I am so tired of going through periods of time where I feel like I'm suddenly getting better. And I'll think there's a light at the end of the CFIDS/ME tunnel, and then shortly thereafter, I relapse for no reason at all. Not from overdoing it. I just plain flare up and feel like I want to die from the pain and all the other symptoms.
I've been flaring up alot lately, and unable to do anything. And it's just getting me so down. No one should have to live with this kind of pain and suffering. I was awake all nite again from the pain. And I've been awake every nite this week from it. Plus POTS lightheaded attacks. And Migraines. Just all kinds of suffering. I'm so tired of this.
Every time I think I'm getting better and that I might actually be able to do something, bang. It just flares back. And then I realize how unrealistic being able to do anything really is. I can't. It's never going to go away and it's unpredictable. It makes me unreliable. It makes me a crappy friend who can't do anything. Can't work, can't go to school, can't go to parties, can't do much of anything at all. Basically, if I can't do it from my home, and laying down, it's not happening. And lately, the flare has really rendered me useless.
Anyone else feel like that? You take two steps forward, and then it's a hundred steps back with this disease.
I've been flaring up alot lately, and unable to do anything. And it's just getting me so down. No one should have to live with this kind of pain and suffering. I was awake all nite again from the pain. And I've been awake every nite this week from it. Plus POTS lightheaded attacks. And Migraines. Just all kinds of suffering. I'm so tired of this.
Every time I think I'm getting better and that I might actually be able to do something, bang. It just flares back. And then I realize how unrealistic being able to do anything really is. I can't. It's never going to go away and it's unpredictable. It makes me unreliable. It makes me a crappy friend who can't do anything. Can't work, can't go to school, can't go to parties, can't do much of anything at all. Basically, if I can't do it from my home, and laying down, it's not happening. And lately, the flare has really rendered me useless.
Anyone else feel like that? You take two steps forward, and then it's a hundred steps back with this disease.