Sweden:
https://eposten.se/asikter/2016/09/26/miljontals-saknas
English translation (Google):
Millions missing
OPINIONS: Empty shoe stalls
Tuesday, 27 September is empty shoes on squares and public places all over the world to show how many people are missing due to disease ME / CFS.
"Millions missing" - that is, millions of people are missing - is an international campaign to draw attention to the disease ME / CFS.In Sweden alone, about 40 000 people are affected.The disease is chronic and severe debilitating.Onset often occurs suddenly and is usually associated with a severe bacterial or viral infection, and the disease has never recovered even if the infection has cleared.
It affects men, women and even children.Some people with ME / CFS are completely bedridden while others are housebound because of ME / CFS.Formerly called the chronic fatigue syndrome.Fatigue is the wrong word, it is a total exhaustion aggravated by calling effort.Overall physical and mental exhaustion.One can compare it to run a marathon a day with the flu in the body simultaneously.Researchers have found that nervous, immune and endocrine system are affected by the disease.
Increasingly, research suggests that ME / CFS is an autoimmune disease.
The disease ME / CFS affects men, women and even children.Some people with ME / CFS are completely bedridden while others are housebound because of ME / CFS.
Increased knowledge about ME / CFS needed among health professionals, policy makers, authorities and the public that ME / CFS patients to receive appropriate care and treatment.
Self I became ill 15 years ago.I dream to walk, bike and get back to work.There are many of us with ME / CFS who dream about, to get our fill empty shoes again.
Increased research funding especially to biomedical research would bring us ME / CFS sufferers closer to that goal.
Facts and quotes are taken from RMEs writings.RME stands for National Association for ME patients, which is a non-profit organization.
Agneta Karlsson
