• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. K

    Does anyone use self directed care for caregivers/home health aides?

    Hi! I posted this a while ago and definitely have smoothed my program out since then, but would still love to compare notes if you don't mind. I think we may be rarities. I've met very few people with cfs/me with home care at all, and fewer with self directed care. I'm currently struggling...
  2. K

    Does anyone use self directed care for caregivers/home health aides?

    I am trying to figure out a good plan for last minute coverage, and have a few questions for someone who has worked with self-directed care before Thanks!