine. Psychiatric meddling and skewing arguments. What is the theory of m.e by psychiatrists. There are enteroviral theory of m.e I suppose there is psych theory...
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear m.e community I have seen the new nice guidelines on m.e have been released. I am not able to read through very long. Are poeple happy or not happy with this document. I hope to see my pots physican this week. I hope to discuss the situation i never should have been through (psychiatry...
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear community Does anyone know best person in uk gov to discuss m.e. does anyone contact the all parliamentary group for m.e. if you not in their consituency they wont talk. Does anyone know any m.e contacts in gov. Also any advicacy groups. I remember many years ago the activist group with...
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear pheonix Thank you for help. I raised question if people with m.e have raised crp. Also on top of this a raised plasma viscosity. I cant find much on me pedia so just wondering. I hope people keeping well. Best wishes.
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear phoenix Yes i have had the bowel test and it came back with inflammation refarding that test. Perhaps it is cardiovascular illness associated with injurous clozapine. There is alot of info on this. I hope countrygirl is ok. Ive not heard. Hope she well. Best wishes
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear members I am writing to update. Reading some of posts above about paediatricians and m.e sectioning. I should be fighting my corner with regards psychiatry and m.e and thus it may help the others in menral hospitals. I try and get publicity but no hope. All newspapers do t want to know...
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear phoenix I hope for a better new year to all. I am trying to get off clozapine slowly. The psychos are still trying to stop me. They cant apparently. Im still suffering from psychosis schizophrenia. I am unsure how tp explain what 11 yrs of antipsychotics such as clozapine (3yrs) done to...
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear phoenix My troubles continue. Im still trying to get off clozapine and what its done to my ans and cns. Doctors belittle ypur condition. Im in trouble with dysautonomia. With threats of losing housing and homelessness threat by psychiatrist rather than listening to my situation regatding...
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear group As a matter of interest has anyone seen gean munroe regarding lyme. I was bitten by tick in oban scotland yr before my serious illness. Also anyone got better taking meds against this and also mycoplasma fermentans (incognitus). Prof gartth nicolson is the good expert. When taking...
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear community I have been struggling recently.....the start of possible syrogens again and fatigue. My endicrine results low below normal.....a letter came back my results dismissed by endocrinllogy. Clozapine?!
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Yes clozapine must be a factor in frequent pneumonia. I should have sorted issue out in hospital. I feel silly..... i cannot cope with there problem....to much risks if i come of clozapine. They havent written a summary report of what ive said and done and my so called schizophrenic behaviour...
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear phoenix Just got over 4th pneumonia and was admitted to hospital. Four days of iv antibiotics.....and get some food down me...... Bit if concern....regarding why i get pneumpnia. Will update soon....b x
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear all I am still on clozapine....developed pneumonia again 3rd time inthis year...im miserable and distressed mental breakdown. They wouldnt put me hospital.
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear m.e community. Thank you for help. Please does anyone have name of all parliamentary group leader. I wish to write about big business re: m.e. My case needs mentioning in parliament. Thanks for help.
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Thank you for help.. please can you help. I have quitte serious neurological signs...eyes, reflexes ataxia dysautonomia disorientation headaches etc but a normal mri shows nothing wrong. It makes you feel lost..... i dont feel its accurate. Bsck many yrs back i had a small bleed on brain a...
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear all....i am worried about mri and m.e. I have been diagnosed with several disorders of brain such as cerebellar syndrome from queens square plus other issues such as temporal lobe problems but mri is normal. Anyone have same issues. I am suffering severe exhaustion - horrible.
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear support I thought id inform you whats happened. Ive had mental nervous breakdown. I feel no hope anymore. Im still on clozapine. I need help and they might put in hospital again. Clozapine and m.e and dysautonomia. What are mess im in. And i used to work for a global government corp. I...
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Hi .... I need to come off this medicine. For psychological problems associated with cfs ..m.e I do get down but I do not need antipsychotics. They have caused so much trouble....for example historically I should never have been on antipsychotics.....I had a friend 10yrs ago who gave me info on...
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear support I went down with double pneumonia about 3-4 months ago. After 10 days I was put in cygnet taunton. I was so I'll I could barely cope...I couldn't really get much help... The doctor did question me about m.e. he said do you believe you have m.e. Anyway I don't really want to...
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Anyone tried prystigmine bromide. Any clues if you have...
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear all thank you for help. I'm in complete exhaustion state.
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Dear countrygirl and all I posted Something on members. Just to let u know I have a brilliant letter from a kind doctor.
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    countrygirl how do you get in the members page . I'm off my cto....
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Further to the above I have been told .that my continuing physical symptoms represent passitivity phenomenon and delusion beliefs in the context of undertreated paranoid schizophrenia. Oh well more trouble.
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    A quick update- it's funny and not funny. I have forced to take lamictal for schizophrenia. It is black label drug. Highest danger by fda. It is in cljnicsk trials I believe. I will write about what had been said about me. I have a tribunal next week. Just for starters a cfs specialist saw me...
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    I posted Something on members section.
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Has anyone had issue with glycine antibody issue....it is new finding I believe an indicator of pem.
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    Countrygirl- did you read my post at members forum regarding my notes. Psychos written somewhere my m.e cfs is a manifestation from psychiatric illness. Here we go again....
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    brian nicholson detained in psyschiatric unit with me cfs for 3 years

    You are correct...the antipsychotics have caused eating disorder...I require help....