snowathlete
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http://www.investinme.org/IIME Statement 1306-01.htm
It has become clear from our conferences and research meetings that international biomedical research collaboration was necessary to make rapid progress with ME research.
Today (6th June 2013) the Norwegian Forskningsradet has agreed to fund the next phase of trials of Professor Olav Mella and Dr Oystein Fluge from Haukeland University Hospital in Bergen [1]. These trials have already been discussed in the last three Invest in ME International ME Conferences, as well as research meetings organised by Invest in ME in collaboration with Alison Hunter Memorial Foundation of Australia.
Clinical trials by other groups are important and will provide the continuity and progress we look for. IIMEC7 highlighted the case for clinical trials [2].
Invest in ME and its supporters have decided that a UK Rituximab trial is important in this mix and we have been making initial discussions with researchers, across countries, to facilitate this.
We have now decided to embark on a fund-raising exercise to raise funds specifically for a UK Rituximab trial. We believe we have possibility to do this following our BMRMEC meeting [3] and IIMEC8 conference [4]. There is an opportunity to perform this and we now need help to raise funds.
We have proposed this with our supporters at Let's Do It for ME and believe it can be achieved.
We have therefore decided to create a separate strand to our Biomedical Research Fund which will be explicitly used for this UK rituximab trial.
Here is the link for donations -
DONATE HERE for the Invest in ME BIOMEDICAL RESEARCH FUND - RITUXIMAB TRIAL
We aim to build up a fund to accomplish this ourselves but we are happy to accept support from others who have the same objectives as Invest in ME.
A specific fund-raising thermometer will be created just for this project. More details of the project will be unveiled as we progress. More details of donating specifically to this fund are available at this link - IiME Rituximab Trial
We invite people to support this great venture and we have already contributed funds for this and have fundraising projects coming online which will add to this.
In addition IiME will be using the BRF to initiate other projects.
More details of these will be available as we continue the planning.
IiME are also discussing with our EMEA colleagues on ways to increase biomedical research into ME and have recently completed an interesting meeting which discussed this topic, amongst other lines of research.
We are confident these projects can be performed and started relatively quickly.
If you feel you can support us in any way - by fundraising, by spreading word of this, by simply letting us know that you agree with us then we welcome that support.
ME patients and their carers, when determined, are amongst the most resourceful around. The Let's Do It for ME campaign has energised ME research.
You can do it - We can do it.
Let's Do It For ME!
References:
1 B-lymphocyte depletion with Rituximab induction and maintenance in CFS/ME. A multicenter, randomized, double blind, placebo-controlled study http://bit.ly/111BQ6D
2 6th Invest in ME International ME/CFS Conference 2011 The Way Forward for ME - A Case for Clinical Trials http://bit.ly/11Ht7VW
3 Biomedical Research into ME Collaborative Meeting (BRMEC) Crowdsourcing for ME http://bit.ly/ZK7eoC
4 8th Invest in ME International ME (ME/CFS) Conference 2013 Infection, Immunity and Myalgic Encephalomyelitis - Mainstreaming ME Research http://bit.ly/10Iw7bg
It has become clear from our conferences and research meetings that international biomedical research collaboration was necessary to make rapid progress with ME research.
Today (6th June 2013) the Norwegian Forskningsradet has agreed to fund the next phase of trials of Professor Olav Mella and Dr Oystein Fluge from Haukeland University Hospital in Bergen [1]. These trials have already been discussed in the last three Invest in ME International ME Conferences, as well as research meetings organised by Invest in ME in collaboration with Alison Hunter Memorial Foundation of Australia.
Clinical trials by other groups are important and will provide the continuity and progress we look for. IIMEC7 highlighted the case for clinical trials [2].
Invest in ME and its supporters have decided that a UK Rituximab trial is important in this mix and we have been making initial discussions with researchers, across countries, to facilitate this.
We have now decided to embark on a fund-raising exercise to raise funds specifically for a UK Rituximab trial. We believe we have possibility to do this following our BMRMEC meeting [3] and IIMEC8 conference [4]. There is an opportunity to perform this and we now need help to raise funds.
We have proposed this with our supporters at Let's Do It for ME and believe it can be achieved.
We have therefore decided to create a separate strand to our Biomedical Research Fund which will be explicitly used for this UK rituximab trial.
Here is the link for donations -
DONATE HERE for the Invest in ME BIOMEDICAL RESEARCH FUND - RITUXIMAB TRIAL
We aim to build up a fund to accomplish this ourselves but we are happy to accept support from others who have the same objectives as Invest in ME.
A specific fund-raising thermometer will be created just for this project. More details of the project will be unveiled as we progress. More details of donating specifically to this fund are available at this link - IiME Rituximab Trial
We invite people to support this great venture and we have already contributed funds for this and have fundraising projects coming online which will add to this.
In addition IiME will be using the BRF to initiate other projects.
More details of these will be available as we continue the planning.
IiME are also discussing with our EMEA colleagues on ways to increase biomedical research into ME and have recently completed an interesting meeting which discussed this topic, amongst other lines of research.
We are confident these projects can be performed and started relatively quickly.
If you feel you can support us in any way - by fundraising, by spreading word of this, by simply letting us know that you agree with us then we welcome that support.
ME patients and their carers, when determined, are amongst the most resourceful around. The Let's Do It for ME campaign has energised ME research.
You can do it - We can do it.
Let's Do It For ME!
References:
1 B-lymphocyte depletion with Rituximab induction and maintenance in CFS/ME. A multicenter, randomized, double blind, placebo-controlled study http://bit.ly/111BQ6D
2 6th Invest in ME International ME/CFS Conference 2011 The Way Forward for ME - A Case for Clinical Trials http://bit.ly/11Ht7VW
3 Biomedical Research into ME Collaborative Meeting (BRMEC) Crowdsourcing for ME http://bit.ly/ZK7eoC
4 8th Invest in ME International ME (ME/CFS) Conference 2013 Infection, Immunity and Myalgic Encephalomyelitis - Mainstreaming ME Research http://bit.ly/10Iw7bg