Search results

See my post above. You need sufficient methionine (a protein / amino acid) to lower histamine, because it's part of the enzyme (along w/b12 and folate) that breaks down histamine.

Thanks @triffid113. Here's one such study: https://pmc.ncbi.nlm.nih.gov/articles/PMC3717538/

Yes, that is correct. This quote is from the late, great Rich Van Konynenberg: (THF, or tetrahydrofolate) is the fundamental chemically reduced form of folate from which several other reduced folate forms are synthesized, and thus serves as the “hub” of the folate metabolism. THF is also a...

I'm bumping this post because this is a common mistake that many, many people on this forum -- including myself -- have made. B-12 and folate/methylfolate/folinic can indeed increase histamine if one takes too much folate, because it also needs methionine to make the HNMT enzyme that breaks...

Yes, B12 is needed in the krebs cycle...so is biotin (among many other things), so B12 may cause a biotin deficiency. Also B5 is needed for maintaining the skin barrier.

You may be interested in this small, but somewhat intriguing study. A case report of only four patients, none of whom had ME/CFS, but "a history of significant (sometimes severe) and repetitive inflammatory reactions including respiratory symptoms, joint pain, irritable bowel symptoms...

Well, I'm not a doctor, but some people just stop b12 or methylfolate for awhile, and take methionine by itself. It does convert to homocysteine, so I believe one will eventually need some b12. Here's an old post on Lynch's site as an example. Look for 'Sero's comment (I disagree though...

If you click on @Kathevans profile pic, you'll see that her post is over 2 years old, and the last time she posted was last January. It may be that she's doing a lot better, thanks to the neuroplasticity work, and/or she may be spending more time in the b12 oils FB group. Not sure... But Dr...

You may be low in methionine. People forget that the HNMT enzyme, which breaks down histamine, requires not only b12 and b2 -- and some say folate -- but also methionine. Even Dr. Ben Lynch, who was early on the methylation bandwagon, finally admitted around 2015 or so, that some people may...

Until he didn't. Note that the page I linked to is an archived copy...long gone from the web. :) Which is exactly my point. Why didn't he mention and/or promote Nature's Biotics in his book, and then later sell them through Garden of Life? By instead claiming he used 'Primal Defense', his own...

What actually worked for him was Nature's Biotics, which about 15 years ago was renamed 'BodyBiotics'. Still available as far as I know.

Hi Wayne, You know as an old friend I respect you greatly, but I feel compelled to point out the hypocrisy that is Jordan Rubin. What he failed to tell anyone in his book, was that he didn't use the product he (later) created and sold to cure his Crohn's, he used a product called 'Nature's...

Thiamine has been used quite successfully for essential tremor: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5884259/ Same w/B12: https://pubmed.ncbi.nlm.nih.gov/24852503/

I had one of my best remissions back in 2002-2003, when I was prescribed methylcobalamin shots along with nebulized glutathione. I started to get jittery, and have increased anxiety mid July 2003, so the doc stopped the B12 and prescribed thiamine injections. Felt 85% better in 2-3 days. So calm...

Actually it's not. It's the preferred form used in the work of Dr. Gregory Russell-Jones. Please note that in the linked study, it was injected directly into the brains of rats, bypassing the blood-brain barrier.

Here's one more: https://www.cdc.gov/parasites/resources/pdf/npi_factsheet.pdf

Google, etc., is your friend. But even the CDC admits this: "Diagnosis of any stool parasite may be difficult; by submitting several stool specimens, your chance of being diagnosed correctly is higher than by submitting just one sample. If you receive a negative lab report, your physician may...

I heard similar stories in a FB group a year or two ago. I tend to think ME/CFS is a result of multiple issues, but parasites are often not only next to impossible to turn up in a stool test, they're just not discussed very much, because 'We don't have them in the US'. That of course is...

Try to remember that just because he had a negative reaction to something in the past, doesn't mean it will happen in the future. An overnight trip is a lot different than sitting outside for 15 minutes. Or less. Start slow and pace yourselves. Also be aware that there may be dips and valleys...

If he has sleep apnea, treating it could be very beneficial, mild or not. If that doctor was mine, I'd ask why wait until it gets severe? Weird... I'm one that doesn't do well on supplementary melatonin at all. It constricts some blood vessels and dilates others, but for me anyway, anything...

Okay, this will sound weird, but in general it's unusual for someone with ME/CFS to be able to sleep so long. In fact one of the definitions of the condition is 'unrefreshing sleep'. This of course can take many forms, but it often means one may be able to sleep 5-7 hours or so per night, but...

Mainly, the B12oils protocol (B12, B2, plus the trace minerals selenium, iodine and molybdenum), plus I added methylfolate and d-ribose. I also add some krebs cycle nutrients from time to time (B1, B3, biotin) but haven't had that tested in years. There are several threads here on the B12oils...

Not doing good at all right now (due not to ME/CFS, but untreated anemia that I mistakenly attributed to ME/CFS and a lot of extra stressors, one after the other, in 2023). In hindsight, the anemia probably started around June, but I was also dealing with an ulcer/wound on my foot from venous...

Because I experienced his 'A.R.T' treatments personally. Years ago a friend volunteered to help pay for my medical care as she was so frustrated that my family wouldn't "step up" as she said. We chose a doc who was second in command -- had learned from him, and I believe still practices...

Not sure about histamine, but moly-b is required for SUOX to function properly.

Yes, that's true. That may be a partial option to increase sulfate, but that still wouldn't address a sulfur, sulfite problem. It might help increase sulfate levels though, which is good. Still, molybdenum is an absolutely essential trace element that is part of four different enzymes. Sulfite...

I'd try a different form. I couldn't tolerate the "Kal" brand as it was chelated with 4-5 amino acids. But the Seeking Health and Kirkman (and possibly others) are chelated to glycinate, and are fine.

@nicola is correct. One needs molybdenum to convert sulfur to sulfate, which is essential for sulfation, for processing salicylates/phenols, etc. Tagging @racerbiker39 as well. Sulfate is a good thing.

It's the hypothalamus extract that helps me. It still does, but I'm having other issues right now that inhibit my sleep.

Scott Forsgren is IMO, a con artist. He does nothing but promote (literally) dozens of different naturopaths with their dozens of 'essential' treatments for x-y-z diseases or conditions. I've been around long enough so that I've seen when he's said THIS cured my lymes, then THIS, did, and then...