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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Hildergard

    Country Life B12 dibencozide has folic acid in it. Is this a problem?

    I'm taking methylfolate too. 800 mcg of solgar metafolin.
  2. Hildergard

    Country Life B12 dibencozide has folic acid in it. Is this a problem?

    I can't believe I was too stupid to notice.
  3. Hildergard

    Country Life B12 dibencozide has folic acid in it. Is this a problem?

    Oh for god's sake.
  4. Hildergard

    Country Life B12 dibencozide has folic acid in it. Is this a problem?

    After waiting weeks for the adenysolcobalamin to arrive it has folic acid in it. Is this going to be a problem?
  5. Hildergard

    Short term relief from B12 shots - real relief or placebo?

    Thanks @Fredd. I'm taking 2 x 99mg chelated potassium tablets a day but maybe I'll increase it and see what happens.
  6. Hildergard

    Short term relief from B12 shots - real relief or placebo?

    Thanks for that, it makes more sense now. I've got some methylfolate on the way soI'll try that. I couldn't get L-carntine fumarate on the high street so I guess I'll have to order that online too. I'm still quite attached to the hydroxo because it gives me clear and measurable relief. I've just...
  7. Hildergard

    Short term relief from B12 shots - real relief or placebo?

    See @Fredd, I don't understand a word of that. I still don't know what co-corelates are or what this dreaded deadlock quartet is. I think this is a great protocol for people who have scientific understanding but I don't so I only understand about one in five words. I've been taking a tonne of...
  8. Hildergard

    Short term relief from B12 shots - real relief or placebo?

    I go for regular kinsesiology and he taught me to do it once but I tend to leave it to him most of the time.
  9. Hildergard

    Short term relief from B12 shots - real relief or placebo?

    Truth eh? Great, where can I buy that? :D
  10. Hildergard

    Short term relief from B12 shots - real relief or placebo?

    Thanks again ahmo - I appreciate your input. I'm waiting for the supplements to arrive but in the meantime I have 10 x 1ml hydroxo injections. I'm going to use them to get back to where I was after the loading doses and see what happens if I switch over to the supps. I've been taking methyl...
  11. Hildergard

    Short term relief from B12 shots - real relief or placebo?

    Is it that hydroxo is useless for long term relief? Because I felt amazing with the six shots of hydroxo that I had.
  12. Hildergard

    Short term relief from B12 shots - real relief or placebo?

    Thanks ahmo. I wish I'd known about the country life dibencozide before I ordered it.if I add in all the supplements at the beginning that I didn't know about then this 'experiment' is going to cost me well over a hundred pounds. I guess I'll just try the ones I've got coming and see what...
  13. Hildergard

    Short term relief from B12 shots - real relief or placebo?

    Thank you. What does this mean? "frequent mb12 deficiency co-correlate" And how does that list relate to what I should take?? It's all very confsing. I'm starting to wish I hadn't ordered various supplements and just bought hydroxo injections. It's great that there's all this information but...
  14. Hildergard

    Short term relief from B12 shots - real relief or placebo?

    @Fredd "Did you find the list where I match those lists up to AdoCbl, MeCbl and other deficiencies in color coding?" No, I keep looking but there's so much information I feel overwhelmed. Do you mean the six levels of methylation blockage? If so I really don't understand it. I'm not stupid by...
  15. Hildergard

    Short term relief from B12 shots - real relief or placebo?

    I don't really understand any of that. I'm an artist- could you maybe draw me a picture? :redface: I'm taking quite a lot of methylcobalamin anyway. Yesterday I took 2 x Solgar 5000 mcg and 2 x Jarrow 1000 mcg because I was drinking quite a lot of alcohol. I seem to be able to tolerate loads of...
  16. Hildergard

    Jarrow Methylcobalamin - any good?

    :D:D Thanks. Happy new year to you :)
  17. Hildergard

    Jarrow Methylcobalamin - any good?

    Thanks. Does that mean I should take 5 of them a day?
  18. Hildergard

    Jarrow Methylcobalamin - any good?

    Sorry for starting a new thread but I couldn't decide where to tag this onto.. I'm in the process of buying the supplements I think I need to start Fredd's protocol but I thought I read somewhere that people had decided that the Jarrow formula may not be working properly anymore. Have I...
  19. Hildergard

    Short term relief from B12 shots - real relief or placebo?

    @ahmo - thanks for that. I'll give it a read. @Sushi - thanks for the tip. @Fredd - I 'think' I'm starting to understand. I've finally got my blood test results back (no IF yet but like you say I think it won't be definitive) Reading these results with everything stated as 'normal' makes me...
  20. Hildergard

    Short term relief from B12 shots - real relief or placebo?

    Hi - thanks for the replies. Fredd, I have to admit that I read your protocol but no matter how many times I read it I just feel like there's bees in my head. I'm dyslexic so it takes me ages to work out written informaiton. I'll keep trying though. Sushi - it's Hydroxo. I'm having an intrinsic...
  21. Hildergard

    Short term relief from B12 shots - real relief or placebo?

    Alo, I've gained about 8lbs since I started the loading shots. Is that normal??
  22. Hildergard

    Short term relief from B12 shots - real relief or placebo?

    Hi - I managed to convince my GP to try giving me B12 shots. I had the six loading doses (last one 11 days ago) and was expecting her to follow the protocol for people with neurological involvement - i.e 1mg every other day till neurological symptoms stopped improving then once every two months...
  23. Hildergard

    Methylation confusion - should I stop the B12?

    When it first came back raised I thought 'Hurrah! They'll find out where the infection is and do something about it'. Fourteen years later and whenever anyone says they want to test my CRP I say 'That'll come back raised, it always does' and they just look at me and smile blandly. Madness and a...
  24. Hildergard

    Methylation confusion - should I stop the B12?

    That's exactly what I think. No doctor has ever been bothered by it though - just not interested. I'm going to try to pin them down about it and why they aren't investigating it.
  25. Hildergard

    Methylation confusion - should I stop the B12?

    Also, I don't know if this is an appropriate question for here but my CRP has been raised consistently for as long as I've been presenting symptoms to the dr - so in excess of 14 yrs. My kinesiologist had a 'look' at it the other day and said he thought it was something to do with some process...
  26. Hildergard

    Methylation confusion - should I stop the B12?

    Thanks so much for the replies and for the video links. I watched the methylation made easy ones and it makes sense now. I bought the book 'Could it be B12?' and was going by that. I should have looked for more specialised information about ME/CFS and B12. I can't afford any tests...
  27. Hildergard

    Methylation confusion - should I stop the B12?

    Hi everyone - sorry for jumping right in with no introduction but I could do with some help. I developed major ME/CFS symptoms in 1998 (although I'd had some symptoms since childhood) but didn't get an official diagnosis till 2002. About 5 years ago I had my mercury amalgam fillings removed and...