ryan31337
Senior Member
- Messages
- 664
- Location
- South East, England
Hi all,
I'm contemplating how to best categorise my symptoms and have started to explore the difference between fatigue & hypersomnia, something up until this point I have mistakenly conflated. I'm hoping some of you out there have had formal diagnosis of hypersomnia and might be able to share your experience?
Put simply I'm wondering if the biggest day-to-day problem I have currently is hypersomnia related to OI. I get very sleepy (heavy eyelids, cognitive slow-down) every few hours during the day, without much in the way of physical tiredness. Its especially noticeable after meals & responds well to caffeine. If I lie down and give in I will often fall asleep within minutes, usually waking spontaneously feeling very refreshed and energised after ~30 minutes. If I keep pushing on I usually get a worsening of symptoms that seem to match that of OI (hyperadrenergic POTS).
This is markedly different from a PEM day for example, whereby the sensation is much more fatigue/pain/malaise and I generally can't fall asleep in the day regardless of how much I'd like to.
Does this sound familiar to anyone? Would be good to hear your thoughts and any tips you might have
Thanks.
I'm contemplating how to best categorise my symptoms and have started to explore the difference between fatigue & hypersomnia, something up until this point I have mistakenly conflated. I'm hoping some of you out there have had formal diagnosis of hypersomnia and might be able to share your experience?
Put simply I'm wondering if the biggest day-to-day problem I have currently is hypersomnia related to OI. I get very sleepy (heavy eyelids, cognitive slow-down) every few hours during the day, without much in the way of physical tiredness. Its especially noticeable after meals & responds well to caffeine. If I lie down and give in I will often fall asleep within minutes, usually waking spontaneously feeling very refreshed and energised after ~30 minutes. If I keep pushing on I usually get a worsening of symptoms that seem to match that of OI (hyperadrenergic POTS).
This is markedly different from a PEM day for example, whereby the sensation is much more fatigue/pain/malaise and I generally can't fall asleep in the day regardless of how much I'd like to.
Does this sound familiar to anyone? Would be good to hear your thoughts and any tips you might have
Thanks.