notmyself
Senior Member
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When you have PEM?..are you still able to leave the house if you push it, or walking for a mile or so, standing for few hours?..or PEM basicly means bedridden?
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Is it the diet which changed things?I've made quite a lot of improvement from having PEM from every little thing, like getting up to make food or get a drink. To now I can do an hour walking/standing without significant debilitating PEM, but go slightly over my threshold and the worst of it comes on and knocks me back a few days. Ketogenic diet enables me to have only a very mild PEM after this one hour activity.
My sympathies! I just came back from seeing the grandkids. Did my rest periods, didn't "overdo". Came home, spent a week in bed, crying. Then HAD to tend to a sick animal, and have been paying for it every since, with severe muscle pain, exhaustion, and nausea. I hope continuing using rest, my herbs, and heat to ease the pain will put me back to coping. Don't have a ton of hope, though