Black is for 4wks, Green for 7 wks, Blue for 9wks and 5 MONTHS
Weeks/Months on Protocol: 5 MONTHS
Progress Made:
Energy up by 4-9 out of 10, mfolate has giving me an unnatural amount of energy, like freakish. Freddd said I need to lower my mb12 while increase mfolate. I can always tell I have more energy when my sense of humor comes back. Energy is good but my mood is off. Not my witty self. Good, have had some down slides until I started taking b2 twice a day without any other B's to interfere. It really helped increase my energy and eliminate the eye floaters.
Acne going away- its going, going and gone ( a few left but nothing to dwell on). Same as week 7 It has come back but it is due to the DHEA and I have been on fertility meds so, not an accurate measure
anxiety about conversing with people gone- Has come back. Has gone away with addition of tyrosine. I used to not be able to initiate tasks, even simple things like making a doctors apt or tackle my list. This got worse as I progressed into treatment. I am able to talk to people and get s#%! done! Yeah!
Less PEM crashing- Increased Muscle energy production- started taking 2000 of l-carnitine, solved it in 2-4 days. I feel like I'm building strength- weird I know. I should have some measurable physical outcomes soon. Definatly good. I can’t exercise for data as I think I sprained my toe! I just can't win!!! Just started back to running a couple of times a week, doc thinks I broke my toe. I feel like I can do the exercise and have little or no repercussions but I don't feel fantastic during my runs. I have to stop a great deal to walk. However, I am running during hot days 85 degrees. I do far better with the 60's. I wish my endurance would pick up. I know I will be making progress when I feel like I am building endurance. I have been tracking my heart rate and there is no correlation between exsertion and heart rate output. I was hoping there would be but I do try to keep my hr under 156. FYI, I am really driven person, so I tend to push myself. If I was a normal Fibro or CFS person, I would not be running. But I am by no means normal.
Symptoms Remaining or Gaining
Chronic sinus infections- Mucus is thinning, yeah! But not gone. This is still an issue. I had a virus for a couple of weeks and then I was in colorado springs for two weeks which dried me up but did not solve the problem. I wish this symptom would go away.
my memory is kind of worse- it was its best when on lovenox- so that is what I am judging it on. still bad. supper bad, getting worse. I can still say full sentences… and type so ..? Tyrosine, lovenox and diflucan have helped a great deal. Mostly the tyrosine. I function normally now. As long as I take it several times a week.
Limited activities- not sure where I am with this, I have had a sinus infection the last week. So? Sick last week with flu and this week I injured my toe (chasing a frog!). I have lost some energy with the whole Jarrow B12 decreased in potency issue that everyone was having and then it leveled off. However, once I started taking b2 twice a day, my energy picked back up again. I think I had burned through all my B2, and since that is needed to retain/absorb all the other b's, the Methlyation was not effective. I wonder if this is why some people's treatement becomes ineffective? I really noticed a difference. The last two weeks have been intense (lawyers, lawyers and more lawyers!) so I don't know if I am dealing with adrinaline or normal energy.
Food sensitivities- trying to be good on this and not eat my heavy offenders. Still trying to be good. It seems to be getting slightly better. Can't be 100% yet. I can tolerate some soy, and I don't itch as much with the corn. I have been eating 1/2 glutten free. Overall, do ok, and have not noticed any side effects due to food, but that does not mean they arn't happening.
Still can't have a beer without repercussions =(- and I still cant. But I am staying off the sauce for other reasons so no big loss. Still off the sauce. Beer still gives me repercussions. Have to drink vodka
Vision- This past month I have notice a ton of floaters in my vision, it's kinda freaking me out but I will need to do some research before I hit the panic button. This was totally taken care of by B2! I take it separate from my other b’s Need more B2 when increased my B12/folate.
Sleep- not normal. I keep waking up at 6:00 am. I really like sleeping until 8:00 but my body won't let me now. So I roll around in bed for two hours. I still feel crappy when I wake up both at 6 and 8. But I think that has more to do with my constant sinus infections. One of the reasons I started Methylation was to improve my sleep. I purchased a fitbit to track my sleep. It graphs the times I am awake and moving. Not sure how applicable the results are but at least I have some kind of measurement. So I am getting any where from 3-4 hours of sleep with wake up times of 13-19 times with those being 15-20 minute long each. The nice thing about this is as I change my supplements I can see if it effects my sleep. I have a base line and I did try a muscle relaxer that did not effect it. It also tracks my level of physical activity so I can compare the level per day. Well, after tracking my sleep for several months, if my sleep is above 55%, than I feel fantastic the next day, uncontrolably good. I did reach a 65% once and it was wonderful! I took lunesta to get that. I have a tolerance Lunesta so it does not work anymore. When I first tried it, I had 6-8 of the best months in the past 15 years. It was lovely. Now I use it when I have too.
Exercise- I feel like I have elastic lungs… Crazy I know. But I used to deeply inhale and the would get to a point and stop. Now when I inhale it feels like a balloon where I can keep inhaling and my lungs will keep going. I have NO PEM. I went running last week and that would have made the next morning very bad almost useless. Moreover, after a run, I would be done for the day. On the sofa. But now I rest for 1 hour and I am up making dinner or cleaning the house. This has stayed the same.
Pain- I don’t generally have pain, it is well controlled as long as I have some exercise program. But the past year I have had this one spot on the outside of my knee that was growing in pain. Its one of the 18 pressure points. It’s starting to fade away. I had some pain in my hips the other day but was unsure as to its cause. It went away the next day. The pain on my knee has not completly left but is still tender when pushed on.
My Protocol
Am
50 DHEA Taking is down to just 50 a day
2.5 Cortif
1200 Fish oil
100 Antibotic
ALA
1200 mucinex
1000 C
5 mg Mb12
3 mg ADb12
1000 Lcarintine
25 Zinc
500 Potassium
400 CoQ10
200 Magnesium (not sure the dose?)
1600 Mfolate
100 B2
Noon doses
100 B2
800 Mfolate
500 Potassium
1000 C
Afternoon (2 ish)
1200 Fishoil
olive leaf- I take this to prevent cold sores, it does a great job.
50 DHEA 25 DHEA
25 Zinc
E
B- Complex- The one without Folic Acid
1000 C
TMG
1000 L-carnitine
500 Potassium
200 Magnesium (not sure the dose?)
1600 Mfolate
5 mg Mb12
5 mb12 (changed from 15 per day)
PM
75 Noritriptyline
3 mg Melatonin
1000 C
100 Antibiotic
5000 D
10 mg Sigulaur
500 potassium
200 Magnesium (not sure the dose?)
100 B2
Through out the day I take more mb12 up to 5 of them and more potassium up to 3000. I take more if I need it.