taniaaust1
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This thread is a mod moved thread out from anothers thread in response to another post which didnt get moved with it... not really a discussion on meds (a mod named it) but rather a discussion in response to anothers comments. So basically just a discussion thread, anyone is welcome to comment on any aspects of ME/CFS or what is said in this thread.
To Ai-Yai ..
Clonazepam is to slow down the neuro excitoxity (over active nervous system) most of us with ME have. It is recommended by many ME experts around the world (our neuro systems are more towards the side of seizures etc) and I myself can say it is VERY HELPFUL for that symptom. Without it.. well my anxiety due to over stimulated neuro system was truely terrible.. almost enough to drive a person insane..it was constant and severe.
This drug apparently works also as like a neuroprotector for ME people. http://www.prohealth.com/library/showarticle.cfm?libid=8021 (here's what one ME expert says about it.. but many other experts also recommend it for us).
Many of us have tried supplement after supplement.. with no luck. Supplement wise I have only ever found C, B12, molybdenum and selenium to be of help and each of those only helps a little with ONE symptom out out of the over 90 different symptoms I get with the ME (Ive tried sooo many different supplements).
She obviously needs these meds like many of us do to treat the various aspects of ME.. Im on some of those myself along eg Florenif for POTS but looks like I will be needing to take more drugs for it eg beta blocker as its still not all that good. (these are normal Postural Orthostatic Tachycardia Sydrome POTS treatments). Check out http://www.medhelp.org/tags/health_page/24603/Dysautonomia/Dysautonomia-Treatments?hp_id=171
I also take prescription pain killer, prescription anti-nausea drug (same kind they give chemo patients), prescription pain killers, 2 prescripton sleep pills etc
You are very lucky if your illness wasnt severe enough that you didnt need a ton of prescription drugs to help. My life was a hellish nightmare before I got drug treatments.
I also used to have to take prescription drug (it may of been fluconazole) if I take antibiotics as other wise I'd break out in bad thrush. Many with ME have issues with thrush (candida). The poster said she'd been on antibiotics and those make this kind of issue worst... that I would think would be why the Fluconazole. http://wwcoco.com/cfids/bernesx.html (according to that 30-80% of us get systemic fungal issues .. I currently have what could be fungal right across the top of my foot and ankle, Im currently using prescription clotrimazole cream on it)
Your comment shows just how unaware you are of how sick some with ME are. Most of us at this site are probably taking as many and some even more.. prescription drugs as this threads poster is. She isnt unusual for ME.
Im hoping the mods dont remove your post as I think you need to be better educated on this and others will respond.
One thing I do agree with you with is drug interactions is a worry and commonly does happen. Thing is many of us need drugs for the symptoms we get as nothing else helps. We arent strange taking drugs.. its desperation to get rid of often horrific symptoms and often those drugs do help to make our lives more livable.
Before passing judgements, educate yourself more on this illness and you will more understand the whys of ME people taking certain drugs.
To Ai-Yai ..
Clonazepam is to slow down the neuro excitoxity (over active nervous system) most of us with ME have. It is recommended by many ME experts around the world (our neuro systems are more towards the side of seizures etc) and I myself can say it is VERY HELPFUL for that symptom. Without it.. well my anxiety due to over stimulated neuro system was truely terrible.. almost enough to drive a person insane..it was constant and severe.
This drug apparently works also as like a neuroprotector for ME people. http://www.prohealth.com/library/showarticle.cfm?libid=8021 (here's what one ME expert says about it.. but many other experts also recommend it for us).
Many of us have tried supplement after supplement.. with no luck. Supplement wise I have only ever found C, B12, molybdenum and selenium to be of help and each of those only helps a little with ONE symptom out out of the over 90 different symptoms I get with the ME (Ive tried sooo many different supplements).
She obviously needs these meds like many of us do to treat the various aspects of ME.. Im on some of those myself along eg Florenif for POTS but looks like I will be needing to take more drugs for it eg beta blocker as its still not all that good. (these are normal Postural Orthostatic Tachycardia Sydrome POTS treatments). Check out http://www.medhelp.org/tags/health_page/24603/Dysautonomia/Dysautonomia-Treatments?hp_id=171
I also take prescription pain killer, prescription anti-nausea drug (same kind they give chemo patients), prescription pain killers, 2 prescripton sleep pills etc
You are very lucky if your illness wasnt severe enough that you didnt need a ton of prescription drugs to help. My life was a hellish nightmare before I got drug treatments.
I also used to have to take prescription drug (it may of been fluconazole) if I take antibiotics as other wise I'd break out in bad thrush. Many with ME have issues with thrush (candida). The poster said she'd been on antibiotics and those make this kind of issue worst... that I would think would be why the Fluconazole. http://wwcoco.com/cfids/bernesx.html (according to that 30-80% of us get systemic fungal issues .. I currently have what could be fungal right across the top of my foot and ankle, Im currently using prescription clotrimazole cream on it)
Your comment shows just how unaware you are of how sick some with ME are. Most of us at this site are probably taking as many and some even more.. prescription drugs as this threads poster is. She isnt unusual for ME.
Im hoping the mods dont remove your post as I think you need to be better educated on this and others will respond.
One thing I do agree with you with is drug interactions is a worry and commonly does happen. Thing is many of us need drugs for the symptoms we get as nothing else helps. We arent strange taking drugs.. its desperation to get rid of often horrific symptoms and often those drugs do help to make our lives more livable.
Before passing judgements, educate yourself more on this illness and you will more understand the whys of ME people taking certain drugs.